Conquer Cystic Fibrosis

05/10/2026

The dedicated team behind this need the CF community to support it to ensure progress and improvements in care. Research is that vital first step and without contact from those in our community - it can’t happen. We are looking to hear from:
• People living with CF aged 13 years and over
• Family members of people living with CF
• CF healthcare professionals (including community support providers)
Participants can be located anywhere in Australia and will be invited to take part in a one-on-one online (or telephone) interview to discuss their experiences of communication and shared decision-making in CF care.

CFPhysio.com Inc are supporting a national project which aligns closely to our vision and mission. Check out the information from the PEP-AUS team:

Take part in a national project aimed at enhancing communication and partnership in Cystic Fibrosis (CF) care across Australia.

A team of Australian CF healthcare professionals and people living with CF are working together to create the Partnership Enhancement Program Australia (PEP-Aus), a CF-specific communication training program tailored for the Australian CF community.

Your perspective as someone impacted by CF is essential to help us shape the Pep-Aus program so that it truly reflects the needs of the Australian CF community.

If you are a person with CF aged 13 or over, of a parent/guardian/caregiver for a person with CF, we want to hear about your experiences of communication with your CF healthcare team - what works well, what feels challenging, and what could make CF care feel more collaborative and supportive. In return, you will receive a $40 card/voucher as financial recognition of your valuable input.

If you are a healthcare professional working in CF, we definitely want to hear about your experiences too.
Interested in sharing your CF experience?
Register now to participate: https://uwa.qualtrics.com/jfe/form/SV_4NmnxStWR6eLKkK

30/09/2026

Big thanks to Libby Mettam and Hon. Michelle Boylan MLC for hearing our concerns and helping to amplify our voice. If you haven’t already, please sign the petition coordinated by Cystic Fibrosis WA. It only takes one minute.

https://www.parliament.wa.gov.au/Parliament/LCePetitions.nsf/petitions/26-0034

26/09/2026

Get behind this. The CFPhysio.com Inc team is an amazing network and to continue to improve CF care, they need the help of those living with CF.

CFPhysio.com Inc are supporting a national project which aligns closely to our vision and mission. Check out the information from the PEP-AUS team:

Take part in a national project aimed at enhancing communication and partnership in Cystic Fibrosis (CF) care across Australia.

A team of Australian CF healthcare professionals and people living with CF are working together to create the Partnership Enhancement Program Australia (PEP-Aus), a CF-specific communication training program tailored for the Australian CF community.

Your perspective as someone impacted by CF is essential to help us shape the Pep-Aus program so that it truly reflects the needs of the Australian CF community.

If you are a person with CF aged 13 or over, of a parent/guardian/caregiver for a person with CF, we want to hear about your experiences of communication with your CF healthcare team - what works well, what feels challenging, and what could make CF care feel more collaborative and supportive. In return, you will receive a $40 card/voucher as financial recognition of your valuable input.

If you are a healthcare professional working in CF, we definitely want to hear about your experiences too.
Interested in sharing your CF experience?
Register now to participate: https://uwa.qualtrics.com/jfe/form/SV_4NmnxStWR6eLKkK

26/09/2026

Our friends at Cystic Fibrosis WA are bringing the CF community together for a fab day on the Swan River and they need your support.
You can sign up as an individual sailor, gather a corporate crew, become a corporate sponsor, or join everyone afterwards for the bayside party at Royal Freshwater Bay Yacht Club on Wednesday, November 4.
No sailing experience is needed, just a willingness to get involved.

Find out more or register through CFWA.

Thank you for choosing to raise funds and awareness for Cystic Fibrosis WA. Your efforts will help us continue to provide our vital support services and contribute to critical research for people living with cystic fibrosis.

23/09/2026

September is Newborn Screening Awareness Month. And that is something worth celebrating in our community. That little heel-prick test in the first days of a baby’s life can change everything. Sure, it can result in sorrow when the diagnosis is made but it can also grant an opportunity for vital early intervention and care. Last year, 50 babies were born and diagnosed with Cystic Fibrosis across Australia and 37 of them were detected thanks to bloodspot screening.
In Australia, newborn bloodspot screening can identify cystic fibrosis and other serious conditions early, often before a baby becomes seriously unwell. For families affected by CF, an early diagnosis means early specialist care, treatment, monitoring and support.
About 300,000 Australian babies are screened each year, with about 1 in 1000 identified as having a condition that may otherwise have gone undetected.
It is a small test with a life-changing purpose.
We are grateful for newborn screening, for the clinicians and laboratory teams behind it, and for the ongoing work to make screening more consistent and expand it across Australia.

18/09/2026

Applications close next Friday.

Could your research help advance phage therapy?

