Neuroblastoma Australia

12/06/2026

🔬We're excited to share that our 2026 Research Grants Round, focused on the promising field of immunotherapy, attracted 15 high quality Letters of Intent (LOIs) from researchers passionate about developing new approaches to treating neuroblastoma.

These are now being carefully reviewed by our expert Scientific Advisory Board (SAB) as part of our rigorous assessment process. Their role is to identify the most promising research projects with the potential to improve outcomes and quality of life for children affected by neuroblastoma.

A number of the 15 LOIs will be selected to move forward to full proposals for further assessment by world-wide experts with final decisions made in November.

To everyone who has sponsored, donated, fundraised, participated in any of our events, or supported our mission in any way - thank you.

Your support means we can help drive the next generation of research breakthroughs.

https://www.neuroblastoma.org.au/apply-for-a-grant

11/06/2026

Registrations for Melbourne Run2Cure 2026 are OPEN! 🤩🎉

🐦Early Bird tickets with a HUGE 25% discount available now for a limited time.

On Sunday, November 15, we’ll Run2Cure to support children with the childhood cancer, neuroblastoma. Join us at a fantastic NEW venue in the city’s beautiful Princes Park for a fun run that makes a difference.

Whether you're a seasoned athlete chasing a PB or a newbie runner taking on a fresh challenge, there's something for everyone. From the 21.1km and 10km competitive races to the relaxed 5km and 3km courses - and of course, Australia’s cutest race, the 1km Superheroes Walk!

📅 Sunday, November 15
📍 Princes Park, Melbourne

Sign up now: https://melbourne.run2cure.org.au/

Thank you helping us Run2Cure ❤

10/06/2026

When Jullian was treated for Stage 4 neuroblastoma as an infant, the treatment saved his life. But survivorship isn't always the end of the story.

As a young adult, Jullian lives with some of the lasting effects of the intensive treatments that cured his cancer, including vision and hearing impacts, chronic pain and ongoing health challenges.

As Jullian says:

"People think finishing cancer treatment means you're done with it. But for me, that was just the start of learning what it did to my body."

His experience highlights why research matters.

Children with neuroblastoma need not only more effective treatments, but kinder treatments that reduce long-term damage to growing bodies.

This EOFY, your donation can help fund research into innovative therapies and bring us closer to a future where children don't just survive cancer, they thrive beyond it.

Every breakthrough starts with research. Every research project starts with funding.

Please make a tax deductible donation and help us put kids first: https://nba-tax-2026-jullian.raiselysite.com

09/06/2026

Good to see another drug - opaganib - approved for Neuroblastoma by the FDA.

Data from models of high-risk NB (HRNB), presented at AACR 2026, showed positive effects of opaganib as a potential add-on to chemotherapy, showing an ability to directly destabilize a key oncogenic driver of neuroblastoma and other solid tumors, n-Myc.

N-Myc in neuroblastoma often makes it hard to cure so we hope to see this improve in the future 🤞🤞.

The U.S. Food and Drug Administration (FDA) has granted rare pediatric disease designation to opaganib1 for the treatment of neuroblastoma, a type of cancer...

09/06/2026

A huge thank you to everyone who joined us for our sold-out Golf2Cure event at Pagewood’s beautiful Bonnie Doon Golf Club. It was a fantastic day on the greens in support of children with neuroblastoma ⛳

Thanks to the generosity of our players, sponsors and supporters, we raised an incredible $37,000 💚🙏

These funds will support the research that’s desperately needed to find treatments that are kinder and more effective. You can read more our research programs here: https://www.neuroblastoma.org.au/.../Cat.../current-projects

Thanks again to everyone who helped us Golf2Cure.

🏌️‍♂️Want more Golf2Cure?

Our final event for 2026 will take place at Long Reef on the stunning Sydney coastline on Friday, October 30. Details here: https://www.neuroblastoma.org.au/Event/golf2cure-2026-long-reef-nsw

07/06/2026

It’s a very sad day to hear of the passing of Professor Richard Scolyer - a brave and brilliant individual and scientist - willing to push the boundaries to help others, staying positive and hopeful and inspiring us all.
Our thoughts are with his family and friends.

My fellow Australians,

I pen this letter as a final goodbye to all those I have had the immense privilege of loving, sharing life’s adventures with, working alongside and meeting during what can only be described as a life filled with happiness, optimism, opportunity and passion.

