Endometriosis Western Australia

Directions Website Contact the organization

Endometriosis Western Australia A not-for-profit supporting Western Australians with endometriosis.

Our vision is to provide people affected by endometriosis, including their family & carers, with access to the best quality information, care, support and understanding.

💜 For the hard days.Some days, getting through the day is enough.Living with endometriosis can be unpredictable. Symptom...
16/09/2026

💜 For the hard days.

Some days, getting through the day is enough.

Living with endometriosis can be unpredictable. Symptoms can fluctuate, plans may need to change, and what felt manageable yesterday might feel completely different today.

On those harder days, a gentle reminder:

💜 Rest when you need to
💜 Change the plan when you need to
💜 Ask for support when you need it
💜 Be kind to yourself when things don’t go to plan

And for the partners, families, friends and colleagues supporting someone with endometriosis, you don’t always need to have the answers.

Sometimes, simply listening, believing and being there can mean so much.

Your needs are allowed to change.

From our community to yours, you’re not alone. 💜

💜 Around 1 in 7.Endometriosis is common, but its impact is anything but simple.Current Australian data estimates that ar...
14/09/2026

💜 Around 1 in 7.

Endometriosis is common, but its impact is anything but simple.

Current Australian data estimates that around 1 in 7 women will have been diagnosed with endometriosis by their late 40s.

For some, endometriosis can mean significant pain. For others, it may affect fertility, work, study, relationships, social activities and everyday life. And importantly, everyone’s experience of endometriosis is different.

Behind the statistics are real people navigating symptoms, seeking answers and advocating to have their health concerns heard.

At Endometriosis Western Australia, we continue to work towards greater awareness, better support and improved outcomes for people affected by endometriosis across WA.

💜 Awareness matters. Listening matters. Better care matters.

Source: Australian Institute of Health and Welfare (AIHW), current Australian endometriosis prevalence data.

💜 Things we wish more people understood about endometriosis.Endometriosis is different for everyone, and its impact isn’...
11/09/2026

💜 Things we wish more people understood about endometriosis.

Endometriosis is different for everyone, and its impact isn’t always something you can see.

Someone might be at work, catching up with friends or simply getting on with their day while also managing symptoms you know nothing about.

A little understanding can go a long way. 💜

You don’t need to know exactly what to say or have all the answers. Sometimes support looks like:

💜 Listening without trying to fix everything
💜 Believing someone when they tell you how they’re feeling
💜 Being flexible when plans need to change
💜 Asking, “What do you need from me today?”
💜 Taking the time to learn and understand

For those living with endometriosis, feeling heard, believed and supported matters.

Listen. Believe. Support. 💜

💜 You don’t have to explain it all.Living with endometriosis can look different from one day to the next.Some days you m...
09/09/2026

💜 You don’t have to explain it all.

Living with endometriosis can look different from one day to the next.

Some days you might feel like yourself. Other days, pain, fatigue or other symptoms may change what you can manage, and that’s okay.

You don’t need to justify having a difficult day. You don’t need to compare your experience with someone else’s. And you don’t need to push through just because yesterday looked different.

💜 Your experience is valid.
💜 Your needs can change.
💜 Asking for support is okay.
💜 You don’t have to do this alone.

At Endometriosis Western Australia, we’re here for the good days, the hard days and everything in between.

You are not alone. 💜

💜 Women’s Health Week 2026 💜This Women’s Health Week, we’re reminding women across WA of something that should be simple...
07/09/2026

💜 Women’s Health Week 2026 💜

This Women’s Health Week, we’re reminding women across WA of something that should be simple:

Your health deserves to be heard.

Persistent pelvic pain, painful periods and symptoms that impact your work, study, relationships or everyday life should never be dismissed as “just part of being a woman”.

At Endometriosis Western Australia, we know how powerful it can be to feel heard, believed and supported.

💜 Listen to your body
💜 Ask questions
💜 Seek support
💜 Keep advocating for your health

Women’s Health Week is an opportunity to start conversations, challenge what we’ve been taught to simply put up with, and continue pushing for better awareness, care and outcomes for women.

Every woman’s health matters. Every voice matters. 💜

💜 Your appointment is your time.When you’re managing endometriosis or pelvic pain, appointments can sometimes feel like ...
04/09/2026

💜 Your appointment is your time.

When you’re managing endometriosis or pelvic pain, appointments can sometimes feel like a lot. There can be months of symptoms, changes and questions to somehow fit into one conversation.

A little preparation can help you make the most of that time.

Before your next appointment, consider jotting down:

💜 Your main symptoms and when they occur
💜 Anything that has changed
💜 How your symptoms are affecting everyday life, work, study or relationships
💜 Treatments or medications you’ve tried and whether they helped
💜 Questions you want answered
💜 What matters most to you right now

And remember, you can take notes, ask for something to be explained again, or bring a support person if that helps you feel more comfortable.

