Cure EB Foundation

Cure EB Foundation Be a part of it... Funding research into a cure for the worst condition you’ve NEVER heard of. Help us ! Be a part of it. We need your help to

We're a part of it, raising awareness & much needed funds to cure EB. Epidermolysis Bullosa (EB) is a debilitating rare genetic condition that results in painful blistering and peeling of the skin at the slightest touch. EB children are often called 'butterfly children' or ‘cotton wool kids’ because of the fragility of their skin. EB is often referred to as "the worst disease you've ever heard of" and we must find a cure.

14/05/2026

✨ Flashback to last year’s Cure EB Foundation Business Lunch ✨
An incredible afternoon filled with great conversations, amazing supporters, and a shared commitment to making a difference for families living with Epidermolysis Bullosa 💙
We can’t wait to do it all again this year!
📅 Friday 12th June
🎟️ Tickets available via the link in our bio
Will you be joining us? We’d love to see you there.

Join us for an inspiring afternoon of connection, conversation, and impact 💙The Cure EB Business Lunch, hosted by Matthe...
06/05/2026

Join us for an inspiring afternoon of connection, conversation, and impact 💙

The Cure EB Business Lunch, hosted by Matthew Campbell, is back—bringing together our community to help fund vital research towards a cure for Epidermolysis Bullosa (EB).

📅 Friday 12 June
🕧 12:30pm – 4:30pm
📍 The Glasshouse, Olympic Boulevard

Enjoy a three-course lunch with premium beverages, exciting live auctions and raffles, and hear from our special guest speaker Ian Robson (CEO, Kooyong Tennis Club).

🍸 Plus, keep the conversation going with post-event drinks from 4:30–6:30pm.

🎟 Tables of 10 and individual tickets available

Every ticket helps bring us closer to a cure.

Secure your tickets via the link in bio.

24/04/2026
08/03/2026

Exciting updates from BDF! ✨
Cure EB Foundation took the stage to share the latest progress on the research projects we’ve funded thanks to your donations. Every contribution is helping drive vital research forward and bringing us closer to better treatments—and ultimately a cure—for Epidermolysis Bullosa (EB).
Thank you to our board member Ash Thompson for sharing all the updates and Tilly for your inspiring words! Thank you for being part of this journey and supporting the EB community. 💙

🎟️ Brighter Days Festival Raffle 🎟️Have you got your tickets yet?Don’t miss your chance to win some amazing prizes while...
06/03/2026

🎟️ Brighter Days Festival Raffle 🎟️

Have you got your tickets yet?

Don’t miss your chance to win some amazing prizes while helping support Cure EB Foundation and children living with Epidermolysis Bullosa.

📲 Scan the QR code and grab your tickets now before they sell out!

Every ticket purchased helps fund vital research and support for families living with EB.

Get in quick — once they’re gone, they’re gone!

Cure EB Foundation partners with the RCH Foundation to help change the lives of children living with EB. Stay tuned for ...
05/03/2026

Cure EB Foundation partners with the RCH Foundation to help change the lives of children living with EB.

Stay tuned for more updates and exciting developments.

From left to right:
Melissa Burela: Administration Manager Cure EB Foundation
Corey Wilkes: Board Member Cure EB Foundation
Ashley Thompson: Board Member Cure EB Foundation
Ryan Brown: RCH Foundation CEO
Tom Connell: RCH General Pediatrician
Mark Walkley: Chairman Cure EB Foundation
Shannon Landers: Board Member Cure EB Foundation
Annalese Fowler: RCH Foundation Philanthropy Executive

Today is Rare Disease Day.Epidermolysis Bullosa (EB) is a rare and devastating genetic skin condition that causes the sk...
27/02/2026

Today is Rare Disease Day.

Epidermolysis Bullosa (EB) is a rare and devastating genetic skin condition that causes the skin to blister and tear at the slightest touch. For families living with EB, every day is a challenge most of us will never fully understand.

At Cure EB Foundation, we are committed to funding research, supporting families, and working toward a cure.

Because rare deserves attention. Rare deserves research. Rare deserves hope.

02/01/2026

We’re all set up and ready to make this year’s event one for the books! Are you ready for a spectacular day by the Murray?! Tickets available online or at the door - don’t miss out! Come for the day, stay for the memories 🥳 Bring your crew, grab your tickets, jump on our complimentary buses and get ready for an unforgettable time!

It’s not too late to be part of an incredible day filled with fun, community spirit, and purpose 💛 Join us for Tough Til...
31/12/2025

It’s not too late to be part of an incredible day filled with fun, community spirit, and purpose 💛 Join us for Tough Tilly Day as we come together to support an amazing cause, enjoy great company, and make lasting memories. Grab your friends, bring the energy, and don’t miss out — we’d love to see you there! 🙌
GET TICKETS -> https://events.humanitix.com/tough-tilly-day-2026

Address

L 4 114 William Street
Melbourne, VIC
3000

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+61413636766

Website

https://events.humanitix.com/cureeb-business-lunch-2026

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