Lupus Victoria

16/10/2025

A Record Breaking Event – 2025 “Links to Lupus” Annual Charity Golf Day

Lupus Victoria’s 7th Annual “Links to Lupus” Charity Golf Day held on 10 October at Flinders Golf Club was a record-breaking success. Despite the blustering and sometimes, very challenging, winds, we had 115 players on the course, smashing last year’s number of 85. We also had 23 additional lunch guests, making a total of 138 participating on the day. Our Guest Speaker, Professor Eric Morand, Head of Rheumatology at Monash Health, reported on the major developments in treatments that have occurred since Kim Jolly died in 1987. He also reported on Monash University/Monash Health’s research team who are working to develop a new drug to find an alternative to steroids. This drug would have the benefits of steroids for patients but without the debilitating side effects of them. (Vu Nguyen, Secretary of Lupus Victoria, has recently joined the consumer advisory committee on this gamechanging research team).
Lupus Victoria would like to thank the golfers, lunch guests and donors for the outstanding success of our major fundraising event for 2025. A very special thanks to Flinders Golf Club management and staff for their professionalism and organisational skills during the organisation of the event (both administratively, in the pro shop and in the kitchen); for the delicious lunch served on the day; and for delivering us a magnificently manicured course. And a special thanks to our major sponsor, Bosch, who donated some fabulous items for both our “live” and silent auctions. A huge thank you to the many businesses and individuals who kindly donated items for both the “live” auction and the silent auction; and thank you to our volunteers on the day – Lisa, Renae and Dianne – as without them the event would not have been the success it was. Finally, thank you to family, friends and the many people who kindly made donations to the Kim Jolly Lupus Research Fund (KJLRF). The event raised over $35,000 (note this amount includes donations to the KJLRF during the golf promotion period (1/4/25 to 30/10/25) and does not include $16,500 which was donated by individuals honouring the life of persons who passed away during the stated period). This means that total funds raised since inception for the KJLRF will be over $550,00. It's not too late to donate to help us meet our target of $600,000 in our endeavour to help to find a cure for Lupus, so please click on the link https://alumni-friends.monash.edu/ascendportal/s/mnhs (please make sure you click on “Kim Jolly Lupus Research Fund”).

28/05/2025

🌸 As Lupus Awareness Month comes to a close, we leave you with this: living well with lupus is possible.

It’s not always easy, but small steps can make a big difference.
💜 Listen to your body
💜 Prioritise rest and exercise
💜 Stay connected—with your care team and your community
💜 Keep asking questions. Keep learning.
💜 And above all, be kind to yourself.

Check out: https://www.lupusregistry.com/living-with-lupus

Living with Systemic Lupus Erythematosus (SLE) can sometimes feel overwhelming, especially with its unpredictable symptoms and flare-ups. However, learning how to manage your condition effectively can make a significant difference in your daily life. When you feel confident in self-management, you c...

26/05/2025

“At Monash, we feel deeply privileged to contribute to this important moment in lupus care. The introduction of CAR T-cell therapy brings new hope for people living with the most severe and treatment-resistant forms of the disease.

“It is heartening to see Australia playing a role—through centres like ours—in exploring the potential of cutting-edge therapies to improve patients’ lives. This progress reflects the dedication of researchers, clinicians, and above all, the strength and the trust of the patients who make this work possible.

“We encourage all patients to get involved in research —whether through trials, registries, or sharing their lived experience —as together, we can drive the next generation of discoveries forward”.

A/Professor Alberta Hoi
Head of Monash Lupus Clinic &
Consultant Rheumatologist
Monash Health

https://www.facebook.com/watch/?v=1479589146338671&rdid=nAAAiH3MdYhKKsuf

28/03/2025

Thank you for your continued support of Lupus Victoria’s Annual Charity Golf Day, our major annual fundraising event.

As reported earlier, we were very excited to announce that, following another outstanding golf day in 2024, the Kim Jolly Lupus Research Fund broke through the $500,000 barrier this year. Your continuing support is greatly appreciated and is helping to develop new treatments for Lupus patients.

