Porphyria Association Inc. - Australia

25/12/2025

🎄✨ Merry Christmas from the Porphyria Association Australia ✨🎄

As we wrap up the year, we want to say a heartfelt thank you to our members, families, supporters, and volunteers for your ongoing support, kindness, and strength throughout the year.

Wishing you and your loved ones a safe, peaceful, and joyful Christmas. We look forward to continuing our work together in the year ahead 💜

16/09/2025

💜 Podcast Episode Alert 🎙️

This week on the Rarely Discussed Podcast, we hear from our Australian Porphyria Association Board Member Andrew Smith who shares his personal perspective.

Whether you’re a carer yourself, living with porphyria, or simply want to better understand of the impact of rare diseases, this episode offers valuable insight. Andrew talks about the realities of daily life, the importance of self-care, and the strength that comes from connection and understanding.

He also talks about some of the work our Association is currently doing.

👉 Listen here: https://www.youtube.com/watch?v=t8MWyiHlCZM

Today’s guest brings a powerful perspective to the world of porphyria—not as a patient, but as a partner, caregiver, and advocate who fought alongside his wi...