Lyme Disease Association of Australia

Directions Website Contact the organization

Lyme Disease Association of Australia The Lyme Disease Association of Australia is a small yet powerful registered charity and Australia’s peak patient body. This page is run by volunteers.

We are committed to achieving universal recognition and equitable treatment for Australian Lyme and associated disease patients. The LDAA is an association comprised of volunteers committed to making changes to how Lyme disease patients are treated – both medically and personally – to improve their health outcomes and to move the treatment of Lyme disease into the 21st century. HOUSE RULES:

The Lyme Disease Association of Australia (LDAA) reserves the right to delete, remove content and block users on our page if interactions are:

• Threatening, abusive, defamatory, obscene, indecent, malicious or disrespectful to patients, their families and or LDAA volunteers. Including comments that attack, condescend or are derogatory towards patients or volunteers and or their families.

• Unlawful, fraudulent, deceptive or misleading.

• Sends users to external websites that may include information that cannot be verified

• Offensive, derogatory or racist commentary including nudity

• Unauthorised commercial communications such as Spam

We DO welcome

• Personality - don’t be shy

• Passionate discussions and healthy debates

• Views and opinions if shared respectfully

• Issues that affect your community

We do NOT welcome

1 - Trolls: Bullying, personal attacks and nasty comments. Comments that are disrespectful to our community members or our volunteers WILL NOT be tolerated. Comments that are defamatory, condescending, derogatory or insulting will not be tolerated towards patients, their families or LDAA volunteers. Be respectful of other community member’s and volunteers feelings and opinions.

2 - Spam: Our page is not intended for the promotion of third-party companies. Do not post content that would constitute advertising, junk mail, spam, chain letters or any other form of unauthorised solicitation. If in doubt do not post on our page, simply send a private Facebook email to the editor.

3 - While we do our very best to moderate the community, the LDAA does not take responsibility for postings or discussions that have not been posted by our team. However, we do reserve the right to remove offensive or harmful posts and ban individuals from accessing the page.

4 - Finally, comments must comply with Facebook’s Statement of Rights and Responsibilities (SRR) and other policies. User content published on this page may be used by LDAA marketing materials and other social and/or digital platforms. A copy of the SRR can be found here - https://www.facebook.com/terms

If a comment on the LDAA page offends you - please report it to us via messaging the LDAA page and an admin will investigate your concerns. The LDAA social media volunteers have the right to remove anyone from this page with out notice if they breach any of the house rules. DISCLAIMER:

The above material, and all material offered in posts is for informational purposes only. The material (a) is not considered or should be used as a substitute for medical advice, diagnosis or treatment, nor (b) necessarily represents endorsement by or an official position of the LDAA or any other of its directors, officers, advisers or volunteers. Advice on testing, treating, or caring for an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history. LDAA makes no warranty of any kind with respect to this website, including as to the accuracy, completeness, currency or reliability of the information contained herein, and all such warranties are expressly disclaimed. Thanks for your cooperation and taking the time to read this. We want this page to be a safe and educational place for all. Socials:
Instagram:
Twitter:
LinkedIn: -disease-australia

2022 © Copyright LDAA Lyme Disease Association of Australia. All rights reserved.

No one knows better than Australian tick-borne disease patients that too many doctors have been investigated for giving ...
28/10/2026

No one knows better than Australian tick-borne disease patients that too many doctors have been investigated for giving patients the individualised care essential for recovery after a tick bite made them sick.

Patients need clinicians who can listen, explain all options, and tailor treatment to the person in front of them - without fear that honest clinical judgement will trigger a lengthy AHPRA investigation.