Bookings are now open for the Annual Charity Golf Day 2025 on Friday 10 October at Flinders Golf Club. The Trybooking page is now available, and you can support the golf day by clicking on the link https://www.trybooking.com/events/landing/1352691

Trybooking is available for:
• players to book;
• non-players to attend the lunch; and
• donations

Note that there is a change in the pricing structure - both the “closest to the pin” and the “longest drive” competitions are now included in the registration fee.

Lupus Victoria looks forward to your support, which will ensure the continued success of our major fundraising event, and enable better treatments for Lupus patients.

On Friday 10 October 2025 Lupus Victoria, in partnership with Flinders Golf Club, is holding its 6th Annual Charity Golf Day - “Links to Lupus” -...

03/02/2025

Lupus Victoria's Annual Charity Golf Day 2025

Lupus Victoria is pleased to announce that the 2025 Lupus Victoria "Links to Lupus" Annual Charity Golf Day is set for Friday 10 October at Flinders Golf Club. This follows on from our outstanding event held in 2024. Planning for the day is underway with expectations of an even more successful event in this year. Please mark Friday 10 October in your calendar. We will be setting up a Trybooking page in the next few weeks and details will be sent to you as soon as the site is established. We warmly welcome non-golfers to attend the presentation lunch.

We look forward to your support to enable the continued success of our major fund-raising event. As a result of your support, donations to the Kim Jolly Lupus Research Fund have now exceeded $500,000, for which the Board of Lupus Victoria is extremely grateful.

10/01/2025

Lupus Victoria is excited to announce that funds raised for the Kim Jolly Lupus Research Fund have broken through the $500,000 barrier.

The Kim Jolly Lupus Research Fund was established by the Jolly family in 2008, in conjunction with Monash University, to fund research into Lupus. Kim, who was the daughter of Rob and Christine Jolly, died as a result of Lupus. The money raised is a vital source of funds for the Monash University Lupus Research Team led by Professor Eric Morand, who has become one of the world's leading researchers working to find a cure for Lupus.

Lupus Victoria is proud to be the major fund-raiser for the Kim Jolly Lupus Research Fund. We greatly appreciate the work of the Monash Team who was instrumental in developing a new drug which is now the first drug ever listed on the PBS specifically for lupus.

"With the support of Lupus Victoria and the Kim Jolly Lupus Research Fund, we are seeing new diagnostics and medicines for lupus racing towards approval at a rate never before seen”, said Professor Morand. “With their continued support we are pushing towards a cure”.

Lupus Victoria is particularly grateful for the generous support and donations received over the past 16 years by sponsors, organisations, individuals and family and friends.

Our next major fund-raising event is our charity golf day on Friday 10 October 2025, at Flinders Golf Club. Please save the date and share this post with your family and friends, bearing in mind that non-golfers can support the event by attending lunch on the day.

25/10/2024

Our 6th Annual Charity Golf Day held on 18 October at Flinders Golf Club was an amazing success. Despite the rain which hit the course about 2 hours into play and persisted for the remainder of play, most players donned their wet weather gear, put up their umbrellas and finished play, walking into lunch soaking but smiling. 86 players and 15 lunch guests filled the room and enjoyed a delicious lunch and a fun afternoon. Dr Laura Eades, Research Rheumatologist from Monash Health, gave a moving and informative presentation on progress in regard to Lupus treatments. The day would not have been possible without the 101 players and guests who supported the event on the day; our first ever Gold Sponsors, KNAPP and Intellihub; major sponsor, Bosch; the many businesses and individuals who kindly donated items for both the main auction and the silent auction; Flinders Golf Club management and staff; and lastly thank you to family, friends and the many people who kindly made donations to the Kim Jolly Lupus Research Fund. The event raised $27,388 which means total funds raised since inception for the Fund are approximately $490,000. It's not too late to donate to help us meet our target of $500,000 in our endeavour to help to find a cure for Lupus, so please click on the link https://alumni-friends.monash.edu/ascendportal/s/mnhs (making sure you click on “Kim Jolly Lupus Research Fund”).