My intention is for this letter to be published upon my passing - as my final farewell.

I cannot thank my beautiful wife Katie and my adored children Emily, Matthew and Lucy enough for their love, their support, their strength, and their compassion. They are shining examples of the best of humanity and make me extremely proud.

To my research and clinical colleagues, I implore you to stay inquisitive and brave and keep striving to break new ground.

To all cancer patients, I encourage you to consider enrolling in research and clinical trials, if on offer.

And to government and the wider community, please keep funding science and medical research. This is the most impactful way that you too can make a difference.

Perhaps the greatest lesson to come from these last three years is that cancer does not define us. It may be the current road we are travelling, but it is not our entire journey.

A terminal cancer diagnosis does however provide clarity as to what truly matters. It shines a spotlight on the importance of relationships, on true friendship and on selflessness.

If my legacy was to continue beyond these words, I would be delighted and humbled to be remembered as a proud everyday Aussie who “gave it a crack”, and in doing so, inspired others to pursue their dreams and passions with humility, love and compassion.

With much love and gratitude,
Richard

06/06/2026

Excellent coverage by Channel 9 highlighting the need for federal funding for families to access therapies overseas which aren’t available here - some could be made available such as CAR T cell therapy, whereas some will always be hard to access so solutions need to be found .
We managed to bring DFMO to Australia thanks to the support of many families including those of Harry and Jack - one potential life saving therapy but we need to bring others 💕

https://www.nine.com.au/australia-news/a-current-affair/neuroblastoma-treatment-what-price-do-you-put-on-a-life-20260605-p604eo.html?fbclid=IwdGRjcASQtBpleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEenEnMYhelkYj-utGuTpNbzPIjz9uYpad1n7fy1NXrW1yPP-NaoqrkmXEm878_aem_K0_irhJw2zFBhh_q3M76Sg

Angus' neuroblastoma treatment cost a small fortune and he wants that to change for Australian children in the future.

05/06/2026

Big news for our neuroblastoma community. 🧡

This month, the Australian Government published its first-ever national Childhood Cancer Roadmap — and for the first time, an official government document names CAR-T cell therapy as a national priority. It calls for a "strengthened national approach" to making CAR-T available to Australian children, and directly acknowledges that kids are currently missing out based on the state they live in.

That's the good news and shows that all the postcards sent to the Minister of Health to raise awareness of the importance of CAR T therapy were certainly not in vain.

However, even though the Roadmap sets the direction, it doesn't fund the journey. The changes it calls for are on 2–5 year timelines. A child with relapsed neuroblastoma can't wait that long. We need the funding now - especially as CAR T cell therapy for solid tumours has been available in Europe and US for some time.

This is exactly why your help matters so much. We will continue to ask you to raise your voice with us for children with neuroblastoma and ask Minister Mark Butler MP to support funding for this potentially life-saving therapy.

We will also continue to raise funds to develop promising therapies as we know new treatments are urgently needed so thank you to everyone for supporting us.

You can read the Childhood Cancer Roadmap below

https://www.canceraustralia.gov.au/key-initiatives/childhood-adolescent-and-young-adult-cancer-roadmap

The Childhood, Adolescent and Young Adult Roadmap (The Roadmap) is a high-level national guide to help coordinate policy and investment to improve outcomes and experiences for children, adolescents and young adults (up to 24 years old) with cancer.

04/06/2026

🏌️‍♂️Our team is on the greens this morning at the beautiful Bonnie Doon Golf Club, welcoming players to our sold-out Golf2Cure Sydney event ⛳

Golfers, sponsors and supporters are coming together to enjoy a fantastic day of golf while helping fund vital research for children diagnosed with neuroblastoma.

We’d like to thank everyone teeing-off for with us today for this important cause 💚

03/06/2026

🎁Our FREE activity packs are thoughtfully put together for children with neuroblastoma and filled with quality, age-appropriate toys, games, crafts and puzzles from much-loved brands including Djeco and Tiger Tribe 🧩🎨

Whether a child is spending long days in hospital or time at home recovering or isolating, these packs are designed to bring comfort, distraction, and fun.

If you know a child with neuroblastoma who would enjoy receiving an activity pack, you can request one here: https://bit.ly/3RdJRpA

📬We’ll then pack and post the gift on your behalf.

Families are welcome to apply for a new pack if it has been 12 months or more since receiving their last one ❤