Please sign and share AMPS - Australian Medical Professionals' Society’s petition:

🔗 https://amps.redunion.com.au/ahpra-inquiry-petition

🩺 The Australian Chronicle Infectious and Inflammatory Disease Society is running an MCAS Masterclass with Dr Lawrence A...
24/10/2026

🩺 The Australian Chronicle Infectious and Inflammatory Disease Society is running an MCAS Masterclass with Dr Lawrence Afrin on the 28th November at the Park Royal in Sydney:

Join ACIIDS for the 2026 MCAS Masterclass, a comprehensive educational event exploring Mast Cell Activation Syndrome (MCAS), from current concepts and diagnosis to treatment and management. Featuring internationally recognised expert, the mast cell master, Dr Lawrence Afrin alongside Australian clinicians and specialists, Dr Eva Nagy, Dr Caetlin Jopson and Lisa Gumieniuk, the program will explore practical approaches to MCAS in Australia, the relationship between MCAS and Breast Implant Illness, and the role of nervous system regulation in complex chronic illness. This Masterclass promises to be a comprehensive educational event for both professionals and patients.

And there’s a launch sale on tickets until midnight tonight!

Launch Sale - Extended Until Midnight Saturday ACIIDS MCAS Masterclass

Details & Tickets 👉 https://aciids.org.au/aciids-2026-masterclass-main/

Free online summit for the tick-borne illness communityHosted by The Tick Chicks, this free summit brings together exper...
10/10/2026

Free online summit for the tick-borne illness community

Hosted by The Tick Chicks, this free summit brings together experts, practical guidance, and a supportive community for anyone living with Lyme disease, Alpha-gal Syndrome, or another tick-borne condition, and for the people who care for them.

Join leading experts for real answers, useful strategies, and connection with others who truly understand. No travel, no cost, just knowledge you can actually use, all in one place. 💚

🎟️ To register for this summit click here: https://tick-borne-illness-global-summit.thetickchicks.com/

Australian Patients’ Experiences on the International StageIn early September, our president, Sharon Whiteman, presented...
05/10/2026

Australian Patients’ Experiences on the International Stage

In early September, our president, Sharon Whiteman, presented the early findings from the Lyme Disease Association of Australia’s National Tick-Borne Disease Survey to doctors, researchers, primary care providers and patient advocates from more than 18 countries.

LDAA’s presentation, “Patient-Reported Evidence of Diagnostic Pathway Disruption in Australian Tick-Borne Disease Patients,” was very well received by all at the 2nd Annual Conference on Chronic Infection Pathologies.

🎥 Watch the full presentation to discover what Australian patients are reporting about their experiences seeking diagnosis for tick-borne diseases:

👉🏼 https://youtu.be/-nTi_cZCMtg?si=Wv8klMhv_2Fl9YXQ

📣 You can still add your voice!
It’s not too late to share your experience and help build the evidence needed to improve awareness, recognition and diagnosis of tick-borne diseases in Australia.

Learn more about the survey and how you can contribute here:
👉🏼 https://lymedisease.org.au/national-tickborne-disease-survey/

A new tick-borne illness support group met for the first time at the Nambucca Valley Phoenix in Bowraville in early Sept...
24/09/2026

A new tick-borne illness support group met for the first time at the Nambucca Valley Phoenix in Bowraville in early September The group has been created for people living with Alpha-Gal Syndrome (AGS), or Mammalian Meat Allergy (MMA).

Michelle Barber and Marion Syratt who jointly convened the group know that the allergy to the ubiquitous galactose-alpha-1,3-galactose “becomes your life”. As Michelle explains, “there’s no more fun barbecues, sitting around chatting while it’s cooking — I can’t be anywhere near that.”.

If you’d like to know more here’s the link to the Facebook Group: https://www.facebook.com/share/g/1FfsGNZidF/?mibextid=wwXIfr and there are more contact details in the article:
👉🏼 https://coffscoast.newsofthearea.com.au/tick-borne-illness-support-group-launches-in-bowraville

Queensland's east coast is a hotspot for the Australian paralysis tick (Ixodes holocyclus), the southern paralysis tick ...
23/09/2026

Queensland's east coast is a hotspot for the Australian paralysis tick (Ixodes holocyclus), the southern paralysis tick and the brown dog tick. That doesn’t mean they are the only tick species found along the coast, just the most common.

