Craniofacial Australia

Craniofacial Australia We support the craniofacial community through patient care, education and research.

Founded by world-renowned surgeon Professor David David AC, Craniofacial Australia offers care and long-term support for patients, educates tomorrow’s best surgeons and invests in research that advances prevention, management and cures.

💙 Happy Father’s Day 💙Today, we celebrate the incredible dads and father figures in our cranio community, those standing...
05/09/2026

💙 Happy Father’s Day 💙

Today, we celebrate the incredible dads and father figures in our cranio community, those standing beside their Cranio-Warriors, and the dads who are Cranio-Warriors themselves.

To the dads who hold hands through hospital stays, sit beside bedsides, ask the questions, offer reassurance and somehow find the strength to keep going when things feel uncertain, today is for you.

To our incredible dads who are Cranio-Warriors themselves, your own journeys, experiences and resilience bring a unique strength and understanding to fatherhood. Today, we celebrate you and all that you bring to your families, and we’re proud to have you as part of ours.

Thank you for everything you do for your children and families, and for the strength and support you bring to our cranio community.

Wishing all our cranio dads and father figures a very Happy Father’s Day, filled with love, appreciation and plenty of special moments with the people who mean the most. 💙

With heartfelt thanks,
The Craniofacial Australia Team

💙 Walk for Cranio AwarenessThis September, for Craniofacial Acceptance Month, one very special family is bringing their ...
03/09/2026

💙 Walk for Cranio Awareness

This September, for Craniofacial Acceptance Month, one very special family is bringing their community together to walk for cranio awareness.

Lisa’s son Cooper was born with metopic craniosynostosis and underwent major cranial surgery at just six months old. Today, he’s a happy, strong almost 10-year-old.

Lisa shares: "His scars are simply part of his story, and he wears them proudly."

Inspired by Cooper’s journey, Lisa is inviting her school, footy club, families, friends and the wider community to get walking throughout September and help raise funds and awareness for Craniofacial Australia.

Every donation will help us continue supporting families facing craniofacial conditions.

Walk for Cooper. Walk for cranio awareness. Walk for every child, family or individual on their craniofacial journey.

👣 Support 'Walk For Cranio Awareness': https://www.mycause.com.au/page/403686/walk-for-cranio-awareness

A huge thank you to Lisa, Cooper and everyone getting behind this beautiful community fundraiser.

A very special visit from Bethany and Cranio warrior Hazel this week 💙 before Hazel's check up at the hospital. Beth and...
03/09/2026

A very special visit from Bethany and Cranio warrior Hazel this week 💙 before Hazel's check up at the hospital.

Beth and Hazel popped in to see us at Craniofacial Australia and collect their Team Cranio tops ahead of City-Bay.

And it really is a whole-family effort! Hazel, Mum Bethany, Dad and her six-year-old brother will all be taking on the walk / run together as part of . 💪

What makes their support even more special is that, while navigating their own craniofacial journey, the family has been fundraising for Craniofacial Australia to help other families. We are deeply grateful for families like Hazel’s who choose to give back and support the community around them. 💙

Looking back at Hazel's journey, seeing her progress and animatedly telling us about her upcoming 3rd birthday and love for "Anna" from Frozen, made our day! Thank you for coming to see us, Bethany and Hazel. You brightened our week!

Pictured (L to R): Christina (Marketing and Fundraising Manager), Hazel (Cranio-Warrior) and Beth (Cranio-Mum)

💙 Shop beautiful baby keepsakes. Support Craniofacial Australia.We’re so grateful to Cranio Mum Teegan Earl in Western A...
01/09/2026

💙 Shop beautiful baby keepsakes. Support Craniofacial Australia.

We’re so grateful to Cranio Mum Teegan Earl in Western Australia, who nominated Craniofacial Australia to be Zayelle Charity of the Month for July! 🥰

Throughout July, Zayelle will donate $1 from every purchase to Craniofacial Australia, helping us continue to support families impacted by craniofacial conditions.

Zayelle creates beautiful personalised baby keepsakes and gifts, so if you’ve got a little one to buy for (or a special gift coming up!), this is a lovely way to shop while giving back. 💙

Thank you to Teegan for thinking of us and putting our name forward, and to Zayelle for getting behind our cranio community.

We’d love our community to get on board and show them some support!

🛍️ Shop Zayelle: www.zayelle.com.au

Every purchase throughout July means another $1 for Craniofacial Australia. 💙

💙 Running for HarveyAt just 13 months old, Harvey underwent cranial vault remodelling surgery after being diagnosed with...
30/08/2026

💙 Running for Harvey

At just 13 months old, Harvey underwent cranial vault remodelling surgery after being diagnosed with sagittal craniosynostosis.

Inspired by Harvey’s strength and joyful spirit, his dad Elliot took on the Run Melbourne 5.5km in support of Craniofacial Australia. Despite insisting he’s “not a runner”, Elliot crossed the finish line in an impressive 27 minutes! 🏃‍♂️👏

For the family, it was about more than the run, it was a chance to raise awareness and stand alongside other families affected by craniofacial conditions.

“To everyone at Craniofacial Australia, thank you for the unwavering support you’ve provided to our family and so many others. Your dedication, compassion and commitment make an immeasurable difference to the lives of children like Harvey and their families.” - Mum, Georgia.

