Children's Tumour Foundation Australia

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Children's Tumour Foundation Australia Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Children's Tumour Foundation Australia, Nonprofit Organization, Level 1, 132-134 Davidson Avenue North Strathfield, North Strathfield.

The Children’s Tumour Foundation is the only Australian patient advocacy and support service for children, adults and families impacted by neurofibromatosis (NF), including schwannomatosis. The CTF exists to provide a pathway from fear to hope by investing in promising research, advocating for better resources and empowering individuals and their families with knowledge, connections and support needed at every stage of their journey.

Did you know that children with NF1 are more likely to have ADHD?Restlessness and difficulty concentrating can be common...
29/10/2026

Did you know that children with NF1 are more likely to have ADHD?

Restlessness and difficulty concentrating can be common in all children, but when these challenges persist or begin to affect learning and school performance, it’s important to look a little deeper.

Recognising ADHD early can help children access the right support and strategies to make learning easier, build confidence and thrive at school and beyond.

Every child is different, and understanding their individual needs is an important step towards helping them reach their full potential.

For more information, get in touch with our support team on 02 9713 6111.

Earlier this month, we hosted a family camp in the Grampians in Victoria, with many families who had never attended a ca...
29/10/2026

Earlier this month, we hosted a family camp in the Grampians in Victoria, with many families who had never attended a camp before.

Friendships blossomed among kids whilst parents exchanged advice and affirmations. It was a special weekend we hope will become a cherished memory for everyone who attended.

As one family shared with us: "Camp was such a strong way for families to connect and support each other and grow a community that share knowledge and support with each other. This is the first time our child had ever met anyone else with NF. It meant so much to her and made her feel less alone."

On the Sunday morning, the very talented came along to take some lovely family snaps. 💙💚

On Monday, our Community Advisory Panel met, with five new members joining the Panel, who alongside existing members, wi...
28/10/2026

On Monday, our Community Advisory Panel met, with five new members joining the Panel, who alongside existing members, will help to shape support services, advocacy strategy, research engagement and more.

Thank you to everyone who expressed their interest. We are truly grateful to our NF Community for sharing their voices and experiences.

In Australia, 1 in 7 women will be diagnosed with breast cancer by age 85. For women with NF1, the risk is higher.Breast...
23/10/2026

In Australia, 1 in 7 women will be diagnosed with breast cancer by age 85. For women with NF1, the risk is higher.

Breast cancers linked to NF1 tend to appear earlier. The relative risk peaks between ages 30 and 39. Women with NF1 under 50 have up to five times the risk of the general population.

Survival from breast cancer has improved across Australia, but women with NF1 need earlier screening, better care and more research.

For more information on screening guidelines, get in touch with our support team on 02 9713 6111.

Families in South Australia! Join us for a community day next weekend.Come along to Adelaide Zoo for a Pebbles Picnic. Y...
22/10/2026

Families in South Australia! Join us for a community day next weekend.

Come along to Adelaide Zoo for a Pebbles Picnic. You'll be joined by two members of the Children's Tumour Foundation team: Kirsty, Advocacy and Partnerships Manager, and Michelle, Fundraising and Marketing Manager.

Make sure to express your interest here: https://www.ctf.org.au/pebbles-picnic

We can't wait to see you there!

In June, The Children's Tumor Foundation USA (CTF USA) hosted its 2026 NF Conference, the largest NF research and clinic...
21/10/2026

In June, The Children's Tumor Foundation USA (CTF USA) hosted its 2026 NF Conference, the largest NF research and clinical care meeting in the world.

Following the event, our wonderful research volunteer, Anke has interviewed Australian Clinicians and Clinical Researchers to gain their perspectives on some of the research presented.

You can read the full research summaries at ctf.org.au/news

Earlier this month, our CEO, Andy Moore, and Advocacy and Partnerships Manager, Kirsty Whitehead had a valuable conversa...
20/10/2026

Earlier this month, our CEO, Andy Moore, and Advocacy and Partnerships Manager, Kirsty Whitehead had a valuable conversation with The Hon Dr. Anne Webster, Shadow Minister for Regional Health.

Andy and Kirsty spoke on the experience of people and families living with complex conditions such as neurofibromatosis (NF), and how organisations like the Children’s Tumour Foundation can help turn good policy into better experiences and outcomes for the community.

A key part of our approach is simple: your postcode shouldn’t determine the care and support you can access. We want to see a system that better connects people to the right expertise wherever they live.

Earlier this month, a trivia night was held in Canberra, organised by several community members including Tara, Brian, J...
19/10/2026

Earlier this month, a trivia night was held in Canberra, organised by several community members including Tara, Brian, Janu, Carey and Kirra.

With a great turnout and a fun evening enjoyed by all, it was a wonderful community fundraiser for CTF.

We’re so grateful to everyone who helped make the night a success, and to all those who came along to show their support.

Together, the event raised over $4,500! 💙💚

In June, The Children's Tumor Foundation USA (CTF USA) hosted its 2026 NF Conference, the largest NF research and clinic...
16/10/2026

In June, The Children's Tumor Foundation USA (CTF USA) hosted its 2026 NF Conference, the largest NF research and clinical care meeting in the world.

Following the event, our wonderful research volunteer, Anke has interviewed Australian Clinicians and Clinical Researchers to gain their perspectives on some of the research presented.

You can read the full interview with Dr O'Donoghue at ctf.org.au/news

The majority of informal carergivers are women, and NF is no exception. As women are more likely to take a bigger role i...
15/10/2026

The majority of informal carergivers are women, and NF is no exception.

As women are more likely to take a bigger role in unpaid caregiving, they are also more likely to have their work status and financial situation impacted.

The gaps women fill in access to care and support, comes at a cost.

A loss of income and autonomy coupled with medical expenses and social isolation creates pressure on families.

All the while, women keep family life functioning, stay present in the toughest of situations and provide emotional support.

On National Carers week: We see you. We value you. We thank you.

Address

Level 1, 132-134 Davidson Avenue North Strathfield
North Strathfield, NSW
2137

Telephone

+61297136111

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