Cure CASK Australia

08/06/2026

07/06/2026

Today we remember Professor Richard Scolyer, whose courage, determination and commitment to advancing brain cancer research inspired countless people around the world.

His legacy is a powerful reminder of why research matters. Every breakthrough begins with a question, a discovery, and the belief that better treatments and outcomes are possible.

At Cure CASK, we share that same hope. While our mission focuses on CASK gene disorders.

We extend our deepest condolences to his family, friends, colleagues and the wider research community. His legacy will continue to inspire future generations of scientists, clinicians and families fighting for a better tomorrow.

Former Australian of the Year Professor Richard Scolyer has died aged 59 after a remarkable fight against the 'worst of the worst brain cancers'.

His legacy — fast-tracking revolutionary cancer treatment by becoming "patient zero" for an experimental approach.

One of the world's top melanoma pathologists, Professor Scolyer and his colleagues took everything they had learnt about fighting melanoma and adapted it to brain cancer treatment.

It resulted in valuable data that showed how immunotherapy could be used for brain cancer – a cancer that has few advances in treatment for almost two decades.

"I hope this has the power to transform how we treat all cancers, to think big and be courageous.” - Professor Scolyer.

Handed a prognosis of six months to a year Professor Scolyer kept his cancer at bay for 22 months using the trial treatment before the glioblastoma returned in March 2025.

Read more: https://ab.co/4dV8XqI

03/06/2026

💛 Grateful for Our Gold Sponsors 💛

We would like to extend our deepest gratitude to Gen Z Advisory for their support as Gold Sponsor for the Cure CASK Annual Fundraiser on 19 September 2026 .

✨ Your commitment is changing lives.
✨ Your support is accelerating progress.
✨ Your belief in our mission gives families strength.

From our family, and from every CASK family thank you for walking this journey with us.

If you would like to become a Gold Sponsor or join us for this special event, please visit:
https://curecask.com/cure-cask-dinner-2026/

💫 One mission. One brighter future.

02/06/2026

🎉 50% OF TICKETS NOW SOLD! 🎉
We are thrilled to announce that over 50% of tickets have already been secured for the Cure CASK Fundraising Dinner on 19 September 2026 at the Grand Roxy, Brighton-Le-Sands.
This will be an unforgettable evening of hope, community, entertainment, and fundraising as we come together to support children and families affected by CASKrelated disorders and help drive vital research forward.
⏰ Early Bird pricing ends 30 June 2026!
Don't miss your chance to save and secure your place before tickets sell out.
Every ticket purchased helps us move one step closer to better treatments and a brighter future for those living with CASK disorders.
💜 Book your tickets today and join us for a night that truly makes a difference.

https://curecask.com/cure-cask-dinner-2026/

02/06/2026

💛 Grateful for Our Gold Sponsors 💛

We would like to extend our deepest gratitude to G.J. Gardner Homes Australia, for their ongoing support as a valued returning Gold Sponsor for the Cure CASK Annual Fundraiser on 19 September 2026 .

Your unwavering support year after year means more than words can express. Standing beside us consistently, you have become a true part of our community helping drive vital research and bringing real hope to families living with CASK gene disorders.

✨ Your commitment is changing lives.
✨ Your support is accelerating progress.
✨ Your belief in our mission gives families strength.

From our family, and from every CASK family thank you for walking this journey with us.

If you would like to become a Gold Sponsor or join us for this special event, please visit:
https://curecask.com/cure-cask-dinner-2026/

💫 One mission. One brighter future.

25/05/2026

💛 Grateful for Our Gold Sponsors 💛

We would like to extend our deepest gratitude to Western Sydney Wanderers FC for their ongoing support as a valued returning Gold Sponsor for the Cure CASK Annual Fundraiser on 19 September 2026 .

Your unwavering support year after year means more than words can express. Standing beside us consistently, you have become a true part of our community helping drive vital research and bringing real hope to families living with CASK gene disorders.

✨ Your commitment is changing lives.
✨ Your support is accelerating progress.
✨ Your belief in our mission gives families strength.

From our family, and from every CASK family thank you for walking this journey with us.

If you would like to become a Gold Sponsor or join us for this special event, please visit:
https://curecask.com/cure-cask-dinner-2026/

💫 One mission. One brighter future.

21/05/2026

CASK Mini Brains in a Dish Study!
A big step forward for our CASK community
We’re so proud to share an important update in our research journey.
Two of our CASK children have donated blood samples to help create special cell lines for research. These have now been officially registered and approved on a Global Scientific Database (hPSCreg).
💡 What does this mean?
✔️ These cells are recognised and trusted by scientists around the world
✔️ Researchers can now use them to better understand how CASK affects the brain
✔️ It allows labs across the world to work together using the same model
💛 Why this matters
For rare conditions like CASK, progress only happens when researchers can work together. This step means:
🌍 More scientists can study CASK
🔬 Research can move faster and build on each other
💊 It brings us closer to finding treatments

This is a powerful step forward.

17/05/2026

Cure CASK Australia Annual Fundraising Dinner Grab your Early Bird Tickets

https://curecask.com/cure-cask-dinner-2026/

📅 Saturday 19 September 2026
✨ Silver & Gold Sponsorships Available
Join us for an evening of connection, hope and impact.

11/05/2026

💛 Grateful for Our Gold Sponsors 💛

We would like to extend our deepest gratitude to , for their ongoing support as a valued returning Gold Sponsor for the Cure CASK Annual Fundraiser on 19 September 2026 .

Your unwavering support year after year means more than words can express. Standing beside us consistently, you have become a true part of our community helping drive vital research and bringing real hope to families living with CASK gene disorders.

✨ Your commitment is changing lives.
✨ Your support is accelerating progress.
✨ Your belief in our mission gives families strength.

From our family, and from every CASK family thank you for walking this journey with us.

If you would like to become a Gold Sponsor or join us for this special event, please visit:
https://curecask.com/cure-cask-dinner-2026/

💫 One mission. One brighter future.