21/08/2026
Charlies Foundation for Research recently took the time to speak with Erin Godecke and her work around Aphasia, a communication disorder that can occur after a stroke, traumatic brain injury, brain tumours, epilepsy and a type of dementia.
Aphasia can make everyday conversations, relationships and independence incredibly difficult. For many people recovering from these conditions, finding the right words can become one of the biggest challenges they face.
Erin Godecke is The Director of Allied Health Research at Sir Charles Gairdner and Osborne Park Health Care Group and Senior Research Fellow at Edith Cowan University and has piloted a project "Determining dose limiting factors for aphasia intervention in clinical trials" through funding from her Charlies Foundation for Research, Bright Ideas Grant.
How can rehabilitation research be better designed for people recovering from stroke? Sometimes, the answer starts by asking better questions.
This project explores how to improve the design of future clinical trials for people living with Aphasia. Rather than researchers making all the decisions, the project embraced a co-design approach, working alongside people with lived experience to shape the study from the very beginning. Their feedback transformed the research, leading to the development of aphasia-friendly interview guides, accessible resources and a more inclusive study design that better reflects the needs of participants.
The project also strengthened research capacity by mentoring three clinicians who were new to research, equipping them with skills in study design, ethics, qualitative research and stakeholder engagement to help lead the next generation of clinician-led research.
By improving how early-stage aphasia clinical trials are designed, this work is laying the foundation for more effective rehabilitation research and, ultimately, better outcomes for the approximately 140,000 people affected by this condition in Australia.
Research doesn't just advance through discoveries, it advances when we listen, collaborate and ensure the voices of people with lived experience help shape the future of healthcare.
You can read the full article on Erin's research here https://charliesfoundation.org.au/content/aphasia-intervention/gkhfzp
North Metropolitan Health Service