Conquer Cystic Fibrosis South West is part of a State-wide effort to boost funding to research into this devastating disease. It's about improving, extending and saving the lives of the more than 3400 Australians with Cystic Fibrosis and 70,000 world-wide. We need to find better treatments and ultimately a cure for Cystic Fibrosis. Conquer Cystic Fibrosis is based in Perth, is 100% volunteer run w
ith a primary focus of funding research. What that means is that every dollar raised goes to the cause and not administration costs. Started 18 years ago, its primary beneficiaries have been the Australian Cystic Fibrosis Research Trust (ACFRT), Telethon Kids Institute and the Institute of Respiratory Health. This vital research in Australia has, and will continue to, enable people with Cystic Fibrosis to live longer and have a better quality of life. A number of fundraising events will be held in the South West throughout the year. You can support this cause by:
a) Attending an upcoming events. b) Making a one-off donation via www.conquercysticfibrosis.com
c) Becoming a CCF angel by providing a regular donation. This is the perfect way of supporting these efforts on an ongoing basis. d) Volunteering, sponsor or donate an item or service. To do so contact Taryn on 0448 883 758 or [email protected]
e) Attending the CCF Grand Ball in Perth. The next is hoped to be in May, 2022. f) If you are a member of the CCF community please get in touch. What is Cystic Fibrosis? In a nutshell, Cystic Fibrosis is a genetic condition which primarily affects the lungs and digestive system because of a malfunction in the exocrine system. This is the system responsible for producing saliva, sweat, tears and mucus. People with Cystic Fibrosis develop an abnormal amount of excessively thick mucus within the lungs, airways and the digestive system. The mucus impairs the digestive functions of the pancreas and traps bacteria in the lungs resulting in recurrent infections and irreversible damage. Lung failure is the major cause of death for someone with CF. Tragically, the life expectancy is currently 47 years but there is realistic hope of a much brighter future. Until then people with CF must undergo intense daily medical treatments and physiotherapy to stay alive. Fortunately, there is amazing research in the pipeline that we must continue to support to help people with CF grow old and experience all that is beautiful in life.
