08/10/2026
Content note: self-harm, su***de attempts, eating disorders, addiction, unhealthy relationships.
at 5… she is identified as autistic after experiencing significant social anxiety and sensory overwhelm at kinder. She struggles with the demands of the environment and has frequent, intense meltdowns when she gets home. Her family begins seeking support to better understand her needs.
at 7… she is assessed as having ‘low to moderate support needs’. She is doing reasonably well academically, has some friendships and appears to be managing at school. Her family continues to provide significant support behind the scenes, helping her navigate everyday demands and recover from the school day.
at 10… sensory overwhelm, increasing school demands and difficulties navigating friendships begin to affect her wellbeing. She becomes more anxious, socially isolated and exhausted from trying to keep up. Her family notices how much harder everyday life is becoming.
at 13… puberty and hormonal changes bring additional challenges. The trauma from primary school is catching up with her. She experiences increasing distress, self-harm and an eating disorder. Her support needs become more complex, although much of what she is experiencing remains hidden from others.
at 15… she experiences significant autistic burnout and suicidal ideation. She is no longer able to attend school consistently and needs around-the-clock support from her family to manage everyday life.
at 17… her mental health difficulties continue, and she becomes increasingly isolated. She has lost access to education and struggles to engage with services. Her family is exhausted from years of providing intensive support and navigating systems.
at 19… she has no funded supports and is unable to work. She struggles to access the Disability Support Pension, despite significant difficulties with everyday functioning. After years of masking, sensory overwhelm, rejection and mental health struggles, she begins using alcohol and other substances to find some relief from her distress. What starts as a way of coping gradually becomes harder to manage. Her family continues to provide extensive unpaid care.
at 25… she is caught in a cycle of addiction, and her family can no longer provide the level of care she needs. Without adequate support for her autistic and ADHD needs, she has been unable to find or sustain employment, leaving her with little financial security. She finds herself moving between temporary places to stay, with no stable housing. Years of unmet needs, sensory overwhelm, emotional distress and trauma have contributed to her struggles, with substance use becoming a way of coping. She enters a relationship that initially makes her feel loved, accepted and offers some stability. After years of masking, rejection and people-pleasing, she struggles to recognise when her boundaries are being crossed and becomes increasingly dependent on the relationship. Without consistent, neuro-affirming support that understands how her autism, ADHD, mental health and addiction interact, she finds it increasingly difficult to break the cycle.
at 30… following another hospital admission, she begins talking through her experiences with someone who understands autism and ADHD. She is still struggling with addiction, unstable housing and a relationship that has become difficult to leave, but she starts questioning the ‘low support needs’ label she was given as a child. Looking back, she wonders whether her needs were ever truly low, or whether they were misunderstood, masked and unsupported for so long. Her support needs have varied in intensity and complexity throughout her life, at times profoundly affecting her health, relationships and independence. She begins to wonder how different her life might have been if her needs had been recognised earlier, and if the support available to her had changed as her needs did.
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A note from Yellow Ladybugs
This story draws on lived experiences within our community. It is one possible path, not a prediction of an autistic girl’s future.
At seven, this girl’s family was already helping her get through school and recover at home. We question whether her assessment recognised how much help she needed, what she was masking and the distress other people didn’t see. We also worry about “low support needs” becoming an assumption that follows someone, even as their circumstances and needs change.
The ages in this story mark significant moments, but they can’t show every change in her capacity or how much support she needed within those years.
Support needs can vary in intensity, pattern and visibility. They may be consistent, dynamic or fluctuating. Dynamic or fluctuating needs can still be significant, complex and intensive. Changes in their impact do not mean a person’s disability is temporary.
This is what we want recognised in NDIS assessment and funding decisions.
We want autistic people’s own accounts of their needs to be taken seriously, alongside information from people who know and support them. Assessments need to consider what someone can manage across different settings and over time, how much help makes that possible and the recovery they need afterwards.
We also want funding and support to respond when needs change, without someone having to reach crisis before they are believed. When things are going better, we want decision-makers to consider how much the support already in place is helping, before assuming it is no longer needed.
Our concern is both whether this girl’s needs were understood at seven and whether she could access the support she needed as her life changed. We want her to grow up with that understanding and support, rather than looking back at thirty and wondering why so much was missed.