HFI Support Australia

10/04/2026

Our very first HFI Support Australia get together for our QLD & Northern NSW crew “Isn’t it wonderful to have company”

02/04/2026

Attention all QLD HFI’ers, family, carers and friends. Please join us for our first QLD Meet Up! Let’s mingle, share stories and connect 🙏🏼 Send us a DM and we will add you to the table

28/02/2026

Living with a Rare Disease is unbearably lonely. Connecting with others is life changing. At the age of 73, Betty Walters read an article in about Alan. A man in the UK who had been diagnosed with Hereditary Fructose Intolerance. At the age of 73 Betty was no longer alone. She was no longer a ‘fussy eater’ or ‘being dramatic’. Betty was validated. In 2026 it shouldn’t take decades to obtain a diagnosis. DNA testing should be easily accessible and affordable for all so we can prevent illness and save lives. We live with a Rare Disease and we are creating AWARENESS

13/01/2026

We’re incredibly grateful to share this ABC News interview raising awareness for Hereditary Fructose Intolerance (HFI). 💛

HFI is a rare condition that is often misunderstood, misdiagnosed, and overlooked. Everyday life requires constant awareness of food safety, strict dietary management, and thoughtful planning to ensure inclusion — especially during celebrations and special occasions.

This interview shares what living with HFI really looks like and why awareness and understanding are so important for families navigating this journey.

We are also proud to announce that this interview marks the launch of HFI Support Australia — the first Australian not-for-profit charity dedicated to supporting individuals and families living with HFI.

👉 Watch the full interview on YouTube: youtube.com/
👉 Support HFI Support Australia via GoFundMe:
https://gofund.me/2d4bdb7b9

👉 Learn more: https://hfisupport.org.au/

Thank you for supporting awareness, inclusion, and community for families living with HFI.
We’re in this together. 💛

01/12/2025

I’m so proud of Jackson 💛

He bravely sat down to share his experience living with Hereditary Fructose Intolerance (HFI) — in his own words. Hearing HFI from a child’s perspective is honest, eye-opening, and so important for awareness.

As parents, we do everything we can to keep our little ones safe. But seeing Jackson speak confidently about understanding his diet, knowing what’s safe, and navigating everyday life reminds me just how resilient our HFI kids truly are.

We hope his story helps other families feel supported and a little less alone on their journey.

👉 Watch Jackson’s full video on YouTube: youtube.com/
👉 More resources & recipes: www.hfikitchen.com.au

Thank you for being part of this community. We’re in this together. 💛✨

Meet Jackson 💛In this video, my son shares his own experience living with Hereditary Fructose Intolerance (HFI) — from understanding his diagnosis, to learn...

26/11/2025

Our HFI Support Australia Directors with the incredible Professor Timothy Cox. What an inspirational meeting 🙏🏼

11/10/2025

Please like, follow and share 🙏🏼

08/10/2025

Our HFI Support Australia article is now LIVE on the ABC 🙏🏼

A Queensland woman is on a mission to raise awareness about hereditary fructose intolerance, after having to wait until age 45 to understand why so many foods make her sick.