The Carty Boys Foundation

09/06/2026

AWARENESS WILL MAKE A DIFFERENCE, PLEASE SHARE 🙏💙 IN HOPE FOR A CURE ONE DAY for BATTEN DISEASE

08/06/2026

International Batten Disease 🦠

Tuesday 9th June

Keep spreading awareness by sharing this post &/or make a donation to the link ⬇️ below for further research so no more families or children have to suffer, hoping for a cure one day!

🗣️TOMORROW, JUNE 9TH IS INTERNATIONAL BATTEN DISEASE AWARENESS DAY 🧡

👫 Real people at the heart of our mission 👫
Together, we can ensure no family faces Batten disease alone.

Over the last few days we have shared with you the faces of children and young adults whose lives have been changed by a rare, devastating neurological disease. Real faces of courage, strength, resilience and love. Real faces behind every diagnosis, every challenge, every milestone and every memory.

Every year on International Batten Disease Awareness Day, we ask you to help make these faces impossible to forget.

Batten disease steals skills, independence and precious time from children and young adults, but together we can raise awareness, fund vital research and bring hope to families facing this journey.

This year, we invite you to join our global Forget Me Knot campaign.
🎗️ Tie a knot.
📸 Share a photo
💙 Remember.
🏷 Tag us on Facebook OR on Instagram.

Tie a knot to honour a child or loved one living with Batten disease. Tie a knot to remember those who are no longer with us. Tie a knot as a symbol of support for the families who care, advocate and fight every day.

✴Every knot tells a story.
✴Every knot creates awareness.
✴Every knot is a promise to never give up the fight.

🪢 Tie. Share. Remember.
🪢 Ties that bind, symbols that speak.
🪢 A promise to never give up the fight.

Most importantly, please consider making a donation today. Research is our greatest source of hope for better treatments, improved quality of life and, one day, a cure.

🤲 Donate via our website:
https://bdsraaustralia.org/index-donate.php

01/04/2026

Matts birthdate

31/03/2026

Our young man would have turned 27 today. Happy celestial 1st birthday Matt Lee Cartwright

15/03/2026

15/03/2026

We are grateful to MakeAWish for the outstanding experiences they provided to our family and son Dane Cartwright who was dealing with Batten Disease in 2014, memories that will stay with us forever. Dane Cartwright

09/02/2026

How happy he was. Just 8 weeks before he left this galaxy . ❤️

29/01/2026

Always on our minds our beloved sons 🫶🏼💛

06/01/2026

We are amazed how many people our sons Dane & Matt have left an imprint on others lives 🙏

🕊️ Last week, Dane gained his angel wings, aged 29, joining his younger brother Matt who left us earthside less than 2 months ago. The Carty Boys lived life to the fullest, brothers together, facing Juvenile Batten disease with courage and strength.

Dano always wore a shining smile in positive determination, the family's Tarzan wildlife king inspired those he met. The memories of the boys will be cherished by many. We send our love and wishes for comfort to Kaz, Glenn and all the extended family. Fly high brave warrior Dane. 💫💙

06/01/2026