Read more cranio warrior stories today 👉 https://craniofacial.com.au/stories/

Thank you Elliot, Georgia and Harvey for being part of our cranio community. 💙

When families share their experiences, things change for the better. 🫶 New research funded by Craniofacial Australia has...
27/08/2026

When families share their experiences, things change for the better. 🫶 New research funded by Craniofacial Australia has turned the lived experiences of Australian-based Craniosynostosis families into recommendations for better family-centred care.

Adelaide University researchers Professor Rachel Roberts, Dr Amanda Osborn and Taylah Silvestri spoke with 22 parents of children with Craniosynostosis, asking:

💬 What advice would you give another parent going through this journey?

Parents spoke about the importance of being informed, preparing for surgery, finding support, advocating for their child and looking after themselves along the way.

Their experiences were transformative. They highlighted opportunities to improve care:
✅better access to practical information
✅peer support
✅mental health pathways
✅resources shaped by lived experience.

This is why your voice matters. When you take part in research, answer a survey or share your experience with our community, it helps to shape better information, support and care for the families who come next.

To the 22 parents who contributed to this research, thank you. 💙

Congratulations to the research team Dr Osborn, Prof Roberts and Ms Silvestri, for recognising the value of lived experience, listening to families and turning their insights into research that can help drive meaningful change in craniofacial care.

The research article is a must-read, especially for newly diagnosed families, and is open to all. Have a read here:

📖 Lived experience as guidance: A qualitative study of parental advice for craniosynostosis
https://journals.sagepub.com/doi/10.1177/13674935261476741

A huge congratulations to our incredible NSW community who took on City2Surf, raising an amazing $3,784.20 for Craniofac...
27/08/2026

A huge congratulations to our incredible NSW community who took on City2Surf, raising an amazing $3,784.20 for Craniofacial Australia!

We celebrate the crew who ran and walked, doing Team Cranio proud:

💙 Caz
💙 Arya
💙 Alexandra
💙 Clare
💙 Mia
💙 Tate
💙 The Cranio Girls
💙 Abby
💙 And our MY CRANIO WARRIORS team!

Thank you for getting out there and rallying your friends and family for Team Cranio. You absolutely smashed it! 💙

Adelaide… you’re up next! 👀

City-Bay is fast approaching on Sunday 20 September, and there’s still time to join Team Cranio for the 3km, 6km or 12km. Over 30 people have already registered and theres plenty of room for more!

Fundraising is completely optional; we’d simply love to have you there with us 💙

🔗 Register to race: https://raceroster.com/registration/111162/entry?grassrootz=craniofacial
🔗 Register to fundraise:
https://citybay26.grassrootz.com/craniofacial/join

🏉 Adelaide Fans - Footy for Cranio is here!We’ve got our hands on some pretty special Adelaide Crows gear and it could b...
27/08/2026

🏉 Adelaide Fans - Footy for Cranio is here!

We’ve got our hands on some pretty special Adelaide Crows gear and it could be yours.

Enter Footy for Cranio for your chance to win:
🏉 A 2025 Adelaide Crows guernsey signed by the team
🏉 A signed Adelaide Crows football
🏉 Certificates of Authenticity

And while Tex might be hanging up the boots, his signature could be coming home with you. 😉

Every entry helps Craniofacial Australia support children, adults and families impacted by cleft and craniofacial conditions across Australia.

So, if you’re a Crows fan or you know someone who is, this one's worth a shot!

Enter Footy for Cranio here 👇
craniofacial.com.au/footy-for-cranio/

This is a prize competition and entry payments are not tax deductible. Open to South Australian residents aged 18+ only. Craniofacial Australia and Footy for Cranio are not affiliated with, endorsed or sponsored by the Adelaide Football Club.

When James was just two weeks old, his parents noticed some differences in the shape of his forehead and around his eyes...
24/08/2026

When James was just two weeks old, his parents noticed some differences in the shape of his forehead and around his eyes.

They raised their concerns more than once and were reassured that his head shape would improve with time. But as the weeks passed, nothing changed, and they continued to trust their instincts and search for answers.

Just before James turned four months old, a CT scan confirmed that he had unicoronal craniosynostosis.

"Throughout this entire journey, James has shown us what it truly means to be brave. Bravery isn’t always loud. Sometimes it looks like a tiny baby facing two major surgeries before his first birthday. Sometimes it looks like learning to smile again after pain. Sometimes it looks like laughing while wearing a metal distractor in your head, cuddling your parents after another long drive to an appointment, or continuing to light up every room despite everything you’ve endured."

James’ family is sharing their experience to help raise awareness and remind other parents that they know their child best.

🩵 Read James’ full story: https://craniofacial.com.au/james-story/

Sometimes, when you’re at the beginning of a craniofacial journey, it can be hard to imagine what life might look like y...
24/08/2026

Sometimes, when you’re at the beginning of a craniofacial journey, it can be hard to imagine what life might look like years down the track. 💙

That’s one of the reasons we wanted to share Cruz’s story Cruz's Cranio Journey

Cruz and his family have been part of the Craniofacial Australia community for more than 10 years. There have been appointments, treatment and challenges along the way but there has also been a whole lot of growing up and life in between.

Today, we’re looking back at Cruz’s cranio journey and how far he has come.

For families who might be at the beginning of their own journey, we hope seeing Cruz now offers something valuable: a glimpse beyond the appointments and surgeries, and a reminder that a craniofacial diagnosis is only one part of a child’s story.

Thank you to Cruz and his family for sharing their journey with our community. 💙

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204 Melbourne Street
North Adelaide, SA

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Wednesday 9am - 5pm
Thursday 9am - 7pm
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