Australian Epilepsy Project - AEP

07/10/2026

💜 Walking for Epilepsy - a story of family, resilience and support 💜

Our Lived Experience and Participant Lead, Amanda Anderson, is a proud Mum to two boys, Hamish (12) and Lucas (18), who have both been incredibly supportive of her epilepsy journey.

Last year, Lucas took part in the Walk for Epilepsy for the very first time. This year, he’s taking it a step further by joining the AEP team’s Walk for Epilepsy for the first time, walking alongside our team to support his Mum and the wider epilepsy community. 💜

Lucas has been by Amanda’s side from the very beginning of her epilepsy journey. He was born when Amanda was 28 and living with drug-resistant epilepsy. When Lucas was almost 3, Amanda underwent successful brain surgery to treat her epilepsy, this was a life-changing experience but also made caring for a young child particularly challenging.

Lucas didn’t have the typical childhood experience. His mum wasn’t able to drive until he was 4, and epilepsy shaped many aspects of their family life. But despite those challenges, Lucas has thrived.

Now 18, Lucas is passionate about agriculture and is currently working on a cattle property in regional Victoria. And that means he’s clocking up the kilometres VERY quickly! 🐄🚶‍♂️

In fact, Lucas is currently leading the AEP board in both distance walked and donations raised! 🙌

We couldn’t be prouder of Lucas for turning his personal connection to epilepsy into action & advocacy and for continuing to walk alongside his Mum.

Go Lucas! 💜 Every step makes a difference.

👉 If you can, please donate and support Lucas and the AEP team:
https://www.walkforepilepsy.org.au/fundraisers/AustralianEpilepsyProject1192

Let’s get walking! 👟💜

Epilepsy Foundation of Australia
Epilepsy ACT
Epilepsy Tasmania
Epilepsy Queensland
The Florey Institute of Neuroscience and Mental Health

04/10/2026

🚶‍♀️💜 It’s October, which means the Walk for Epilepsy has begun!

This month, our team at the Australian Epilepsy Project (AEP) is taking on the challenge of walking 100km in 25 days to raise awareness and vital funds for the 1 in 25 people living with epilepsy.

We’d love your support! Every donation helps us continue making a difference for people affected by epilepsy. 💜

👉 Please donate and support our team:
https://www.walkforepilepsy.org.au/fundraisers/AustralianEpilepsyProject1192

Let’s get walking! 👟💜

Epilepsy Foundation of Australia
Epilepsy ACT
Epilepsy Queensland
The Florey Institute of Neuroscience and Mental Health

30/09/2026

💜 Today is the last day of September and the last day of our Step for Epilepsy challenge!

💜Over the past month, we’ve been stepping, moving and raising awareness for epilepsy, and we’re so grateful to everyone who has supported us along the way. Every step and every donation have helped us get closer to our fundraising goal.

If you’ve been meaning to donate but haven’t quite got around to it, today is your last chance! 🙏

Even a small donation can make a difference and help support people and families affected by epilepsy. Thank you to everyone who has donated, shared our posts, cheered us on or taken a step with us this September.

💜 If you can, please consider making one final donation before September ends.👉 https://step4epilepsyactionactionau.gofundraise.com.au/page/AustralianEpilepsyProje15687993

Epilepsy Action Australia
Epilepsy WA
The Epilepsy Centre
The Florey Institute of Neuroscience and Mental Health

21/09/2026

Amanda Anderson, Debbie Marques, and Emma Beildeck from the AEP Team were thrilled to attend the inaugural Melbourne EmpowerHER Epilepsy Forum, hosted by Epilepsy Action Australia and Australian Women with Epilepsy. 💜

It was a powerful and uniting day, bringing together people with lived experience, healthcare professionals and advocates to share knowledge, connect and build hope for the future.

We were especially honoured to see our Lived Experience and Participant Lead, Amanda Anderson, take to the stage to share her personal journey with epilepsy and speak about the work of the Australian Epilepsy Project.
Amanda’s voice and experience are at the heart of what we do, and we’re incredibly proud of her contribution to this important conversation.

