Huntington's Victoria

Huntington's Victoria Huntington's Victoria is dedicated to supporting and assisting those affected by Huntington's disease

OUR MISSION is to sustain a high quality of life for people affected by Huntington’s disease, their carers and their family, while encouraging research towards a cure. OUR VISION is for all people affected by HD live meaningful and hopeful lives as valued members of the community with equitable and timely access to resources and empowered choices for care and support of the highest quality. OUR PR

IORITIES are Service Delivery, Information, Advocacy, Research and Sustainability. OUR VALUES are Integrity, Accountability, Collaboration and Knowledge. We aim to improve the quality of life of all people touched by HD in Victoria by connecting families to the vital support and services they need, while supporting people affected by HD to live meaningful and hopeful lives as valued members of the community. We provide access to expert staff that assist in the navigation of the disability service sector, provide relevant information and connect people with respite and support services. We also work with Australian and global healthcare professionals, disability service providers and academics to increase awareness and understanding of HD, as well as the impact it has on individuals, families and communities. Connect with us on twitter:
https://twitter.com/HuntingtonsVic

Join the conversation:
https://huntingtonsaustralia.com.au/

10/08/2026

🍫💙 THE MOVE4HD CHOCOLATE WALK IS ON!💙🍫

Ready to move, connect, eat chocolate and make some memories?

Join us on Saturday, 12 September 2026 for a slow-paced 4K walk through Melbourne CBD, with chocolate stops along the way!

📍 Meet: IL Mercato Centrale, 546 Collins Street
🕥 Arrive: From 10:30 AM
🚶 Walk starts: 11:00 AM
🍫 Finish: Brunetti Oro, Flinders Lane
🎟️ Tickets: FREE!

This isn't a race. It’s a chance to move together, meet new people, reconnect with our HD community, share stories, have a laugh and inspire one another. Put on your Blue Brigade gear, bring your walking shoes and come show the world the strength, resilience and spirit of our Huntington’s disease community.

And yes… of course we will be walking past chocolate shops, guided by our inhouse choc-addict, Tammy Gardner, you can purchase whatever chocolate you would like to take home!

🎟️ BOOK YOUR FREE TICKET NOW - https://www.trybooking.com/DMRVH

No one walks alone 💙

Some acts of kindness can't be measured in dollars.This letter is our way of saying thank you to the incredible team at ...
07/08/2026

Some acts of kindness can't be measured in dollars.

This letter is our way of saying thank you to the incredible team at The Firehouse, Ringwood and Instagram food blogger, Mikes Likes for choosing to support Huntington's Victoria through their community hamburger fundraiser.

Fundraising is important, but so is something that's harder to measure: every conversation started, every question asked, every person who walked away knowing a little more about Huntington's disease.

For someone living with Huntington's disease, caring for a loved one, or carrying the gene, seeing their local community stand beside them can be a powerful reminder that they are not alone.

To everyone who ordered a burger, shared a conversation, donated, or simply stopped to learn more—thank you. Your support is helping make Huntington's disease more visible, reducing stigma, and building a kinder, more connected community.

Together, we're making a difference, one conversation at a time. 💙

04/08/2026

What can we say... we are still riding the Community Conference high! 💙✨

Here's one last reel packed with some of our favourite moments from an incredible day spent learning, connecting, laughing, and celebrating our amazing Huntington's disease community.

Thank you to everyone who joined us and made the day so special. Your stories, smiles, and support are what make this community so incredible.

We promise... this is the last conference post. 😂 We swear we'll stop spamming your feed now!

Until next time... we can't wait to see many of you at the Chocolate Walk! Bring your comfy shoes, your sweet tooth, and your biggest smiles. 💙

💙 Thank You for Joining Us at the Huntington's Victoria Community Conference 2026 💙To everyone who joined us on Saturday...
03/08/2026

💙 Thank You for Joining Us at the Huntington's Victoria Community Conference 2026 💙

To everyone who joined us on Saturday, thank you for making our 2026 Community Conference such a meaningful and memorable day. It was wonderful to come together, reconnect with familiar faces, meet new members of our community, and share conversations centered on support, wellbeing, and hope.

A heartfelt thank you to Professor Anthony Hannan for so graciously hosting us at the Institute. We are incredibly grateful for your generosity and ongoing commitment to the Huntington's disease community.

We are also incredibly grateful to each of our guest speakers, who generously gave their time to present, participate in interviews, collaborate throughout the planning process, and help make this event such a success. Your expertise, passion, and willingness to share your knowledge made a lasting impact on everyone who attended.

We would also like to sincerely thank for their generous donation. Every contribution, no matter the size, goes a long way in helping Huntington's Victoria continue our work and ensure we are doing the very best we can for our community.

A special thank you to Hanne Files from for the beautiful bracelets, and to for providing the conference bags and for their ongoing support.

Your feedback is invaluable to us. If you have any questions about the topics discussed at the conference, or suggestions for future conference sessions and events, please scan the QR code and share your thoughts with us. We would love to hear from you.

