Sapphire NF2 Drive

30/01/2025

28/12/2024

29/10/2024

https://www.facebook.com/share/14EH6dffb5/

The Children’s Tumour Foundation is the only Australian patient advocacy and support service for children, adults and families impacted by neurofibromatosis (NF), including schwannomatosis.

10/10/2024

Hello to all of Sapphires NCF page members, as you are all supporters of Sapphire in so many ways, we are letting you know that Sapphire will be going into Hospital at the beginning of December, the effects of her NF2 condition now require surgical intervention. Sapphire is preparing herself for this, and we ask that you avoid inundating her or Dee with questions, we have asked Sapphire to put a few words together to go on here if she would like to, so that you can hear from her more directly but it is entirely her decision as she already has much to think about. We will not post specific details of her surgery on here.
If you are not already in direct contact with Sapphire or Dee, and do wish to pass any messages on to Sapphire via this page, we can share them from here to her, we hope to be able to give you updates as she progresses, again if Sapphire is happy for us to do this, thank you for your understanding and continued support of our everyday hero, Sapphire.

22/09/2024

02/12/2023

Saturday 13th January 2024 is not to far away.
Registration for our Dice run will be from 9am with stands up at 10am. BJ'S snack shack will be at Towballs from 8.30 for breakfast. They will also be back at Towballs when we return for a late lunch. Where Gone Vinyl will kick off their live music from 2.30pm.
$1000 for best roll and $100 for worst roll.

13/10/2023

https://www.gofundme.com/f/sapphires-surgery-fund?utm_campaign=p_cp+share-sheet&utm_medium=social&utm_source=faceb
Thursday we received some hard knews about my tumours growing. 2 mm each on my audio, nerve tumours and in total they are now over 2 cm . They say we will have to operate within the next year or two. The surgery required comes at cost over $200,000 per tumour. thankyou to everyone around me for the support xx

Sapphire is my 14 year old sister. She was diagnosed with a rare incurable disease at the… Summer Monteleone needs your support for Sapphire’s Surgery Fund

04/06/2023

😊

This needs, and deserves, a drum roll or 2 🥁🥁👏🏻😊 Look what you did folks 👀 the monies raised through Sons of the Southern Cross - Adelaide South, organised fundraiser, and through Chris, (number one best Uncle 🏃🏼‍♂️), motivation, and motivating, fund raiser, has now taken the total in Sapphire Necessitous Circumstances Fund to..................👏🏻👏🏻👏🏻👏🏻🧬💜💙 Thank you doesn’t even touch what you have all done to get to this, but it does represent the love we all have for Sapphire 💜💙🧬😊