Cure CASK Australia

14/10/2026

CURE CASK
Family founded. Science led. Globally connected.
Last week, we introduced our founder, Giovi Moschoudis, and shared her family’s story. In her interview, Giovi spoke about the “why” behind Cure CASK, her daughter Angelina’s diagnosis and her family’s determination to help build a future with effective treatments for those living with CASK .

We have recently welcomed new families to our CASK community, and we want to help them get to know Cure CASK who we are, how our work began and what we are working towards together.

Over the coming weeks, we’ll share the research projects we have supported, introduce the scientists and families involved. Whether you are new to the community or have been part of our journey from the beginning, this is an opportunity to learn more about the work you are helping make possible.

Our story began in Australia, but it soon brought other families together.

In 2022, we established Cure CASK USA alongside fellow CASK mums Tara McCarton and Christy Naughton, whose daughters are Audrey and Ellie. They joined our mission with their own family experiences and a shared determination to turn hope into action.

Together, we have worked to:
• build relationships with leading scientists;
• initiate and fund research projects;
• develop international partnerships to support progress towards treatments;
• help form the CASK Coalition with our partners in the United Kingdom and France.
Today, the Coalition brings together six national CASK organisations, sharing knowledge and working together to advance research.

Behind this work are families who understand the uncertainty of a CASK diagnosis, scientists committed to finding answers, and supporters who help make the research possible.

We look forward to introducing you to the people and projects behind this journey and sharing what comes next.
Together, we can change lives through science and hope.

Tara McQuillen McCarton

11/10/2026

NATIONAL CARERS WEEK | 11–17 OCTOBER 2026
Care for a carer: Making carers visible

This National Carers Week, Cure CASK recognises and thanks the carers in our CASK community and across the wider rare disease and disability community. You are part of the more than three million Australians who provide unpaid care to a family member or friend.
Caring looks different for everyone, and much of it happens out of sight. It can mean disrupted nights, coordinating appointments and therapies, supporting communication and daily routines, and advocating for the care and support a loved one needs.

To the parents, grandparents, siblings, partners and friends who provide that care your time, knowledge, love and advocacy make a difference every day.
We recognise the joy and connection that caring can bring, alongside the exhaustion, uncertainty and isolation that carers may experience.
Your wellbeing matters, and you deserve care and support too.

Making carers visible means listening to their experiences, valuing their knowledge and recognising their own needs. It means ensuring carers have access to practical support, opportunities to rest and a community that includes them.

This week, reach out to a carer in your life. Ask how they are going, take time to listen and offer something specific, such as bringing a meal or helping with an errand.

To our carers: thank you. You are valued, and your needs matter every week of the year. 💜

06/10/2026

The Heart and Why Behind Cure CASK
Don’t yet know our story? In this heartfelt interview, founder Giovi Moschoudis shares her daughter Angelina’s journey, the “why” behind Cure CASK, and the research we’re supporting towards effective treatments and, ultimately, a cure.

It’s about turning love, uncertainty and determination into action for every child and family navigating life with CASK.

Watch the full interview here
https://youtu.be/mdwtBl53H2g

26/09/2026

💜 Together, we raised $50,000! 💜

Thank you to all of our sponsors, , G.J. Gardner Homes Australia Anyfr8 Global Logistics Penrith Panthers , Five Dock Falcons Baseball Club Western Sydney Wanderers FC , Eaglehawk Park Canberra , , , individual donors and everyone who bought raffle tickets, bid on or purchased auction items, donated prizes or joined us on the night—you made this possible.

Special thanks to Bill Mougios and Mary Vanakis at the for the beautiful venue and the love they show our CASK children.

Thank you to each of our cask families who travelled more than a few hours to join us and also continue to support us. I cant seem to tag you all on this post but you know who you are!!!!

From Cure CASK and our families, thank you. 💜

22/09/2026

Sharing this with a very heavy heart. 🤍 We are thinking of Sofia’s family and holding them close in our hearts. Her beautiful memory will live on within our CASK family, and we will continue to stand together and work towards a future where no family has to face this devastating loss.

Ci sono dolori per i quali le parole non bastano. 🤍

La nostra amata Sofia è volata in cielo troppo presto. È la prima ragazza della nostra comunità CASK a diventare un angelo e la sua perdita lascia in tutti noi un vuoto immenso.

In questo momento di profondo dolore, tutta la comunità CASK si stringe con amore e affetto intorno ai suoi genitori e alla sua famiglia, che l’hanno amata, protetta e sostenuta con una forza infinita.

Sofia, non dimenticheremo mai il tuo sorriso, la tua luce e l’amore che hai saputo donare. Rimarrai per sempre parte della nostra grande famiglia.

In tuo onore continueremo a lottare, con ancora più forza, per tutti i bambini e i ragazzi con la sindrome di CASK.

Dacci la forza, dolce Sofia.
Ti vogliamo tanto bene. 🤍

Buon viaggio, bellissimo angelo. 🕊️

22/09/2026

At our Cure CASK Annual Fundraising Dinner 2026, Emmy also shared a heartfelt speech about her older sister, Beth, who lives with CASK, and the impact it has had on her own life.
With light-hearted moments alongside raw emotion, Emmy offers an honest glimpse into the sibling experience, the love, the challenges and the moments that have shaped her. Her words remind us that behind every diagnosis is a family, and that siblings have their own important stories to tell.
Thank you, Emmy, for sharing yours with such warmth, humour and honesty.

https://youtube.com/shorts/rHA_3lmEbM0?feature=share
Louise Konz

21/09/2026

A heartfelt thank you to Dr Selin Pars from The University of Queensland for joining us at our Cure CASK Annual Fundraiser Dinner and for taking the time to speak about CASK and the important research being undertaken through the UQ research program.

We are so grateful for your commitment to advancing CASK research and for sharing your work with our CASK community and our supporters . 💙🩷

Thank you for being part of such a special evening and helping us move closer to better understanding CASK. 🧬✨

The University of Queensland Australian Institute for Bioengineering & Nanotechnology - AIBN

21/09/2026