Thank you for being part of our community. We hope to see even more of you at our upcoming events as we continue to learn, connect, and support one another. Keep an eye on this space for more events, opportunities, and ways to stay connected.

🎉 Community Conference Bookings Are Now Closed! 🎉A huge thank you to everyone who has booked their place for tomorrow's ...
31/07/2026

🎉 Community Conference Bookings Are Now Closed! 🎉

A huge thank you to everyone who has booked their place for tomorrow's Huntington's Victoria Community Conference. We can't wait to welcome you!

📧 A follow-up email has now been sent to all ticket holders with everything you need to know before you arrive, including:
• Parking information
• Public transport details
• The conference program and schedule

If you've booked a ticket and haven't received the email, please check your junk or spam folder.

We're so excited to connect, learn, and share this special day with you all. Safe travels, and we'll see you tomorrow! 💙

🎉 The Huntington’s Victoria Community Conference is TOMORROW! 🎉We can't wait to see you all tomorrow, just a last-minute...
30/07/2026

🎉 The Huntington’s Victoria Community Conference is TOMORROW! 🎉

We can't wait to see you all tomorrow, just a last-minute reminder:

📍 Venue: Ian Potter Auditorium, Kenneth Myer Building, Parkville
Doors open at 9:45AM | First session starts at 10:30 AM

🚋 Getting there:
🅿️ There are several paid parking lots and some free/paid on-street options nearby.
🚊 One tram ride from Flinders Street Station (outside the free tram zone) or you could also try the Metro tunnel trains.

Please use the guide as a reference, but get trusty, real time information from PTV website.

☕ Morning tea/coffee & light snacks will be available before the first session.
🥪 Lunch: Sandwiches & wraps provided (Veg/Vegan/GF options included).
If you have complex dietary needs, we kindly recommend bringing your own.

We are so excited to share one of the most passionate pieces of work with you all 💙

See you tomorrow!

🎉 Good news! You asked... we listened! 🎉We've had so many people worried they'd missed out on the Community Conference a...
29/07/2026

🎉 Good news! You asked... we listened! 🎉

We've had so many people worried they'd missed out on the Community Conference after bookings closed, so we're reopening ticket sales one last time!

💙 Bookings have now been extended until this Friday to give everyone a final chance to join us.

If you've been meaning to book, now's the time—don't miss out (for real this time 😉).

We can't wait to see you all this Saturday. 💙

🚨 Final call! Tickets close TODAY! 🚨It’s Community Conference week, and we’re counting down the days until we come toget...
27/07/2026

🚨 Final call! Tickets close TODAY! 🚨

It’s Community Conference week, and we’re counting down the days until we come together for a day of connection, learning, and empowerment. 💙

There are less than 10 tickets left, this is your last chance to join the Huntington’s community, hear from inspiring speakers, connect with families, advocates, researchers and professionals, and be part of a day created by the community, for the community.

🎟️ Don’t miss out, secure your spot via the link before ticket sales close today - https://www.trybooking.com/DKKHZ !!

We can’t wait to see you there. 💙✨

24/07/2026

🎟️ Don't Miss Out – Community Conference 2026!

Have you secured your ticket yet?

Our 2026 Community Conference is just around the corner, bringing together people with lived experience, families, carers, professionals, researchers, and advocates for a day of connection, learning, and shared experiences.

Together we will explore what it means to live well beyond a diagnosis, hear from inspiring speakers, learn about the latest research, and connect with others who truly understand the Huntington's disease journey.

📅 Saturday, 1 August 2026
📍 Ian Potter Auditorium, Melbourne

Tickets are limited, so if you have been meaning to book via the link - https://www.trybooking.com/DKKHZ

🎟️ Book your tickets today and join us for a meaningful day of community, conversation, and hope.

This is what Jess Murell had to say about being gene positive, trying to understand what it means to be in her situation...
23/07/2026

This is what Jess Murell had to say about being gene positive, trying to understand what it means to be in her situation and how she would like to help someone else who is in the similar situation. After learning she carries the Huntington's disease gene, Jess Murrell chose not to face the journey in silence. Through her platform, , she shares her lived experience to raise awareness, reduce stigma, and remind others that they're never alone.

In a heartfelt conversation with Tammy, Jess opens up about receiving her gene-positive result while remaining symptom-free, the coping strategies that have helped her move forward, and why connecting with others has become such an important part of her journey. One of Jess's biggest messages is simple, "only you know what is right for you". If you are navigating Huntington's disease, have questions, or simply need someone who understands, she encourages you to send her a DM. Sometimes, a conversation with someone who's walked a similar path can make all the difference.

This inspiring conversation will premiere in full at Huntington's Victoria's 2026 Community Conference, where Jess will also be joining us in person.

Get your ticket by clicking on the link - https://www.trybooking.com/DKKHZ

💙 We can't wait to share her story with you.

Address

Suite 301/546 Collins Street
Melbourne, VIC
3000

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+61398186333

Website

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