Haemophilia Foundation Australia

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Haemophilia Foundation Australia Haemophilia Foundation Australia (HFA) represents people with inherited bleeding disorders and their families.

We are committed to improving treatment and care through representation and advocacy, education and the promotion of research.

Have you heard of ‘haemophilia C’? Today this bleeding disorder is known as factor XI deficiency. Factor XI (11) deficie...
21/10/2026

Have you heard of ‘haemophilia C’? Today this bleeding disorder is known as factor XI deficiency.

Factor XI (11) deficiency is a rare clotting factor deficiency. Unlike haemophilia – also known as factor VIII (8) or factor IX (9) deficiency - factor XI deficiency rarely causes joint or muscle bleeding. It is estimated to affect one in 100,000 people, and in Australia is the third most common bleeding disorder to affect women after von Willebrand disease (VWD) and haemophilia.

What does an ABDR Data Manager do? Probably more than you realise! ABDR Data Managers Julia, Marina, Linda and Deirdre s...
21/10/2026

What does an ABDR Data Manager do? Probably more than you realise! ABDR Data Managers Julia, Marina, Linda and Deirdre spoke to HFA about their role with Australian Bleeding Disorders Registry (ABDR) data – and had a lot to say about why the ABDR and MyABDR are an important part of the life of the patient with a bleeding disorder.

https://tinyurl.com/nh222-abdrdata

October is Bleeding Disorders Awareness Month. This year’s theme, ‘Teamwork: Stronger Together’ is a powerful reminder of the many people who come together to support the bleeding disorders community. ❤️💜💛🩵

Next week is Red Week! All around Australia people will help raise awareness for bleeding disorders by:👒 Dressing in red...
20/10/2026

Next week is Red Week! All around Australia people will help raise awareness for bleeding disorders by:

👒 Dressing in red
🧁 Sharing red cupcakes
👩‍🏫 Teaching others about bleeding disorders

For more ideas on how you can take part – and lots of great resources to use – head to https://haemophilia.org.au/BDAM

❤️ Also how gorgeous is this pic?! Read the latest issue of National Haemophilia for Lincoln’s tips on how to raise awareness for bleeding disorders.

🧱 “My platelets are like bricks without cement.”Carly shares her story about living with Glanzmann thrombasthenia. She t...
20/10/2026

🧱 “My platelets are like bricks without cement.”

Carly shares her story about living with Glanzmann thrombasthenia. She talks about her life, dealing with bleeds, and the things she wishes she knew when she was younger.

Read Carly’s story: https://tinyurl.com/carly-glanzmann-thrombasthenia

“You can study again, you can train again, you can make new friends, and you can rebuild your life as many times as you need — but you only get one body, and it deserves your care.”

Wondering what Glanzmann thrombasthenia is? This very rare hereditary platelet function disorder affects the way that pl...
19/10/2026

Wondering what Glanzmann thrombasthenia is? This very rare hereditary platelet function disorder affects the way that platelets work in the body.

Swipe through the images to learn more about the symptoms, how it is inherited, and hear from people affected.

For Bel, living with factor X deficiency has its challenges, but it hasn’t stopped her from travelling, working remotely...
19/10/2026

For Bel, living with factor X deficiency has its challenges, but it hasn’t stopped her from travelling, working remotely on the mines, and doing pretty much anything she’s wanted.

She shares her story of growing up and learning to tackle life with a rare bleeding disorder.

Read her story: https://tinyurl.com/bel-factor-x-deficiency

💜 Did you know? Factor X (10) deficiency occurs in 1 in a million people. October is Bleeding Disorders Awareness Month, an opportunity to shine a light on the many bleeding disorders affecting Australians.

Glanzmann thrombasthenia, factor XI (11) deficiency, factor X (10) deficiency, acquired haemophilia – these are just a f...
18/10/2026

Glanzmann thrombasthenia, factor XI (11) deficiency, factor X (10) deficiency, acquired haemophilia – these are just a few of the very rare bleeding disorders that affect Australians and other people around the world.

So, what are they, how rare are they, and how can we help raise awareness for them? Swipe through the images to find out.

🌸 Cassie spoke to HFA about growing up with type 3 von Willebrand disease (VWD), which is a severe form – and her journe...
18/10/2026

🌸 Cassie spoke to HFA about growing up with type 3 von Willebrand disease (VWD), which is a severe form – and her journey to take charge of her treatment. Including overcoming her fear of needles.

https://tinyurl.com/nh228-cassiestory

⛓️‍💥 Unlike haemophilia, von Willebrand disease (VWD) is not sex-linked and is inherited by males and females in equal n...
17/10/2026

⛓️‍💥 Unlike haemophilia, von Willebrand disease (VWD) is not sex-linked and is inherited by males and females in equal numbers.

October is Bleeding Disorders Awareness Month. Join us as we help raise awareness and increase understanding about bleeding disorders like von Willebrand disease.

👋 “Hi, I'm Simoni, and I have type 3 von Willebrand disease (VWD), the most severe and rarest form of the disease.”👧 Sim...
17/10/2026

👋 “Hi, I'm Simoni, and I have type 3 von Willebrand disease (VWD), the most severe and rarest form of the disease.”

👧 Simoni tells her personal story of growing up with type 3 (severe) VWD - the challenges of injuries and periods and learning to manage her own prophylaxis treatment.

👉 https://tinyurl.com/simoni-and-vwd

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