Epilepsy Tasmania

Epilepsy Tasmania Not-for-profit organisation providing education, services and support to Tasmanians with epilepsy What is Epilepsy? Epilepsy is not contagious.

Epilepsy Tasmania has been supporting Tasmanians with epilepsy
for over 45 years.

20,000 Tasmanians have epilepsy and this impacts around 80,000 of their family members, colleagues and friends - that’s one-fifth of Tasmania’s population! Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education

, coordination and support. Even in Tasmania, epilepsy still has a stigma that causes hurt and frustration: more than half have experienced discrimination as a result of their condition. If you have been diagnosed with epilepsy, Epilepsy Tasmania can help you:
- Communicate better with your medical specialist.
- Create an Epilepsy Friendly Workplace.
- Make your school Epilepsy Smart.
- Teach your family seizure first aid and medication administration.
- Establish valuable support systems.
- Live well with epilepsy. Epilepsy is a common brain condition that takes the form of recurring seizures. Epilepsy is not due to the effects of drugs or alcohol, although some onlookers may assume this is the case. Anyone can develop epilepsy and it can develop at any age.

1 in 25 Australians will develop epilepsy during their life.

1 in 10 will experience a seizure during their life.

Senate Inquiry into Epilepsy in Australia Update✏️ Public submissions have now closed, with more than 200 submissions re...
18/06/2026

Senate Inquiry into Epilepsy in Australia Update

✏️ Public submissions have now closed, with more than 200 submissions received from people, families, clinicians, researchers, and organisations across Australia.
Many submissions are still being progressively published by the Committee due to the significant volume received.

A public hearing is scheduled for 26 June 2026, with the final report expected in September.

Epilepsy Tasmania is proud to have contributed a submission informed by the experiences of our community and remains committed to advocating for meaningful reforms that improve outcomes for people living with epilepsy.

Thank you to everyone who shared their experiences, insights, and expertise throughout this important process.

We will share updates on hearings, findings, and recommendations through our website, social media channels, and newsletters as they become available.

👉 Submissions can be viewed at: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

Would you like to help improve support for people using dietary therapy for epilepsy?Monash University researchers are i...
16/06/2026

Would you like to help improve support for people using dietary therapy for epilepsy?

Monash University researchers are inviting adults living with epilepsy, family members, carers, support people and dietitians to take part in an important study exploring the supports that help people follow dietary therapies, such as the ketogenic diet.

If you are over 18 and have experience with dietary therapy for epilepsy, either personally, as a carer, or professionally as a dietitian, your voice and experiences could help shape future supports for individuals and families living with epilepsy.

By sharing your insights, you can contribute to research that aims to better understand what works, what challenges people face, and how support can be improved for our community.

If you would like to take part in this Monash University study, please see the flyer below for further information and details on how to participate.

bit.ly/support_keto

As 30 June approaches, many people choose to make a tax-deductible donation to support causes they care about. If you ar...
11/06/2026

As 30 June approaches, many people choose to make a tax-deductible donation to support causes they care about. If you are in a position to do so, a gift to Epilepsy Tasmania will help us continue providing practical support, trusted information, education and advocacy across our state.

No matter the size, every contribution helps create lasting impact for people living with epilepsy and those who support them.

Most importantly, thank you for being part of our community. Your support, encouragement and belief in our work mean more than words can express.

Together, we are building a Tasmania where people living with epilepsy are understood, supported and empowered to live their best lives.

https://myimpact.epilepsytasmania.org.au/eofy-pass-the-hat?preview=true

Thank You.

Do you have 2 minutes? Your feedback is important to us and could win you the Prize Package below.https://www.surveymonk...
11/06/2026

Do you have 2 minutes?

Your feedback is important to us and could win you the Prize Package below.

https://www.surveymonkey.com/r/5ZB2BH2

Thank you for enabling us to better serve you.