The infections they, and other tick species can transmit are many, but they remain largely unexplored, so unless you have a clear, acute case of one of 4 recognised infections, your doctor will not know how to diagnose and treat you.

That’s happened to thousands of Australians. Don’t be one of them!

And if you ARE, please do our survey to help us show our government the extent of this problem: https://lymedisease.org.au/national-tickborne-disease-survey/

Open the link to see Queensland's 5 hottest tick spots:

https://www.worldatlas.com/places/5-tick-infested-areas-in-queensland.html

You won’t find what you don’t look for…Scientists in China have discovered a previously unknown tick-borne virus causing...
18/09/2026

You won’t find what you don’t look for…

Scientists in China have discovered a previously unknown tick-borne virus causing illness in people. The way they found it is especially interesting.

They were investigating patients with a tick-borne illness resembling Severe Fever with Thrombocytopenia Syndrome (SFTS), but some patients were testing negative for the virus known to cause it.

Rather than assuming those patients did not have a tick-borne infection, researchers looked further. That’s good science.

🔬 They found a new virus.

Named Asian longhorned tick nairovirus (ALTNV), the virus was associated with fever, fatigue, gastrointestinal symptoms, reduced platelets and signs of liver inflammation.

🇦🇺 Why should Australia pay attention?

Asian longhorned ticks are known as the bush tick in Australia. It’s been found along parts of the entire east coast as well as a small area of south-west Western Australia.

We can found no published virome study of the Australian bush tick, Haemaphysalis longicornis, despite this species being established in Australia and overseas research demonstrating that it can harbour and transmit a diverse range of RNA viruses. This is a worrying gap in Australian tick-virus surveillance.

Emerging infectious diseases are discovered because scientists continue investigating unexplained illness.

There’s no testing for pathogens that haven’t been identified.

📖 The ALTNV discovery was published in the New England Journal of Medicine in September 2026:
A Zoonotic Orthonairovirus from Febrile Patients in China:
🔗 https://www.nejm.org/doi/full/10.1056/NEJMc2602496

Like many organisations, the LDAA has begun using AI 🤖 in our daily business, but with a degree of caution and with care...
15/09/2026

Like many organisations, the LDAA has begun using AI 🤖 in our daily business, but with a degree of caution and with careful ethics. 🎯

The LDAA's AI use must align with the LDAA’s mission, values and duty of care to people affected by tick‑borne disease. Our volunteers are being trained in appropriate AI use. 🙌

We recognise the potential of AI to assist patients, but also recognise the potential risks and ramifications. In particular, we hope it contributes to significant improvements in diagnosing tick-borne illness and research methodologies. 🔬

🤖 The LDAA will never communicate with you via a 'bot'. Other than auto-responses, communication with our community (including newsletter and website content) will always be primarily written or created by a human.

We may occasionally use AI to 'polish' an article or post, but any AI-generated content will be minimal, and will always checked by a human. If we were to generate an image or article solely via AI, this will be clearly acknowledged.

🤖 The LDAA may use AI to assist in activities such as data analysis. Where AI is used with data, it will be de‑identified and handled in line with the Privacy Act and our privacy policy.

🤖 The LDAA may use AI in our internal business activities. For example, financial forecasting and planning, general planning and strategy, or to assist with administration tasks or in the management of our website. We are currently exploring possibilities to assist in serving our community better.

If you have any questions or comments, please feel free to contact us. The best way to do so is via the Contact form on our website: www.lymedisease.org.au/contact-us

Address

PO Box 137
Newcastle, NSW
2295

Alerts

Be the first to know and let us send you an email when Lyme Disease Association of Australia posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Lyme Disease Association of Australia:

Shortcuts

Share