Save Our Sons Duchenne Foundation

Save Our Sons Duchenne Foundation Save Our Sons was founded in 2008 and is now the peak body for those living with Duchenne and Becker

Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy. Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular

dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy. Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker
muscular dystrophy across Australia. Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.

Tomorrow's the night. ✨💙The countdown is almost over.Tomorrow, we'll come together for an unforgettable evening in suppo...
20/08/2026

Tomorrow's the night. ✨💙

The countdown is almost over.

Tomorrow, we'll come together for an unforgettable evening in support of everyone living with Duchenne muscular dystrophy. A night to celebrate our community, hear powerful stories and raise vital funds that help make a difference.

To everyone joining us, thank you. We can't wait to welcome you.

See you tomorrow! 💙

One week to go! 💙In just seven days, we'll gather for the 2026 Save Our Sons Sydney Gala.Every person in the room helps ...
14/08/2026

One week to go! 💙

In just seven days, we'll gather for the 2026 Save Our Sons Sydney Gala.

Every person in the room helps bring hope to families living with Duchenne and Becker muscular dystrophy. Thank you for standing with our community. We can't wait to share the evening with you.

Meet Doug 👋Doug lives with advanced Duchenne muscular dystrophy.His passion for the arts has shaped much of his life. As...
12/08/2026

Meet Doug 👋

Doug lives with advanced Duchenne muscular dystrophy.

His passion for the arts has shaped much of his life. As President and Artistic Director of Tropical Arts, Doug has helped build an inclusive theatre community while bringing creative productions to life.

That passion has also led to opportunities beyond the stage. From writing grant applications and reviewing theatre productions to contributing to accessibility workshops, Doug continues to use his skills and lived experience to make a difference.

"Reviewing or being a critic is also part of my skill set."

Thank you, Doug, for sharing your story with us. 💙

Walk 4 Duchenne is heading to Sydney in 2027! 💙We’d love to see schools and communities across Sydney get involved.Expre...
10/08/2026

Walk 4 Duchenne is heading to Sydney in 2027! 💙

We’d love to see schools and communities across Sydney get involved.

Expressions of Interest are now open for schools interested in being part of the 2027 route, helping us raise awareness and support the Duchenne community along the way.

As we plan the route, we’ll be working to include as many schools as possible. For those we can’t visit, there will still be plenty of ways to take part, from joining us for part of the walk to coming along to our Family Fun Day, planned for Sunday, 28 February 2027.

Expressions of Interest close Friday, 28 August 2026.

Register your school’s interest: https://form.jotform.com/262100858244049

Just two weeks to go. 💙The countdown is on until the 2026 Save Our Sons Sydney Gala.We'll soon come together for an even...
07/08/2026

Just two weeks to go. 💙

The countdown is on until the 2026 Save Our Sons Sydney Gala.

We'll soon come together for an evening of connection, celebration and fundraising in support of people living with Duchenne and Becker muscular dystrophy.

Can't wait to see you there!

A look back at last year's Save Our Sons Sydney Gala Dinner. 💙From heartfelt conversations to plenty of laughter, it was...
05/08/2026

A look back at last year's Save Our Sons Sydney Gala Dinner. 💙

From heartfelt conversations to plenty of laughter, it was a night that brought our community together in support of people living with Duchenne and Becker muscular dystrophy.

Join us on Friday, 21 August 2026 at Le Montage as we come together once again to celebrate our community and raise vital funds for research, advocacy and support.

There are still a few remaining tables available, don’t miss out. Learn more via the link in bio.

29/07/2026

Meet Jack 💙

When we caught up with Jack and his mum, Michelle, one thing became very clear: encouraging self-direction and a sense of purpose from a young age can make a world of difference.

Jack is a brilliant example of this. From designing and selling clothing on Depop to creating music, building Mad Max-inspired cosplay (complete with a red mohawk inspired by Wez!) and exploring his creativity in countless ways, he's built a life centred around his passions.

Duchenne is one part of Jack's story, but it doesn't define who he is.

27/07/2026

Getting a first job as a teenager doesn't always look the same.

For some young people living with Duchenne, traditional part-time jobs may not be accessible or practical. That doesn't mean they lack the skills, ambition or desire to contribute.

Recently, we caught up with Charlie and his mum, Kristy, following Charlie's internship with . The experience gave Charlie the opportunity to explore his passion for geology, gain valuable workplace experience and build confidence for the future.

Charlie's story is a reminder that when employers create accessible pathways and focus on potential, everyone benefits.

There are still many misconceptions about Duchenne muscular dystrophy.Some people assume a diagnosis means there's nothi...
24/07/2026

There are still many misconceptions about Duchenne muscular dystrophy.

Some people assume a diagnosis means there's nothing that can be done. Others believe Duchenne only affects muscles, only impacts childhood, or defines what someone can achieve in life.

The reality is far more nuanced.

Today, people living with Duchenne are pursuing their education, careers, interests and goals, while advances in care, research and treatment continue to improve outcomes and quality of life.

Awareness starts with understanding.

Research progress is built through collaboration.At Save Our Sons, we're committed to supporting research, advocating fo...
22/07/2026

Research progress is built through collaboration.

At Save Our Sons, we're committed to supporting research, advocating for better outcomes and keeping our community informed about credible developments across the Duchenne research landscape.

This month, we're highlighting SGT-003, one of several investigational therapies currently being evaluated in clinical trials. The latest update includes encouraging progress from the INSPIRE DUCHENNE Phase 1/2 study and the commencement of the global IMPACT DUCHENNE Phase 3 trial, with Australia among the participating countries.

While SGT-003 remains an investigational therapy and further research is required, milestones like these contribute to our growing understanding of potential future treatment options and demonstrate the continued momentum across Duchenne research worldwide.

We'll continue supporting research, sharing trusted updates and advocating for improved outcomes for everyone living with Duchenne.

Address

Shop 3/570 New Canterbury Road
Hurlstone Park, NSW
2193

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+61295546111

Website

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