What a great morning we had at Hope Discovery Playgroup today at the Door Of Hope Centre to mark the annual celebration ...
11/06/2026

What a great morning we had at Hope Discovery Playgroup today at the Door Of Hope Centre to mark the annual celebration of "International Day of Play" in Launceston.
Using Epilepsy Tasmania's recognisable purple colour, both children and adults had fun with our "purple" playdough and finding hidden treasures in the purple paper.
It's always great to connect with the wider community and to raise awareness of epilepsy.

🌟 Excited to join the fun! Epilepsy Tasmania will be at the free Community Play Date Thursday 11 June, 10:00–11:30am at ...
04/06/2026

🌟 Excited to join the fun!
Epilepsy Tasmania will be at the free Community Play Date Thursday 11 June, 10:00–11:30am at Kids’ Space, Hope Discovery Family Centre, Door of Hope, Glen Dhu Street, Launceston
We'll have some fun activities for the children, together with many other organisations, so come along. We’d love to chat and celebrate International Day of Play with you. The theme for 2026 is Protect Play, Protect Childhood 🧩✨

🚨 LAST DAY TO HAVE YOUR SAY 🚨Submissions to the Senate Inquiry into Epilepsy close TODAY 15 May 2026!This is your chance...
15/05/2026

🚨 LAST DAY TO HAVE YOUR SAY 🚨
Submissions to the Senate Inquiry into Epilepsy close TODAY 15 May 2026!
This is your chance to help shine a light on:
🟣 Delays in diagnosis
🟣 Gaps in support
🟣 NDIS challenges
🟣 Medication impacts
🟣 The real impact epilepsy has on everyday lives
Every submission is read.
Every story matters.
Let your voice be heard.
Make epilepsy impossible to ignore.
Share YOUR story!
📩 Submit today:

https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

🚨 Don’t Miss this Pivotal Moment for Epilepsy in Australia 🚨Submissions close tomorrow — Friday, 15 May 2026.This is a r...
13/05/2026

🚨 Don’t Miss this Pivotal Moment for Epilepsy in Australia 🚨

Submissions close tomorrow — Friday, 15 May 2026.

This is a rare and meaningful opportunity to help shape how epilepsy is understood, supported, and prioritised in Australia.

Every submission is read and counted and helps build a clearer picture of what people are experiencing:

🟣 The real stories
🟣 The daily challenges
🟣 The delays in diagnosis
🟣 The gaps in support
🟣 The impact on families, work, and quality of life
🟣 Where the system is falling short
🟣 What needs to change
🟣 NDIS shortfalls
🟣 Medication impacts

The Senate wants to hear YOUR story.

It is an official Senate Inquiry where every submission is read and counted.

If epilepsy has affected you, your family, your work, or your community — this is your chance to speak up and help create change.

What to do: For full details and information on how to structure your story visit https://epilepsytasmania.org.au/

Ready to submit? Email your story directly to the Senate by visiting
https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

Don't miss this opportunity to make epilepsy impossible to ignore.


ONLY 2 DAYS TO GO! Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026. This is a rare and me...
13/05/2026

ONLY 2 DAYS TO GO!

Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026.
This is a rare and meaningful opportunity to shape how epilepsy is understood, supported, and prioritised in Australia.
Every submission is read and counted and helps build a clearer picture of what people are experiencing:

🟣 The real stories
🟣 The daily challenges
🟣 The delays in diagnosis
🟣 The gaps in support
🟣 The impact on families, work and quality of life
🟣 Where the system is falling short
🟣 What needs to change
🟣 NDIS shortfalls
🟣 Medication impacts

The Senate wants to hear YOUR story

❌This is NOT a petition or survey. It is an official inquiry where every submission is read and counted.

👉 What to do: For full details and information on how to structure your story visit https://epilepsytasmania.org.au/
📧 Ready to submit? Email your story directly to the Senate by visiting https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia
Don't miss this opportunity to make epilepsy impossible to ignore.

Address

Unit 10/31 Thistle Street
Launceston, TAS
7250

Opening Hours

Monday 8am - 4pm
Tuesday 8am - 4pm
Wednesday 8am - 4pm
Thursday 8am - 4pm

Telephone

+61363446881

Website

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