PURA Foundation Australia

PURA Foundation Australia A non-profit charity established for research, education & awareness of PURA syndrome in Aust and NZ

💜 Help us change the future for every individual living with PURA syndrome.Every child deserves the opportunity to reach...
12/06/2026

💜 Help us change the future for every individual living with PURA syndrome.

Every child deserves the opportunity to reach their full potential. Every family deserves answers. Every breakthrough in research brings us one step closer to better treatments and outcomes.

🌟 https://purafoundation.grassrootz.com/end-of-financial-year

Together, we can turn today's questions into tomorrow's answers.
Donate before ⏰ 30 June

This End of Financial Year, your donation will help fund vital research and support programs for the PURA community. 🧠 💪

Donations over $2 are tax deductible in Australia.

💜 What a team. What a day. What a community. 💜Yesterday, Team PURA came together for the Brisbane Marathon to raise fund...
08/06/2026

💜 What a team. What a day. What a community. 💜

Yesterday, Team PURA came together for the Brisbane Marathon to raise funds for life saving epilepsy research in PURA syndrome.

Last minute donations ⏰ https://bmf26.grassrootz.com/purafoundation/

Families came together for a day of connection, support and celebration. Some walked. Some ran. Some wheeled. Some cheered from the sidelines. Together, we celebrated every kilometre, every finish line, and every dollar raised.

To everyone who participated, donated, volunteered, shared our fundraising page, or supported us along the way, thank you. You are helping drive research forward and bringing us closer to better treatments for our children.

Alone we are rare. Together we are strong. 💜

07/06/2026

Crossing the finish line 💜 Go Team PURA

💜 Crossing the finish line 💜 What a day.Today, PURA families walked, ran, wheeled, volunteered, cheered, and came togeth...
07/06/2026

💜 Crossing the finish line 💜 What a day.

Today, PURA families walked, ran, wheeled, volunteered, cheered, and came together as a community. Every step was taken for our children and for a future with better treatments for PURA epilepsy.

Last minute donations ⏰ https://bmf26.grassrootz.com/purafoundation/

To everyone who joined Team PURA, donated, shared our fundraising page, or supported us along the way, thank you. Days like today remind us that while PURA syndrome may be rare, our community is incredibly strong.

Shout out to CuppaMakeCake for the amazing PURA cookies 🍪!

What a wonderful day of family, friendship, community, and hope 💜

💜 Team PURA is hitting the ground running! Our PURA families have started the 3km walk and are now out on the course, cr...
07/06/2026

💜 Team PURA is hitting the ground running! Our PURA families have started the 3km walk and are now out on the course, crossing paths with our 10km and full marathon runners as they make their way around the course. 🌟

Want to help? 👉https://bmf26.grassrootz.com/purafoundation/

Every step taken today is for our kids. Every kilometre is helping raise funds for life saving epilepsy research in PURA syndrome and bringing us closer to better treatments. 💪

Please join us in wishing all of Team PURA the very best as they walk, run, wheel, and cheer their way through the day. We are so proud of every one of them 💜

If you'd like to support their efforts, there's still time to donate.

💜 Team PURA is on the move! 💜 PURA families are making their way to the start line for the 3km walk, while our 5km and 1...
06/06/2026

💜 Team PURA is on the move! 💜 PURA families are making their way to the start line for the 3km walk, while our 5km and 10km runners are already out on the course.

Today is about community, hope, and raising funds for life saving epilepsy research in PURA syndrome. To read more or donate visit 👉 https://bmf26.grassrootz.com/purafoundation/

Please join us in wishing all of Team PURA the very best as they walk, run, wheel, and cheer their way through the day.

We are so proud of every one of them 💜

💜 Team PURA is here! 💜 Our families are arriving for the 5km, 10km and 3km walk event. The excitement is building.Today,...
06/06/2026

💜 Team PURA is here! 💜 Our families are arriving for the 5km, 10km and 3km walk event. The excitement is building.

Today, one amazing PURA mum surprised the team with a box of homemade PURA cookies to share before the event 🍪 It perfectly captures what today is all about. Families supporting families. A community coming together. People showing up for those living with PURA syndrome and epilepsy.

Donate via 👉 https://bmf26.grassrootz.com/purafoundation/
We are so proud of Team PURA 💜

If you'd like to support our families and help fund life saving epilepsy research, there's still time to donate.

💜 And they're off! 💜 The Brisbane Marathon is underway and Team PURA is out on the course.A special shout out to one of ...
06/06/2026

💜 And they're off! 💜 The Brisbane Marathon is underway and Team PURA is out on the course.

A special shout out to one of our amazing PURA dads who has set off on the full marathon. 42.2 kilometres of determination, dedication, and hope for a better future for our children. 🏃‍♂️

👉 https://bmf26.grassrootz.com/purafoundation/
If you'd like to support our families and help fund critical epilepsy research, there's still time to donate 💜

From our walkers and wheelers to our runners, our incredible families are showing up today to help raise funds for life saving epilepsy research in PURA syndrome.

We're so proud of every member of Team PURA.

🏃‍♀️ 1 DAY TO GO! 💜Tomorrow, Team PURA will be running, walking and wheeling in the Brisbane Marathon to raise funds fo...
06/06/2026

🏃‍♀️ 1 DAY TO GO! 💜

Tomorrow, Team PURA will be running, walking and wheeling in the Brisbane Marathon to raise funds for life saving epilepsy research.

💫 Donate today and help us cross the finish line:
https://bmf26.grassrootz.com/purafoundation

For many with PURA syndrome, epilepsy is one of the most challenging parts of the condition. Seizures can be frequent, unpredictable, and have a significant impact on daily life.

That's why Team PURA is coming together. Every dollar raised helps support critical research aimed at better understanding epilepsy in PURA syndrome and moving us closer to effective treatments.

Alone we are rare. Together we are strong. 💜

Address

PO Box 90 Diamond Creek
Melbourne, VIC
3089

Telephone

+61418354149

Website

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