Neuromuscular WA

Neuromuscular WA (Formerly Muscular Dystrophy WA)
Supporting those impacted by neuromuscular conditions in WA.

We provide our community with services such as counselling, CoughAssist machines, NDIS support, social programs and advocacy, as well as providing support into research projects.

SUPPORTERS: We are back, baby!!After our first quiz night completely sold out (honestly, we’re still not over it), we ha...
09/06/2026

SUPPORTERS: We are back, baby!!

After our first quiz night completely sold out (honestly, we’re still not over it), we had to run it back & this time we’re taking it to The Camfield.

Who Gives a Quiz? Trivia Night returns for round two (✌️)

WHEN: 6pm - 9pm, Thursday July 23
WHERE: The Camfield @ the Hall (The Hall, 1 Roger MacKay Dr, Burswood)

It’s $160 for a table of 8, with food & drinks available to purchase on the night (strictly no BYO). So you can settle in, get comfortable & get very competitive over the answers you’re definitely sure are right.

Round up your smartest (or funniest) friends, because this one’s going to fill fast again 👀

Book your team now - https://loom.ly/s00Ad0o

We’re excited to share some Board updates following our Annual General Meeting last week 💛Please join us in welcoming Sa...
08/06/2026

We’re excited to share some Board updates following our Annual General Meeting last week 💛

Please join us in welcoming Sarah Kerr & Conrad Natoli to the Neuromuscular WA Board, with both commencing three-year terms.

Sarah brings valuable lived experience, a long connection to our community & a passion for making sure the real needs of people living with neuromuscular conditions continue to be heard & represented.

Conrad joins the Board with a strong background in communications & strategic engagement & a genuine passion for helping strengthen advocacy, awareness & connection across the community.

We’re also delighted to share that Cara Philpott has been reappointed as Chair & Abby Macnish Niven reappointed as Treasurer for the next three years.

At the same time, we want to say a huge thank you to Josh Davenport & Deema Audeh as they step off the Board. Thank you both for your time, care & contribution to Neuromuscular WA & our community.

We’re looking forward to this next chapter & the experience, passion and leadership our Board continues to bring ✨

COMMUNITY: JUNIOR SCHOOL HOLIDAY PROGRAM 🌟Looking for something fun, hands-on & social these school holidays? Our Junior...
06/06/2026

COMMUNITY: JUNIOR SCHOOL HOLIDAY PROGRAM 🌟

Looking for something fun, hands-on & social these school holidays? Our Junior Program is the perfect chance for kids to get creative, make new friends & enjoy a day full of exciting activities 🎨🌱🍴

Designed for students in Years 1–6, we’ll be spending the day at The Niche enjoying:

🥗 A cooking workshop with Grow Cook Eat WA
🌿 Planting herb gardens with Bunnings Warehouse
🎲 Games, activities & plenty of fun throughout the day

This is a welcoming & inclusive space where kids can build confidence, connect with others & try something new during the school holidays 💛

📅 WHEN: 9am – 3pm, Wednesday July 8
📍 WHERE: The Niche
📝 RSVP by Wednesday June 22

Register here: https://loom.ly/ZdGSS4o

COMMUNITY: CAMP 2026 - Into the Wild 🐍🐒🦛WHEN: Wednesday September 30 – Friday October 2Calling all young adventurers… th...
04/06/2026

COMMUNITY: CAMP 2026 - Into the Wild 🐍🐒🦛

WHEN: Wednesday September 30 – Friday October 2

Calling all young adventurers… the journey begins this September! 🌿🗺️

Inspired by the excitement, mystery & teamwork of a jungle adventure, this year’s Camp will take children on an unforgettable journey filled with challenges, creativity, connection & fun. Throughout the adventure, campers will work together to complete activities, unlock new stages of the journey & navigate their way through the jungle as a team.

We welcome all school-aged members of our community (year 1 - year 12) to join the adventure, with school-aged siblings also encouraged to come along for the fun.

Camp is a chance for young people to build confidence, make new friends, try new experiences & create unforgettable memories in a supportive & inclusive environment.

There are three different ways your child can join the adventure:

🌿 Full Camp
Stay at Bickley Outdoor Recreation Camp for 2 nights from Wednesday September 30 to Friday October 2.

🗺️ Day Camp
Join us for a full day of activities alongside our Full Campers on Wednesday September 30 &/or Thursday October 1.

🐾 Transition Camp
Perfect for first-time campers wanting to experience what Camp is all about, with a fun-filled part day designed to ease into the adventure.

🌿 Ready to enter the jungle?
https://loom.ly/jDWVI38

COMMUNITY: 🚨 Last chance to secure your spot! 🚨A limited number of discounted tickets are still available for tomorrow's...
04/06/2026

COMMUNITY: 🚨 Last chance to secure your spot! 🚨

A limited number of discounted tickets are still available for tomorrow's ANN/AOMC Joint Conference – Community Day at the Perth Convention Centre.

Join leading researchers, clinicians & experts to explore the latest advancements in the neuromuscular space, hear about emerging research & connect directly with those shaping the future of care & treatment.

