Haemophilia Foundation Victoria

20/10/2026

"Ageing with haemophilia, and also in my case, HIV is a fairly new thing. So, I'm going to rely heavily in the future on the foundation for up to date information. The Government must secure vital funding for the foundation; we cannot afford to lose this wonderful resource." Neil, HFV Member.

Every person in our community has a story about how HFV has made a difference.

From peer support to community connection and programs, these services help Victorians living with bleeding disorders navigate life with confidence.

The funding ended on 1 September, but the need hasn’t.

📢 Our ask is simple: we need the Victorian government to secure an ongoing funding pathway for HFV.

Tag your local MP and ask them to support HFV.

16/10/2026

Our community’s concerns were heard on ABC radio this morning.

The story highlights the impact the loss of the Victorian Government’s annual funding is having on HFV and the families who rely on our support.

A huge thank you to Naomi Denton, Donna Field and Dr Alison Street for lending their voices to the story and helping shine a light on why these services matter.

We’ll continue speaking up for Victoria’s bleeding disorders community and advocating for a sustainable way forward.

Help support HFV by sharing this post and tagging your MP.

🎧 Listen to the ABC story below.

Parents of children with the rare bleeding disease Haemophilia are aghast at the loss of funding for a support service.

16/10/2026

Recently, Martin, who lives with severe haemophilia A, met with Assistant Minister Ged Kearney alongside his wife, Libby, and daughter, Ivy, who is a carrier of the haemophilia gene.

Together, they shared their lived experience and discussed the importance of securing ongoing funding for HFV.

Real stories help decision-makers understand what is at stake.

Thank you to Assistant Minister Kearney for taking the time to listen.

Help support HFV by sharing this post and tagging your MP.

08/10/2026

Thank you to Dr Sarah Mansfield MP for standing up for Victoria’s bleeding disorders community in the Legislative Council and calling on the Victorian Government to urgently reinstate funding for HFV.

As Dr Mansfield highlighted, advances in treatment have transformed the management of bleeding disorders, but treatment alone is not enough. People and families also need connection, peer support and the confidence to navigate life with a complex, lifelong condition.

For more than 70 years, HFV has provided that support to the Victorian bleeding disorders community.

Across Victoria, community members are sharing their stories, meeting with MPs and speaking up about what is at risk.

Together, we’re sending a clear message: Victorians living with bleeding disorders deserve ongoing access to the support, connection and programs that HFV provides.

📢 Share this speech, tag your local MP and ask them to support an ongoing funding pathway for HFV.

06/10/2026

“Living with a bleeding disorder as a woman means carrying an invisible fear that others may not understand — the fear that in an emergency, during surgery or a medical procedure, your condition may be overlooked, underestimated or simply not recognised. There is also the quiet guilt of knowing you may have passed it on to your children.

We need greater awareness that bleeding disorders affect women too, and greater access to mental health support, and connection. But perhaps most importantly, we need each other. Connecting with women who truly understand can turn anxiety into confidence, isolation into belonging, and an invisible condition into something we no longer have to face alone.”

– Debbie, HFV Member.

Victorians like Debbie living with bleeding disorders deserve ongoing access to the support, connection and programs that HFV provides.

Join us in sharing your story. Tag your MP. Help us secure an ongoing funding pathway to ensure HFV’s vital support services can continue.

01/10/2026

HFV supports more than just people living with bleeding disorders.

Funding helps deliver peer support programs, community events, and connection for Victorians affected by bleeding disorders and their families.

Without a replacement funding pathway, these services are at risk.

📢 We need your help.

Every voice matters. Share this post, tag your local MP and ask them to support ongoing funding for HFV.

29/09/2026

Thank you to the Herald Sun for sharing HFV’s story and helping shine a light on the importance of our services for Victorians living with bleeding disorders.

Help us keep the momentum going. Share the story and join us in calling on the Victorian Government to protect HFV’s vital services.

Ingrid Stitt MP Georgie Crozier MP Pauline Richards MP

A not-for-profit that delivers life-changing support to Victorians with rare, life-threatening bleeding disorders is on the brink of closure after the state government slashed its annual funding to zero. > https://bit.ly/4ye2PBn

27/09/2026

For more than 70 years, HFV has connected, supported and empowered the Victorian bleeding disorders community and their families.

In the recent Budget, the Victorian Government decided to end HFV’s funding.

The funding ended on 1 September, but the need for these services has not.

Without a sustainable funding solution, vital support that helps people navigate life with a bleeding disorder is at risk.

"I will always do whatever it takes to protect my sons and HFV is part of my toolkit. Without HFV, families like ours will lose one of our most vital lifelines.” -HFV Member, on the loss of funding.

Take action today:
✅ Share this post
✅Tag your local MP

Together, we can ensure Victorian’s don't lose the support they rely on.

25/09/2026

❤️ HFV Bleeding Disorders Awareness Month Walk is on again!
This year’s walk around Albert Park Lake is especially important as we come together to raise awareness of the vital role HFV plays in supporting the bleeding disorders community and the need for continued government funding.
📍 Albert Park Lake
💃 Dress in red and bring your family, friends and even your dog!
🌭 BBQ cooked by our Youth Leadership Team – gold coin donation
🎁 Raffle tickets available for your chance to win one of two $300 Devcos hampers!
📸 Photos and videos will be taken on the day – media consent forms will be available
📝 Please register on arrival
🥤 BYO drinks – drinking fountains are nearby
🏃 Can’t manage the walk? Come along, enjoy a snag and support our Youth Leadership Team!
Families are welcome to bring along games and sporting equipment too.
We’re going BIG this year, and we’d love to see as many members, families and supporters there as possible. Let’s show decision makers just how important HFV is to our community!
🚗 Parking is available for a flat rate of $8.20 for the day.
👉 Register here: https://www.trybooking.com/DOVNA

13/09/2026

How can women with bleeding disorders speak up when their health concerns are dismissed?

Shauna, Lauren, Bel, Sal and Debbie all share their thoughts – and what they wish they’d been able to tell their younger selves when seeking a diagnosis for their bleeding disorder.

“You don’t need permission to feel heard when it comes to your health.” – Bel.

🙏 Thank you Shauna (VWD), Lauren (haemophilia), Bel (factor X deficiency), Sal (VWD) and Debbie (haemophilia) for speaking up about your experience.

🌸