There is still time to apply for the Conquer Cystic Fibrosis & McCusker Charitable Foundation WA Phage Therapy Grant 2026, with up to $200,000 in funding over two years available to support phage therapy research in Western Australia.

Administered by the Australian Cystic Fibrosis Research Trust through Cystic Fibrosis Australia, this funding opportunity supports research into phage therapy and potential treatments for antimicrobial resistant infections, including those experienced by people living with cystic fibrosis.

The grant is open to eligible postdoctoral researchers, scientists, clinicians, medical practitioners, nurses and allied health professionals working in phage therapy research.

The research and lead investigator must be based in Western Australia, and collaborative teams are encouraged to apply.

Funding: Up to $200,000 over two years
Applications close: 5pm AWST, Friday 25 September 2026
Apply via: [email protected]

Proudly sponsored by Conquer Cystic Fibrosis and the McCusker Charitable Foundation.

Know a researcher, clinician or team who may be eligible? Share this opportunity with your research and healthcare networks.

For more details: https://www.cysticfibrosis.org.au/current-grant-opportunities/

09/09/2026

Applications are now open for the $200,000 Conquer Cystic Fibrosis and McCusker Charitable Foundation Phage Therapy Grant.
The grant will support WA based research into phage therapy for antimicrobial-resistant infections, including those affecting people living with cystic fibrosis.
A huge thank you to the McCusker Charitable Foundation for its incredible generosity, the ongoing efforts of Bingo for Conquer Cystic Fibrosis and to everyone who attended our gala ball in May. Your support helps make this grant, and many others, possible. Phage therapy holds immense promise against one of the biggest global health challenges and we are so excited by the efforts underway here in WA. The grant is being delivered by the Australian Cystic Fibrosis Research Trust. More info here: https://www.cysticfibrosis.org.au/current-grant-opportunities/

Cystic Fibrosis Australia

05/09/2026

Did you know Conquer Cystic Fibrosis provided $100,000 to help strengthen the Australian Cystic Fibrosis Data Registry?
Our funding has supported the introduction of automated data transfer from hospital CF centres into the Registry to reduce manual entry and errors while improving the accuracy, completeness and timeliness of this vital info. The first pilot is now operating successfully, with work progressing at a second site. Together, these projects will improve about 800 patient records and provide a model that can be expanded nationally.
The latest report included 3788 Australians with CF and shows that, despite immense progress, significant challenges remain. Around one in six people in the Registry were not receiving a CFTR modulator, 106 were living with a transplant, and CF-related diabetes affected 25% of people aged –29 and 30% of those aged over 30.
The Registry helps researchers and clinicians identify priorities, measure the impact of new treatments and shape better care. This shows why continued investment in CF research and infrastructure is so important.
Pictured are CCF Chair Wendy Endebrock-Brown with Monash University’s Professor Susannah Ahern and Dr Ahmad Pourghaderi, celebrating the report’s recent release and the impact of our support. Thanks to the ACFRT for delivering the funding to ensure this Registry remains and grows stronger.

Cystic Fibrosis Australia Monash University

24/08/2026

We need as many people as possible to sign this petition calling for urgent action on the adult cystic fibrosis outpatient clinic at Sir Charles Gairdner Hospital!
Conquer Cystic Fibrosis strongly supports this petition enacted by Cystic Fibrosis WA. The current facilities are severely degraded, outdated and simply not fit for modern CF care. Built more than 50 years ago, the clinic cannot meet the infection control standards people with CF need and deserve.
These concerns have been raised for many years, yet there has been no meaningful progress and no clear answers on a timeline or commitment by the State Government. It is unacceptable that adults with CF have been expected to wait this long, with some now avoiding vital clinic appointments because they do not feel safe attending.
We thank CFWA for its strong and persistent advocacy, and the Hon. Michelle Boylan MLC for listening to our concerns and helping CFWA to facilitate this petition. Thanks also to Libby Mettam MLA for raising questions on our community’s behalf. We hope this will continue until we get a result.
The CF community has waited long enough. We need the WA Government to commit to a funded plan and clear timeframe for a safe, fit-for-purpose adult CF clinic.

✍️ Please sign the petition: https://www.parliament.wa.gov.au/Parliament/LCePetitions.nsf/petitions/26-0034

Roger Cook Meredith Hammat MLA John Carey

13/08/2026

We must keep funding research to fight the vast complications of this disease and ensure no one is left behind.

We Are Not Done Yet.

As we continue to see remarkable progress in cystic fibrosis (CF) research, treatment and care, I believe it is important that we also pause to reflect on what remains unfinished. In my first CEO blog, I want to share why, despite how far we have come, we are not done yet.

https://www.cftogether.org.au/cystic-fibrosis-au/posts/ceo-blog-13-08-2026