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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Muscular Dystrophy Australia

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Muscular Dystrophy Australia

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Delivering a brighter today and a more empowered tomorrow for people living with neuromuscular conditions.

Muscular Dystrophy Australia is your one-stop-shop for information, support, research, and connection. From the day of diagnosis, we're with you for your whole journey of living with a neuromuscular disease.

22/10/2026

What an incredible day we had at Camp MDA: Connecting Little Legends! 💙

From creative activities and games facilitated by Mini BOSS Incursions to new friendships and shared experiences, our Little Legends spent the day learning new skills, making connections and creating lasting memories.

✨ Want your Little Legend to join the next adventure? Expressions of Interest for our January event are now open! https://bit.ly/4z49Chq

15/10/2026

Behind every person living with a neuromuscular condition is a carer, parent, family member or loved one providing support, encouragement and care.

This National Carers Week, we want to recognise and celebrate the incredible contribution of carers across our community. 💙

We're inviting parents and carers to express their interest in future opportunities to connect with others who understand the journey, access support, and be part of a welcoming community.

📩 Complete our Expression of Interest form today and help us shape future Parents & Carers initiatives. https://bit.ly/4B4G196

08/10/2026

Meet Daniel, a financial planner from Adelaide, football fan and someone who believes life is about purpose, connection and making the most of every opportunity.

This Becker Muscular Dystrophy Awareness Week, we’re sharing his story. For years, Daniel kept his diagnosis private. On his 30th birthday, he decided to share his lived experience publicly, hoping to raise awareness and encourage others to keep dreaming and doing what they love.

On 31 October, Daniel’s sister, Sarah, is holding a fundraising event Move for Muscles, in support of her brother and others living with neuromuscular conditions. Funds raised from this event will contribute to raising greater awareness and education around neuromuscular conditions.

Read Daniel’s full story and support Sarah's event today💚 https://bit.ly/4j6Opyo

02/10/2026

Looking to connect, grow your skillset, or try a new hobby? New events and opportunities are always popping up for our community, and there are many ways to get involved.

From opportunities to grow your network through volunteering or joining our Mini Woolies at MDA program, to social events like MDA Book Club and Adult Support Groups, there are plenty of ways to build connections and be part of the community.

👉 Explore our latest events and opportunities today: https://bit.ly/4rN3sjc

30/09/2026

This Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day, we're sharing Mary's story. From a love of learning and travel to building meaningful connections with others, Mary's life has been shaped by curiosity, kindness and community. 💚

As a volunteer with Muscular Dystrophy Australia's Adult Support Groups, she's helping create opportunities for others to find the same sense of connection that's been so important in her own journey. "There's a sense of belonging. You don't have to explain yourself."

📖 Read Mary's story and learn how community has shaped her journey: https://bit.ly/46NHFy6

23/09/2026

This September, we're recognising Charcot-Marie-Tooth (CMT) Awareness Month at Muscular Dystrophy Australia, and celebrating the importance of connection, support and community.

Paula, our Community Support Manager shares, “Living with CMT has shown me the strength that comes from connection. Working at Muscular Dystrophy Australia gives me the chance to support others, and I’m proud to be part of an organisation that listens, cares, and stands with the CMT community.”

Whether you're living with CMT, supporting a loved one, or looking for information following a diagnosis, you don't have to navigate it alone. Our team is here to provide guidance, support and connections to services that can help.

📞 Book a call with our team: https://bit.ly/4rtf76n

19/09/2026

For the first time, BEED is coming to Australasia.

Registrations are now open for Becker Education & Engagement Day (BEED) 2026!

Developed specifically for people living with Becker muscular dystrophy, their families, clinicians, researchers and advocacy organisations, this free event is an opportunity to connect, learn and engage with the wider Becker community.

Hear from leading experts, learn about the latest developments in Becker muscular dystrophy, connect with others who understand the journey, and build meaningful relationships across the community.

📍 The Larwill Studio, Melbourne
📅 Friday, 23 October 2026
🕘 9:00am–4:00pm + Community Dinner 6:00pm–8:00pm

👉 Register now: https://saveoursons.org.au/pages/beed-2026

17/09/2026

There's nothing quite like a good book and great conversation.

Whether you're an avid reader or simply looking to connect with others in the neuromuscular community, MDA Book Club offers a welcoming space to share stories, perspectives and friendship.

Join us online for our next gathering where we are reading the novella A Psalm for the Wild-Built by Becky Chambers, which offers a wholesome meditation on what it means to live a fulfilling life — and discover where the conversation takes you.

📚️ Learn more through our website and register today! https://mda.org.au/mda-book-club

16/09/2026

Meet Toby 👋 An engineering student, sports fan, traveller, and advocate.

In conversation with Muscular Dystrophy Australia, Toby and his mother, Judy, reflect on the challenges, achievements, and lessons they’ve experienced since his Becker muscular dystrophy diagnosis, from navigating university life and planning for the future to achieving a long-held travel dream.

As Toby, Judy, and their family prepare for the City-Bay Fun Run, they are raising funds to support awareness, advocacy, and research for neuromuscular conditions.

📖 Read Toby and Judy's story and help support their fundraising journey: https://mda.org.au/muscular-dystrophy/posts/a-journey-shared-toby-and-judys-story

15/09/2026

"The audience saw a polished performance. What they never saw was what was happening inside my head."

For Jeff, living with Myotonic Dystrophy Type 2 (DM2) can feel a lot like being on stage, appearing calm and in control while navigating challenges others cannot see.

This Myotonic Awareness Day, Jeff shares his story of resilience, uncertainty and hope, helping shine a light on the invisible realities of life with DM2.

Read his story today! https://mda.org.au/muscular-dystrophy/posts/myotonic-dystrophy-type-2-an-ordinary-blokes-journey-from-unanswered-questions-to-hope

Address

369 Royal Parade
Parkville, VIC
3052

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+61393209555

Website

http://www.mda.org.au/, https://shorturl.at/XaRzm

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