Monash University - CARE

08/09/2025

This is a FREE public lecture open to all, especially people with lived experience of IBS / Endometriosis and those who have tried the FODMAP diet.

In person tickets are limited so be sure to secure you spot! https://events.humanitix.com/fodmaps-20-years-on

16/07/2025

AccessCR supports clinical trials and patient engagement, ensuring lived experience drives better research outcomes!
The CPIR2025Awards are on Aug 12-13!
Watch the video to find out more: https://www.youtube.com/watch?v=7eiaIJ9tHo8
Register for the live event: https://events.humanitix.com/cpir2025awards

The CPIR2025Awards inspire & celebrate excellence in the patient, carer & researcher partnerships driving Australian health & medical research forward.

14/07/2025

It's International Diabetes week and we are seeking people with lived experience of type 1 or type 2 diabetes to join our research team!
Express interest here: https://redcap.helix.monash.edu/surveys/?s=LDEFDHYWPJ

11/07/2025

Our very own Isabelle Burke has published a paper showing how training your sense of smell could help boost cognition!

Read the paper: https://alz-journals.onlinelibrary.wiley.com/doi/epdf/10.1002/trc2.70120

Learn how lived experience shaped her research: https://www.linkedin.com/pulse/how-lived-experience-led-isabelle-burke-s3tpc?utm_source=share&utm_medium=guest_desktop&utm_campaign=twitter
Congrats, Isabelle! 🎉

Isabelle Burke is researching the link between sense of smell and dementia in the School of Psychology at Deakin University. Her research is deeply personal, inspired by her mother’s experience with early-onset Alzheimer’s disease.

30/05/2025

📸 Behind the Scenes on Zoom!
📍 Monash University | Feb 2025

Our amazing CaRE Committee members are connecting from all corners of Australia to champion community involvement in research! 💬🌏

As part of Monash University, CaRE is dedicated to strengthening partnerships between researchers and community members, ensuring that lived experiences and consumer voices are at the heart of every research project.

Whether it's shaping study design, contributing insights, or reviewing proposals, our members bring passion, knowledge, and a shared commitment to making research more meaningful and inclusive.

Here’s to collaboration, connection, and creating research that truly reflects the needs of our communities! 🙌🧠

20/05/2025

Happy International ! 🎉🎉
Our community advisors play a vital role in research. From designing participant information sheets and questionnaires to shaping outcomes, they help ensure trials reflect real needs and are more impactful and accessible

29/04/2025

🎉 Congratulations, Dr Madeleine Smith! 🧠👏

We're thrilled to celebrate CaRE member Dr Madeleine Smith, a post-doctoral fellow in the Department of Neuroscience, who has been awarded a prestigious Scientific Exchange Grant from the International Stroke Recovery and Rehabilitation Alliance (ISRRA)!

This grant will take her to Canada 🇨🇦, where she'll join the renowned lab of Professor Numa Dancause at Université de Montréal. There, she'll deepen her expertise in brain connectivity and plasticity post-stroke—vital work that supports her groundbreaking research into stem cell therapies for stroke recovery.

“I’m very excited to have this opportunity to learn and gain experience in an internationally recognised lab, which will broaden the scope of my neuroscience training,” says Dr Smith. “The grant will enable me to develop cutting-edge expertise, forge international connections, and contribute to advancing stroke recovery research both at Monash University and globally.”

We’re proud to celebrate Dr Smith as she continues to grow into a global leader in stroke research. 🌍💡

04/04/2025

🎉 Huge congratulations to CaRE committee member A/Prof Narelle Cox! 🎉

Together with Prof Anne Holland, Professor of Physiotherapy and Head of Respiratory Research at Alfred Health and Monash University, Narelle has co-developed an innovative remote rehabilitation program that blends technology, community support, and best-practice exercise programs to improve access to care for people living with chronic respiratory conditions — no matter where they live. 🏡💻💪

Their ground-breaking research, "Tele-rehabilitation for Chronic Obstructive Pulmonary Disease," was just featured in the NHMRC’s ‘10 of the Best’ (16th edition) — a national publication that showcases some of Australia’s most impactful health and medical research. 🇦🇺📘

This program is now referenced in global treatment guidelines for treating people with chronic respiratory conditions, and is being embedded in widespread practice. 🌍✅

👏 Congratulations to Prof Holland and our very own A/Prof Cox on this incredible recognition and contribution to improving health care for all! 💙

09/03/2025

🧠 Join Us for an Important Webinar on Autoimmune Encephalitis! 🧠

Autoimmune Encephalitis (AE) is a rare but serious condition that affects the brain, often leading to significant neurological and psychiatric symptoms. Want to learn more about AE and the latest in research and treatment?

📅 When: Tuesday 11 March 2025
💻 Where: Online Webinar
🎙️ Hosted by: Monash University / CaRE

This session is designed for people living with AE, family, friends, carers, health professionals, and researchers interested in understanding AE from a research and lived-experience perspective. Don’t miss this opportunity to hear from experts and ask your questions!

📌 Register now: https://events.humanitix.com/understanding-autoimmune-encephalitis

Help us spread the word by sharing this post! 🙌

06/03/2025

Join us online at 6pm on Tuesday 11th March as researchers & people with lived experience share their stories & insights into understanding Autoimmune Encephalitis!
Register: https://events.humanitix.com/understanding-autoimmune-encephalitis

18/02/2025

We are currently seeking people with lived experience of pre diabetes, diabetes T1, diabetes T2 to inform a diabetes research at Monash University.

Please share so we can ensure community voices are heard and included in this important area of research!

Diabetes Australia, Consumer and Community Involvement Program

04/12/2024

Check out this fantastic video on in research, created by our talented placement student! 🎥✨