Huntington's Australia

24/08/2026

Huntington's disease can cause changes in a person's thinking, movement, and behaviour.

However, the symptoms someone experiences, and when they first experience them, are different for everyone. What's most important is that we treat each person living with HD as an individual.

Learn more here: https://huntingtonsaustralia.au/symptoms-of-huntingtons-disease/

24/08/2026

We promise you won't get lost at Walk 4 Hope!

At each event, we have amazing volunteers giving directions, and every course is pram and wheelchair accessible.

Brisbane, we'll see you this weekend👋

23/08/2026

Support groups happening this week:

26 August, Wednesday
💜 SA - Coffee & Co

27 August, Thursday
💜 WA - South West Visit

28 August, Friday
💜 QLD - Logan/Redlands Support Group

If you'd like to join any of these groups, contact us on 1800 244 735 or email [email protected].

Visit our website for details and to RSVP: https://huntingtonsaustralia.au/support-groups

20/08/2026

The NDIS Bill has recently passed the Senate, bringing changes to the NDIS, introduced progressively through to 2028.

The NDIS HD Pathway Planner remains in place for people with Huntington’s disease. However, if you have questions about your NDIS supports, the changes, or how they may affect you, you can reach out to Huntington’s Australia for further assistance and guidance.

[email protected] | 1800 244 735

Learn more:

The Parliament has passed new NDIS laws. These are the changes participants and providers can expect.

20/08/2026

Keep your eyes peeled for a fundraising superstar at next week's Walk 4 Hope in Brisbane.

Anna is walking 100km, in memory of her father Darryn whom she lost last year to Huntington's. Already meeting her initial fundraising goal of $2,000, she's now got a new $3,000 target to strive for.

Join us in wishing Anna the best of luck and thanking her for her amazing efforts so far.

Check out Anna's fundraising page here: herhttps://huntingtonsaustralia.grassrootz.com/walk-4-hope-brisbane-2026/anna-glass

18/08/2026

Aboriginal and Torres Strait Islander peoples living in remote areas require substantial systemic changes to ensure equitable access to neurological clinical and social care.

At the HA National Conference, we heard from Melanie Clark, Huntington’s disease Study Coordinator at Perron Institute, about the complexities of delivering Huntington's care on Country, and plans for future engagement with the community.

View her presentation here:

Aboriginal and Torres Strait Islander peoples living in remote area...

18/08/2026

Last week, the Huntington's Disease Foundation held the HD2026 Milton Wexler Biennial Symposium in Boston, Massachusetts. In attendance were almost 300 of the world-leading experts in HD and other CAG repeat diseases, sharing the latest insights and understandings.

Check out HD Buzz's recap of the three-day event, and what the latest science says about Huntington's.

17/08/2026

Many pathways, one community 🧠

That's the theme for this year's Brain Injury Awareness Week.

Around 1 in 45 Australians live with a brain injury, which can result from many different causes. From falls and vehicle accidents to conditions such as Huntington's disease and dementia, it can happen at any stage of life.

This year’s theme is about showcasing that no two brain injuries are the same, and each person with a brain injury has their own story and journey.

Learn more at Synapse - Australia's Brain Injury Organisation

16/08/2026

Support groups happening this week:

19 August, Wednesday
💜 WA - Day Centre

20 August, Thursday
💜 WA - Northern Carers' Group
💜 QLD - Gold Coast Support Group

21 August, Friday
💜 QLD - Toowoomba Support Group

If you'd like to join any of these groups, contact us on 1800 244 735 or email [email protected].

Visit our website for details and to RSVP: https://huntingtonsaustralia.au/support-groups

15/08/2026

It's almost here!

Register for Walk 4 Hope here: https://www.walk4hope.org.au/