Your lived experience is an important part of your healthcare conversation. You know your body, your symptoms and how they are affecting your life.

📌 Save this post for your next appointment, or share it with someone who might find it helpful.

General information only and not a substitute for individual medical advice.

💜 A significant step forward for endometriosis care in AustraliaOn 2 September 2026, the Australian Government announced...
03/09/2026

💜 A significant step forward for endometriosis care in Australia

On 2 September 2026, the Australian Government announced the launch of the new Endometriosis Management Plan, developed by Monash University.

The plan has been designed to support people living with endometriosis and pelvic pain and their healthcare providers to have clearer conversations about:

💜 Symptoms and their impact
💜 Treatment options
💜 Individual goals and priorities
💜 Planning for symptom flare-ups
💜 Referrals and pathways to care
💜 Ongoing review and management

A key focus of the plan is shared decision-making, supporting people to be actively involved in decisions about their care.

The plan was developed by Monash University, with work through the SPHERE Centre of Research Excellence, in partnership with the RACGP and with valuable contributions from clinicians, researchers, stakeholders and people with lived experience.

Endometriosis Western Australia welcomes and supports this initiative. 💜

We know a new national initiative like this will also bring lots of questions about what it means, how it will work and what it will look like in practice here in WA.

As more information becomes available, we’ll continue to share clear, evidence-based updates with our community and help unpack what the Endometriosis Management Plan means for you.

For now, we’re pleased to see another important step towards better conversations, better support and better pathways to care. 💜

Source: Australian Government Ministerial Media Release, 2 September 2026; Monash University.

28/07/2026

The 2026 National Pain Report is here 📑

Discover what Australians living with chronic pain told us about healthcare, work, mental health, sleep and the cost of living.

Read the report today at: painliveshere.org.au

✨ On the 10th of June, members of the Endometriosis WA Board had the privilege of meeting with His Excellency the Honour...
28/07/2026

✨ On the 10th of June, members of the Endometriosis WA Board had the privilege of meeting with His Excellency the Honourable Chris Dawson AC APM, Governor of Western Australia, and Mrs Darrilyn Dawson at Government House.

💛 We were deeply grateful for the compassion, interest and understanding shown by His Excellency and Mrs Dawson. Their willingness to listen to the challenges faced by people living with endometriosis, adenomyosis, PMOS and persistent pelvic pain across Western Australia created a meaningful opportunity for discussion about how greater awareness, education and support can improve outcomes for those affected.

🩵 We appreciated their thoughtful engagement and encouragement as we continue to advocate for earlier diagnosis, better care and greater understanding of these conditions.

Our sincere thanks also go to Cassie Rowe MLA for facilitating this meeting and for her ongoing commitment and support. We are grateful for her advocacy and for creating the opportunity to bring these important conversations to Government House.

Endometriosis WA was proud to represent the Western Australian community through Clementine Crowther, President, and Dannielle Phelan, Vice President. We were also pleased to be joined by Eugene Ashe, Official Secretary and CEO of the Governor's Establishment, and Diane Connor from the Office of Ms Cassie Rowe MLA.

💚 Every conversation that builds understanding of endometriosis, adenomyosis, PMOS and persistent pelvic pain helps bring us closer to a future where all people affected by these conditions receive earlier diagnosis, better support and the care they deserve.

💛 Together, we're creating change—one conversation at a time.

hashtag hashtag hashtag hashtag hashtag hashtag

Me after disappearing for a week because of a pain flare 🫠“Sorry I went MIA… I was simply ✨fighting for my life✨” 😅Phone...
09/04/2026

Me after disappearing for a week because of a pain flare 🫠

“Sorry I went MIA… I was simply ✨fighting for my life✨” 😅

Phone on Do Not Disturb
Texts left on read
Plans cancelled
Me… horizontal with a heat pack like it’s my full-time job 🔥

Is this familiar or just me? 👀

Endo flares really said “no thoughts, just survival” 💀

Let’s talk about it 👇
💛 What do your pain flares look like?
💛 Do you ghost the world or try to push through?
💛 What actually helps you get through it?

Some gentle go-to’s that can help during flares:

✨ Heat packs or warm baths (elite comfort)
✨ Slow stretches or very gentle movement
✨ Magnesium, peppermint tea, anti-inflammatory snacks
✨ Deep breathing when your body is in full panic mode
✨ Acupuncture, massage or other CAM supports
✨ Cancelling plans and not feeling guilty about it 🙃

Honestly, sometimes the biggest win is just getting through the day 💛

Drop your flare survival tips below 👇 let’s help each other out 🫶

Address

PO Box 711
Perth, WA
6105

Website

Alerts

Be the first to know and let us send you an email when Endometriosis Western Australia posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Endometriosis Western Australia:

Shortcuts

Share

Category