Children's Tumour Foundation Australia

Children's Tumour Foundation Australia Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Children's Tumour Foundation Australia, Nonprofit Organization, Level 1, 132-134 Davidson Avenue North Strathfield, North Strathfield.

The Children’s Tumour Foundation is the only Australian patient advocacy and support service for children, adults and families impacted by neurofibromatosis (NF), including schwannomatosis. The CTF exists to provide a pathway from fear to hope by investing in promising research, advocating for better resources and empowering individuals and their families with knowledge, connections and support needed at every stage of their journey.

Thanks to a close relationship with our Community Advisory Panel member, Brian Shaw, Blayney Rotary has donated $5,000. ...
18/06/2026

Thanks to a close relationship with our Community Advisory Panel member, Brian Shaw, Blayney Rotary has donated $5,000. ✨

The funds were raised in memory of Geoff Bottom, a Rotary member and former Board member of our organisation.

Geoff was a driving force in the early days of the organisation (then known as the NF Association of Australia), deeply committed to connecting the community with one another. A generous man at heart, he would even bring trailer loads of food, free of charge, to NF camps. Geoff paved the way for the national support service and advocacy body we are today.

We are so grateful for this donation, as we work to close health care gaps for neurofibromatosis, while offering individuals and families the personal support they need.

Blayney Rotary and Brian are also fundraising this weekend with a Bunnings BBQ! 💙💚

A condition that affects 1 in 2,000 births is hardly rare. Finding the right support for people living with complex cond...
15/06/2026

A condition that affects 1 in 2,000 births is hardly rare. Finding the right support for people living with complex conditions? That's what's rare.

People often notice the visible signs of neurofibromatosis, but many of the biggest challenges are largely invisible. An...
10/06/2026

People often notice the visible signs of neurofibromatosis, but many of the biggest challenges are largely invisible. And every experience is unique.

We are incredibly grateful to all of the members of our Community Advisory Panel, who contribute their ideas, experience...
04/06/2026

We are incredibly grateful to all of the members of our Community Advisory Panel, who contribute their ideas, experiences and compassion, helping to shape our strategy and services. ✨

Neurofibromatosis awareness month may have ended, but our advocacy work, to improve NF care, continues. ✨🐧To everyone wh...
01/06/2026

Neurofibromatosis awareness month may have ended, but our advocacy work, to improve NF care, continues. ✨🐧

To everyone who shared a message, told their story, wore blue and green, fundraised, donated or took the time to learn more - thank you.

We are especially grateful for the continued support of our amazing partners - Kidstuff, Morgans Foundation, QMS Media, our volunteer , and to all 200+locations that lit up for NF in May.

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Bella’s journey with NF1 has been anything but easy.From developmental delays and school challenges, to losing her dad a...
27/05/2026

Bella’s journey with NF1 has been anything but easy.

From developmental delays and school challenges, to losing her dad at just 6 years old, Bella has already faced more than most children ever should. Now, at just 8 years old, she is navigating life with a hypothalamic glioma, ongoing fatigue, vision changes, hospital visits and endless appointments, all while her family continues fighting for answers and specialist care.

For many families living with neurofibromatosis, the hardest part isn’t just the diagnosis itself. It’s the uncertainty, the lack of coordinated care, the travel, the advocacy, and the feeling of having to constantly push to be heard.

Despite everything, Bella continues to shine through her love of art, ladybugs and cheering on St Kilda, her dad’s favourite AFL team.

Thank you to Bella’s family for sharing their story so openly and honestly.

Last week, members of the Children’s Tumour Foundation team attended two important events in South Australia during NF A...
27/05/2026

Last week, members of the Children’s Tumour Foundation team attended two important events in South Australia during NF Awareness Month.

The first was a Neurofibromatosis Awareness Morning Tea hosted by Her Excellency the Governor of South Australia, Frances Adamson AC, bringing together NF families, advocates and community members in a warm and welcoming space of acknowledgement and connection.

The second was a Complex Care Roundtable focused on coordinated healthcare, using Neurofibromatosis as a case study to explore the challenges families face navigating complex systems and the need for more connected models of care.

A special thank you to our Community Advisory Panel Chair, Kirsty Whitehead, for her leadership, advocacy and work helping bring these conversations together.

Awareness is important, but so is action, collaboration and ensuring lived experience remains part of the conversation. 💙💚

Today is NF2-Related Schwannomatosis (SWN) Day. NF2-SWN is the second most common type of NF, and often presents with ba...
21/05/2026

Today is NF2-Related Schwannomatosis (SWN) Day.

NF2-SWN is the second most common type of NF, and often presents with balance issues, hearing loss and chronic pain.

Many also face misdiagnosis, long diagnostic journeys and difficulties navigating care.

Rare conditions, like NF2-SWN need greater awarness, understanding and support.

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Some favourite snaps of Shine a Light 2026! Photo cred: + Brian Shaw💙💚
21/05/2026

Some favourite snaps of Shine a Light 2026!

Photo cred: + Brian Shaw

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Garrunggan is a cheerful, active two-year old who lives with NF1. His family are currently fundraising for NF awareness ...
20/05/2026

Garrunggan is a cheerful, active two-year old who lives with NF1. His family are currently fundraising for NF awareness month, crocheting a blue and green heart for every dollar raised! The hearts will then be sewn together into a blanket, and donated to Westmead Children's Hospital.

You can support by making a donation, which is currently being matched! Visit https://www.nfawarenessmonth.com.au/fundraise/crochet-green-and-blue-hearts-for-nf1

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Address

Level 1, 132-134 Davidson Avenue North Strathfield
North Strathfield, NSW
2137

Telephone

+61297136111

Website

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