Thank you to everyone who contributed to and attended this inspiring forum. Together, we can continue to strengthen connections, amplify lived experience and drive positive change for people living with epilepsy. 💜

💜 Don’t forget to keep supporting Steps with Epilepsy this September! 👣

The Florey Institute of Neuroscience and Mental Health

18/09/2026

🧠 A landmark moment for epilepsy care in Australia.

Today, the Australian Epilepsy Project welcomes the Senate Community Affairs References Committee’s landmark report, Epilepsy in Australia.

📣 The report captures, in unprecedented detail, the experiences of Australians living with epilepsy and the systemic challenges they face, from delayed diagnosis and fragmented care to geographic inequity and limited access to specialist services.

For the AEP, this is more than a report. It is an opportunity to turn evidence into action.

The AEP was established to help address many of the challenges identified by the Committee: improving access to advanced epilepsy testing, reducing geographic barriers, connecting people with specialist expertise, and building the infrastructure needed for a more coordinated national approach to epilepsy care.

🤝 We welcome the Committee’s 27 recommendations and look forward to working with governments, clinicians, researchers, epilepsy organisations and the broader community to help translate them into meaningful change for Australians living with epilepsy.

Read the AEP response to the Senate Epilepsy Report here: https://tr.ee/oC32fE

Read the full Epilepsy in Australia Report here: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia/Report

The Florey Institute of Neuroscience and Mental Health
Epilepsy Foundation of Australia
Epilepsy ACT
Epilepsy Action Australia
Epilepsy Australia
Epilepsy Queensland
Epilepsy Tasmania
Epilepsy WA
The Epilepsy Centre

11/09/2026

💜 Meet Emma and another reason why we’re stepping up for Epilepsy

Yesterday we shared Amanda’s story. Today, as our Australian Epilepsy Project team steps up for epilepsy, we want to share another incredible story, Emma’s.

Emma has lived with epilepsy since she was 9 years old. She knows firsthand the unexpected challenges that can come with epilepsy, and how difficult it can sometimes be to accept those challenges as part of your reality.

But Emma also shows us that epilepsy is only one part of her story.

Despite living with epilepsy, Emma works as a physiotherapist in a hospital and is a Clinical Coordinator with the Australian Epilepsy Project. Her own experience with epilepsy has helped shape her passion for working in healthcare and supporting others.

And that’s exactly why we’re stepping for epilepsy.

Every step our AEP team takes is about more than walking. It’s about raising awareness, supporting people living with epilepsy, and helping create a future where people affected by epilepsy have better answers, better care and better outcomes.

Emma reminds us:

💜 “Yes, there are things that epilepsy may prevent me from doing, but I sure won’t let it stop me from living a full, fun life!”

So today, we’re stepping with Emma, with Amanda, and with everyone whose life has been impacted by epilepsy.

26 minutes a day. Every step counts. Every story matters. 💜👟

Epilepsy Action Australia
Epilepsy WA
The Epilepsy Centre
The Florey Institute of Neuroscience and Mental Health

Epilepsy has been part of Emma's life since she was 9 years old.

Join Emma and sign up to Step4Epilepsy today: https://step4epilepsyactionactionau.gofundraise.com.au/

10/09/2026

💜 Why we’re stepping up for epilepsy 💜

Epilepsy is something that is very close to the hearts of many of our staff. Several members of our team have a personal connection to epilepsy, just like Amanda, who is featured on the Epilepsy Action page. Their personal experiences have made this cause especially meaningful to our team.

That’s why we’re proud to be taking part in Step Up for Epilepsy, stepping together to raise awareness, show our support and help make a difference for people living with epilepsy. 👣💜

Every step counts, and every donation helps support those affected by epilepsy and work towards better awareness, diagnosis, investigations and treatment.

