Conquer Cystic Fibrosis

13/08/2026

We must keep funding research to fight the vast complications of this disease and ensure no one is left behind.

We Are Not Done Yet.

As we continue to see remarkable progress in cystic fibrosis (CF) research, treatment and care, I believe it is important that we also pause to reflect on what remains unfinished. In my first CEO blog, I want to share why, despite how far we have come, we are not done yet.

https://www.cftogether.org.au/cystic-fibrosis-au/posts/ceo-blog-13-08-2026

11/08/2026

Some more wonderful news from the Australian Cystic Fibrosis Conference.
We’re excited to announce Dr Michael Coffey from UNSW as the latest recipient of the Conquer CF GI Innovation Grant. This has been granted through the ACFRT.
Dr Coffey’s SONIC-GI-CF project will investigate the use of non-invasive, point-of-care intestinal ultrasound to better understand and monitor gastrointestinal disease in people with CF.
GI symptoms including abdominal pain, bloating, constipation and bowel complications can have a significant impact on people with CF. This research aims to develop a simple and repeatable way to identify changes in the bowel and, ultimately, improve how CF gut symptoms are understood and managed.
It builds on our commitment to progressing GI research, including the important work of Professor Keith Ooi and his team, whose research is helping uncover how CF affects the gut and paving the way for better treatments and quality of life.
Congratulations to Dr Coffey and the team! We look forward to hearing the outcomes.
And as always - a big thanks to all of our supporters who make these donations possible.

Cystic Fibrosis Australia UNSW
* Dr Coffey (middle) is pictured with our Chair Wendy Endebrock-Brown and Professor Ooi.

10/08/2026

Father’s Day is just around the corner, so why not upgrade Dad’s look while helping fund vital scientific research?

Look good, do good 🤙

⬇ Order now and get upgraded to express post for Fathers Day.
https://the-salty-mamas-club.square.site

09/08/2026

A wonderful result for WA cystic fibrosis research at the 16th Australasian Cystic Fibrosis Conference in Geelong this weekend.
WA researchers Sarah Thomas and Talya Conradie both received awards for their oral and visual research presentations. They are pictured here with pictured with our Chair Wendy Endebrock-Brown and Cystic Fibrosis WA
CEO Lisa Bayakly.
Sarah, who is also a mother to a child with CF, is developing a blood test to measure levels of CFTR modulator medications in people with CF. The aim is to better understand why people respond differently to these life-changing medicines and, ultimately, help clinicians individualise doses to maximise benefit while reducing side effects.
Talya’s research is investigating viral lung infections in people with CF, including how the communities of microbes and viruses within the lungs influence susceptibility to infection and how treatments such as azithromycin affect the virome and immune response.
Importantly, both researchers are recipients of funding through the WA Cystic Fibrosis Research Collaborative Program. This landmark partnership combines funding from the WA State Government’s Future Health Research and Innovation (FHRI) Fund and Cystic Fibrosis WA, in collaboration with Conquer Cystic Fibrosis. The initiative created a $2 million funding pool for WA-based CF research, with the State Government matching the investment from the CF community.
Because of your generosity, we have been able to support these talented young WA researchers and to see their work recognised on the national stage. Congratulations Sarah and Talya!

09/08/2026

Be in it to win it! 🤑

05/08/2026

A special game honouring an incredible young woman and Conquer Cystic Fibrosis advocate, Jayde.🌹

A special day that means the world to us, Jayde Kinane Memorial Cup!💜
Reserves - 12.25pm
League - 3.10pm
Marlee Resources - 6pm
📍 HIF Health Insurance Oval

28/07/2026

👴🏼A little 100 yr old man celebrating 100 days smarter at school 👴🏼

This photo does so much more than just make us smile. It reminds us of our greatest wish as parents, that our child gets the opportunity of time.

Time for our child to grow up.
Time to chase their dreams and explore the world.
Time to fall in love & have a family, if they choose.
Time to laugh until their cheeks hurt, making memories that stretch across a lifetime.

We dream of the day they have wrinkles earned from a life well lived. Grey hair from decades of adventures. A hundred birthdays surrounded by the people they love.

The ultimate dream, is that our child outlives their parents.

For families living with cystic fibrosis, that future isn’t a given. Every breakthrough, every new treatment, and every step forward towards this dream has happened because of research and the people who support it. This is why we won’t stop until we have conquered cystic fibrosis.

15/07/2026

Support us on our mission to grant our salty kids every chance to grow old. Become a regular donor via our website or add some Salty merch to your cart.

🛒 https://the-salty-mamas-club.square.site

🧬 www.conquercysticfibrosis.com

10/07/2026

Our charity has funded promising gastrointestinal research by Professor Ooi. An area of great and growing need. Only possible due to your support. Thank you.

We’re proud to see Professor Keith Ooi recognised for his important work advancing care and research for people living with cystic fibrosis (CF).

Professor Ooi has been a long-standing collaborator with Cystic Fibrosis Australia, working alongside our organisation to improve outcomes for the CF community.

Most recently, he served as Medical Chair of the 2024 Australasian Cystic Fibrosis Conference (ACFC), where he played a pivotal role in shaping a world-class scientific and clinical program, bringing together leading clinicians, researchers and health professionals to share the latest advances in CF care.

Professor Ooi has also been a recipient of research funding administered through the Australian Cystic Fibrosis Research Trust (ACFRT). For more than three decades, the ACFRT has proudly invested in Australian-led CF research, supporting innovation and helping ensure Australia remains at the forefront of global discoveries that improve the lives of people living with CF.

To date, CFA has facilitated almost $10 million in research funding across a diverse range of disciplines, including gastroenterology, respiratory medicine, microbiology, genetics, mental health and many other areas that are shaping the future of CF care.

Congratulations, Professor Ooi, on this well-deserved recognition, and thank you for your ongoing dedication to improving the lives of people living with cystic fibrosis.

Read more about Professor Ooi's work here: https://bit.ly/3SRcpuf

09/07/2026

Every breakthrough starts somewhere and these small grants may be the kick start a promising idea needs.
Expressions of Interest are now open for the WA Cystic Fibrosis Research Collaborative Program Postgraduate Top Up Scholarship, providing $15,000 per year for three years to support PhD and MD students undertaking CF research in Western Australia.
The WA Cystic Fibrosis Research Collaborative is a partnership between the Future Health and Research Innovation (FHRI) Fund, Cystic Fibrosis WA and Conquer Cystic Fibrosis - working together to fund research right here in WA.
Interested students and supervisors can register their interest by emailing [email protected] by 15 July 2026.
More info is available at https://www.cysticfibrosis.org.au/current-grant-opportunities/