Newcastle Cystic Fibrosis Foundation

Newcastle Cystic Fibrosis Foundation Non for profit Charity raising funds for Cystic Fibrosis adults and children at John Hunter Hospital and Cystic Fibrosis Australia.

04/11/2025

The Newcastle Cystic Fibrosis Ball will restart next year 2026, watch this space for more information.

18/03/2025

Our daughter Avery was born on 04/02/22 after a smooth pregnancy and labour. Everything seemed perfect - until it wasn’t. At just one day old, Avery was rushed to the NICU for emergency bowel surgery due to meconium ileus. Five days later, she was diagnosed with cystic fibrosis (CF) - a reality that would soon define our lives.

Since then, Avery has endured multiple surgeries, including an ileostomy and a stoma reversal. In August 2024, rhinovirus triggered stage 2 respiratory failure, landing her in the ICU. Starting Trikafta gave us hope, but CF remains relentless. In January 2025, Avery was hospitalized again for DIOS, leading to a grueling 10-hour surgery on her third birthday.

This is why we fight - for Avery and all children with CF. We fight for better treatments, more research, and greater awareness. Avery’s strength inspires us to keep going, and we hope her story will inspire others to join the fight.

To read further: https://www.cysticfibrosis.org.au/averys-fight-for-life-the-harsh-reality-of-cystic-fibrosis/

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Newcastle, NSW

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