🙏 If you’re able to donate, we would be incredibly grateful.
And if you can’t donate, please consider sharing our fundraising link so we can reach even more people.

💜 Donate or share our link:
👉 https://step4epilepsyactionactionau.gofundraise.com.au/page/AustralianEpilepsyProje15687993

Epilepsy Action Australia
Epilepsy WA
The Epilepsy Centre
The Florey Institute of Neuroscience and Mental Health

Together, we can step up for epilepsy. 💜👣

Around 266,000 Australians, like Amanda, are living with epilepsy. Join Step4Epilepsy today. Every step and every donation helps provide vital support.

Sign up or donate now: https://step4epilepsyactionactionau.gofundraise.com.au/

30/08/2026

🚶‍♀️💜 TOMORROW IS THE DAY! 💜🚶‍♂️

Tomorrow, our team at the Australian Epilepsy Project (AEP) kicks off Step 4 Epilepsy for September! 🎉

Throughout September, we’ll be walking 26 minutes every day to raise awareness and funds for epilepsy research and support.

💜 Every minute we walk represents 1 in 26 Australians who will be diagnosed with epilepsy in their lifetime.

That’s 26 minutes. 26 days of action. One powerful message: epilepsy affects more Australians than you might realise, and together we can make a difference.

We’d love your support! 🙌 Whether you follow along, share our journey, or make a donation, every bit helps us step closer to a future where epilepsy is better understood, treated and ultimately overcome.

💜 Want to support our team and donate to this important cause?

Click here: https://step4epilepsyactionactionau.gofundraise.com.au/page/AustralianEpilepsyProje15687993

Epilepsy Action Australia
Epilepsy WA
The Epilepsy Centre
The Florey Institute of Neuroscience and Mental Health

Hello!We're making a difference by fundraising for a cause that's close to our hearts. Please support our efforts by making a secure online donation and by posting a message of support.Donations made through this platform are secure and will be remitted directly through to Epilepsy Action Australia....

19/08/2026

💜🚶‍♀️🚶‍♂️ WE’RE WALKING FOR EPILEPSY! 🚶‍♂️🚶‍♀️💜

We’re excited to announce that the Australian Epilepsy Project will be supporting BOTH major walks for epilepsy fundraising this year! 🎉💜🙌

👟 First up: Step 4 Epilepsy!

Our team will be walking 26 minutes a day ⏱️🚶‍♀️ to raise awareness 📣 and vital funds 💰 for Epilepsy Action Australia.

🌸 Then in October: Walk for Epilepsy!

We’ll be taking part once again, with each team member walking 25km from 1–25 October 🗓️👟💜 to show our support for Australians impacted by epilepsy. This event is hosted by the Epilepsy Foundation of Australia💜👏

We’re so excited to raise funds 💰, spread awareness 📣, support our community 🤝 and get fit at the same time! 💪😄🏃‍♀️

💜 Every step counts.

👟 Every kilometre matters.

🤝 Every donation helps.

Let’s get moving and make a difference together! 💜🚶‍♀️🚶‍♂️✨

The Florey Institute of Neuroscience and Mental Health

12/08/2026

📢 Do you live or work in Newcastle? Volunteers wanted!

Help advance epilepsy research and support better brain health for future generations.

We are seeking volunteers - people without epilepsy - to join the Australian Epilepsy Project’s study control group.

Control group volunteers are vital for a research study as they provide a point of comparison for general participants and determine the efficacy of the study.

Participation involves an at-home examiner-led neuropsychology test, approx. 120 mins as well as a visit to the Hunter Medical Research Institute (HMRI) for an MRI scan, approx. 90 mins.

Your participation in the AEP will help to shape the future landscape of epilepsy diagnoses and treatment for thousands of Australians and drive new discoveries and future applications of data for epilepsy today, and other brain health conditions, tomorrow.

Find out more: https://www.epilepsyproject.org.au/participants-volunteer

The Florey Institute of Neuroscience and Mental Health

Epilepsy Action Australia