🎟️ Discounted tickets are strictly limited & expected to sell out quickly.
Register now: https://loom.ly/zjw1qVA

Enter the code 'NMWA' which will apply the discount for ticket purchase

COMMUNITY: TEEN DAY OUT 2026 ✨We’re heading to The Nostalgia Box for a full day of retro games, creativity, good food & ...
03/06/2026

COMMUNITY: TEEN DAY OUT 2026 ✨

We’re heading to The Nostalgia Box for a full day of retro games, creativity, good food & fun with friends!

From old-school arcade favourites to modern games, this day is all about hanging out, having a laugh, trying something new & connecting with other teens in a supportive and welcoming environment 💛

We’ll be battling it out in a gaming tournament, grabbing burgers for lunch, creating our own Pokémon terrariums & finishing the day with a café stop for afternoon tea ☕✨

WHEN: 9.30am – 3.30pm, Monday, July 6
WHERE: The Nostalgia Box
RSVP by Wednesday, June 22 (https://loom.ly/-lzQrRc)

This is going to be such a fun one - we can’t wait 🎮✨

🎬 COMMUNITY, this is one to add to your calendar.We’re helping spread the word about a special screening of No One Rides...
01/06/2026

🎬 COMMUNITY, this is one to add to your calendar.

We’re helping spread the word about a special screening of No One Rides Alone at the Backlot on this Saturday June 6 @ 6pm.

The 1 hour 40 minute documentary follows Clive Phillips, who was diagnosed with Multifocal Motor Neuropathy (MMN), a rare neurological condition, six years ago.

Since his diagnosis, Clive has been raising awareness, inspiring the rare disease community & fundraising for research through his cycling rides.

Last year, Clive and a group of fellow British Forces veterans took on the incredible Tour de MMN - a 3200km ride along the route of the 1955 Tour de France, 70 years after the first British team completed it 🚴

This is set to be a really special evening and a powerful story of resilience, community & determination.

🎟 Grab your tickets here: https://loom.ly/DciRnYA

Sunshine, snacks & a whole lot of fish tales 🐟☀️Last Thursday, our Purely Socials crew headed down to Ammo Jetty at Wood...
31/05/2026

Sunshine, snacks & a whole lot of fish tales 🐟☀️

Last Thursday, our Purely Socials crew headed down to Ammo Jetty at Woodman’s Point for an all abilities fishing morning with our wonderful friends at Fishability & what a day it was!

With the sun shining & the fish biting, everyone managed to reel something in (skill or luck… we’ll let you decide 👀). Between casting lines, chatting with friends, meeting new people & keeping an eye on Peter the pelican - who got a little too comfortable hanging around our group all morning - there was never a dull moment.

We wrapped up the day with a picnic lunch, coffee in the park & a special birthday celebration for Mackenzie, complete with happy birthday singing & delicious macarons 🎂💛

A huge thank you to everyone who joined us for such a fun morning by the water!

📸 Click the 🔗 below to view all the amazing photos from the day thanks to A Design Creativ - https://loom.ly/Msqlk5c

Dwellingup 100 is back for 2026 💚We’re proud to once again be the official charity partner for the 2026 C-Wise Dwellingu...
29/05/2026

Dwellingup 100 is back for 2026 💚

We’re proud to once again be the official charity partner for the 2026 C-Wise Dwellingup 100, happening on Saturday 12 September.

We’ve been part of this iconic WA event since 2013 & it continues to be something really special for our community. Each year, riders, runners, volunteers & supporters come together for a day built on adventure, connection & purpose.

Set in the beautiful Dwellingup trails, this event truly has something for everyone – from mountain bike rides & trail runs through stunning scenery, to the fun Doggy Dash. It’s a celebration of the outdoors and community spirit in one of WA’s most beautiful natural spaces.

As a charity partner, we’re so proud to stand alongside the incredible team who bring this event to life. Together, we’ll continue raising awareness & vital funds for people living with neuromuscular conditions across WA.

Because neuromuscular conditions are rare, they often receive limited awareness and support. As a small local charity with no ongoing government funding, every dollar raised through events like this makes a real & direct difference to individuals and families across WA.

Over the past 15+ years, this partnership has helped raise more than $1,069,166 & we’re excited to keep building on that impact in 2026.

Registrations are now open!
Sign up here: https://loom.ly/suF5GiQ

When you register, you’ll also have the option to choose Neuromuscular WA as your fundraising charity. If you do, our team will be in touch to support you with setup, share ideas & cheer you on every step of the way.

Who knows… we might even see you at the start line 💚

Bring on Dwelly 2026!

This years National Reconciliation Week invites all Australians to learn, reflect & act on our shared histories, culture...
26/05/2026

This years National Reconciliation Week invites all Australians to learn, reflect & act on our shared histories, cultures & futures.

This year’s theme, All In, is a powerful reminder that reconciliation is everyone’s responsibility. It asks us all to step forward together, not as spectators, but as active participants in creating meaningful, lasting change.

Reconciliation doesn’t happen on its own & it isn’t carried by First Nations peoples alone. It asks each of us to listen, learn & commit to doing things differently, every day.

At Neuromuscular WA, community is at the heart of everything we do. We see every day how much stronger we are when people come together with care, respect & a shared purpose. Reconciliation sits within that same spirit -showing up for each other, valuing every voice & building a more inclusive future for all.

Address

Suite B The Niche 11 Aberdare Road
Nedlands, WA
6009

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm

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