ONE in 5000 Foundation - Imperforate Anus / AnoRectal Malformation

Home
Australia
Melbourne, VIC
ONE in 5000 Foundation - Imperforate Anus / AnoRectal Malformation

The ONE in 5000 Foundation has been established as a charity organisation to promote awareness, unde

The ONE in 5000 Foundation has been established as a charity organisation to provide assistance and support to anyone affected by the congenital condition ANORECTAL MALFORMATION, also known as IMPERFORATE A**S which has an incidence rate of 1:5000 births. Our aim also is to promote awareness, understanding and education of the condition to the community.

14/04/2026

It’s very reassuring to recognised as a “Pediatric Surgical Emergency” that requires action in the first 48 hours of birth by the Pediatric Surgery Journal global organisation. Hopefully critical information like this will prevent any child born with IA/ARM being missed or misdiagnosed which unfortunately still occurs.🧡💙

19/03/2026

Today is a very special day! 🧡💙

The ONE in 5000 Foundation is proud to celebrate today, 20th March, as the inaugural “International Anorectal Malformations Day (ARM).

This important milestone has been made possible through the collaboration of IA/ARM patient organisations and associations across the globe - coming together to support children, families and adults affected by IA/ARM. Today reflects the strength, unity, and shared purpose of our global community.

We would especially like to acknowledge “AMAR Argentina” for initiating this collaboration and helping bring this day to life.

Please take a moment to watch and share the below video far and wide, and feel proud to be part of such a compassionate and connected global community on

04/03/2026

28/02/2026

As today is let’s celebrate all of us born with and our families who know exactly what it’s like to live with our condition and support their child unconditionally and each other in our wonderful community. 🧡💙

23/02/2026

Over the last 12 months, the has been delivering our ONE in 5000 Care Packages to families of newborns who were born with to welcome them into our wonderful community. Thanks to our incredible volunteers all across Australia, we have delivered our Care Packages to

30/05/2025

It was a very bittersweet day today when I delivered our next lot of Care Packages to for families of newborns born with Anorectal Malformation. After five years of incredible care and support to kids and their families, these two incredibly wonderful nurses, Suzie & Jess had their final day at the Colorectal & Pelvic Reconstruction Service due to an incomprehensible decision by the RCH executive to close this life changing multidisciplinary service. It’s impossible to comprehend the impact they have had on hundreds of kids and families in their role as Clinical Nurse Consultants (CNCs). We honour and applaud Suzie & Jess for their commitment, dedication and support to all their patients and families. 🙏🧡💙

Address

Melbourne, VIC
3000

Telephone

61413932300

Website

http://onein5000foundation.org/

Alerts

Be the first to know and let us send you an email when ONE in 5000 Foundation - Imperforate Anus / AnoRectal Malformation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.