Muscular Dystrophy Tasmania

04/09/2026

Remembering Clarence & Leon Strochnetter 🧡

Sometimes a donation is about much more than raising money. It is about remembering someone, honouring their life and continuing a legacy.

We were recently contacted by Sharnie Strochnetter, the niece of Clarence and Leon Strochnetter, who has created an In Memory donation page for Muscular Dystrophy Tasmania in honour of her uncles.

Clarence and his younger brother, Leon Charles, shared more than a family bond. Both lived with muscular dystrophy, and both were important members of their family and community. Today, Sharnie is helping keep the memory of both her uncles alive by sharing their story and honouring their lives through this special donation page.

Clarence was a passionate community member, musician and disability advocate who dedicated much of his life to improving opportunities, accessibility and understanding for people with disability.

His contribution to the community was recognised with the Medal of the Order of Australia in 1979, and he served as both Secretary and Chairman of Disabled People International.

His legacy can still be found in Tasmania today.

In 1994, the Goblin Forest Walk in the Blue Tier was dedicated to Clarence in recognition of his work raising awareness for people with disabilities. His story continues to be recognised through interpretive signage along the walk.

Two brothers. One family. A story that continues to be remembered.

We are incredibly grateful to Sharnie for choosing to honour her uncles by supporting people living with muscular dystrophy and other neuromuscular conditions through MDT.

Their story reminds us that a legacy continues through the people who remember, the causes they support and the difference they help make for others.

If you would like to Donate in memory of Clarence & Leon, you can make a donation in their memory through Sharnie’s page:

https://inmemory.go-orange.com.au/page/InLovingMemoryofmy2Uncles

Clarence Strochnetter 🧡
22 September 1938 – 28 August 1991

Leon Charles Strochnetter 🧡
22 May 1944 – 15 February 1987

Muscular Dystrophy is a group of genetic diseases that causes progressive muscle weakeness and loss of muscle mass over time.I am rasing funds for Muscular Dystrophy, as 2 of my Uncles had MD so any amount will be good and aslo share please.

04/09/2026

We would like to thank the Maria Island Cruises team for their valued community support given to our organisation and wish you well in your next chapter of life.
Great people.

04/09/2026

Lunch or dinner plans this weekend? Why not make it a Grill’d one!

Head to Grill'd North Hobart, grab your favourite burger and look out for the Muscular Dystrophy Tasmania Local Matters jar 🧡

Got a token? Drop it in our jar!

Every token helps support Tasmanians living with muscular dystrophy and other neuromuscular conditions.

Burger + token + MDT = A combination made for each other! 🍔🧡

04/09/2026

We’re proud to help spread the word about the wonderful work Variety the Children's Charity TAS does for Tasmanian children and families ❤️

Their Christmas Carols are a beautiful way to bring the community together for a day and night of festive fun 🎄✨️

📅 Saturday 19 December
📍 Tolosa Park

Tickets are on sale now: https://tas.variety.org.au/our-events/

SING IT LOUD! Variety is bringing a double dose of Carols this Christmas! 🎄🎶

Tickets are NOW ON SALE for Variety Kids Carols and Variety Carols by Candlelight, happening back-to-back at Tolosa Park on Saturday 19 December.

Variety is bringing both events back thanks to the support of Glenorchy City Council, John X Presents and 7hofm.

Variety Kids Carols takes off at 11am thanks to Hobart Airport, with a fun-filled daytime celebration perfect for families with little ones. 🎅

Then, as the sun goes down, the much-loved Variety Carols by Candlelight takes over from 8pm for a big night of Christmas music and festive favourites, proudly brought to you by Harvey Norman Cambridge, Moonah and Hobart City. ✨

After tickets were snapped up quickly last year, we’re giving you plenty of time to lock in your Christmas plans.🎟️👉 https://tas.variety.org.au/our-events/

02/09/2026

ParaQuad Association of Tasmania Inc. Her path to play wheelchair basketball is coming to Devonport this October 💙

ParaQuad Association of Tasmania Inc. is bringing Her Path to Play Wheelchair Basketball to Devonport, for women and girls (12+, with parent or carer). No experience needed, everything is supplied, including sports wheelchairs 🏀👩‍🦽

It's more than a sport session. It's a chance to connect, build confidence, and be part of a supportive community. Coached by Katherine Reed, drawing on her own lived experience in adaptive sport.

📍 Devonport Recreation Centre
🗓️ Saturday 10 October, 10am to 2pm
👉 Register: https://events.humanitix.com/her-path-to-play-wheelchair-basketball-devonport

Funded through the Community Support Fund (CSF), Tasmanian Government.

01/09/2026

September is CMT Awareness Month 💙

Charcot-Marie-Tooth (CMT) is a group of inherited conditions that affect the peripheral nerves - the nerves that connect the brain and spinal cord to the rest of the body.

CMT can affect things like muscle strength, sensation, balance and mobility, and because symptoms can vary so much from person to person, it’s a condition that many people may know very little about.
That’s why awareness matters.

This month, we’re encouraging our community to take the opportunity to learn a little more about CMT and share that knowledge with others.

➡️ Follow CMT Australia on Facebook for CMT Awareness Month information, stories and updates.
➡️ Learn more at CMT Australia: https://cmtaustralia.org.au/

A little more understanding can make a big difference 💙

September is CMT Awareness Month. So throughout the month we’re going to make you aware of CMT...seems logical. By the end of the month you should be a walking, talking encyclopaedia (or search engine) on all things CMT. So to start, CMT stands for Charcot Marie Tooth disease and is a neurological condition named after the 3 physicians who first described it in 1886 — Jean-Martin Charcot and Pierre Marie of France, and Howard Henry Tooth of the United Kingdom.

01/09/2026

Order up and make a difference today 🧡

We’re excited to be one of the local charities featured on Grill'd North Hobart's Local Matters jar for the month of September 🍔

Grab a burger, enjoy your meal, and when you receive your Local Matters token, drop it in the Muscular Dystrophy Tasmania jar! 🪙

It’s a small token that can make a BIG difference.

Every vote helps support MDT and our work with Tasmanians living with muscular dystrophy and other neuromuscular conditions.

So next time you’re thinking “What’s for lunch or dinner?”… Think Grill’d!

And don’t forget to tell your family, friends and workmates to get involved too and help us fill the jar. Even post a photo on your socials tagging Grill'd North Hobart & Muscular Dystrophy Tasmania to help spread the word!

31/08/2026

September is Muscular Dystrophy Awareness Month 💚

September is a time to raise awareness, build understanding and shine a light on the people and families living with muscular dystrophy and other neuromuscular conditions.

Behind every diagnosis are real people, real families and real stories.

At Muscular Dystrophy Tasmania, our community is at the heart of everything we do. We’re here to provide support, connection, information and advocacy, while working to ensure Tasmanians living with muscle-weakening conditions have a stronger voice.

This September, we’re asking our community to support the work we do. Your donation helps MDT continue being there for individuals and families across Tasmania.

Donate and make a difference today:
https://fundraising.go-orange.com.au/ 🧡

29/08/2026

Our voices matter 🧡

The NDIA is looking for people with disability aged 18+ to help test a new approach to NDIS planning and share their lived experience.

It’s an opportunity to make sure the people who use the NDIS are heard and have a say in how planning is shaped. Participants will be paid for their time.

Find out more and register: engage.ndis.gov.au/testplanning

Save Our Sons Duchenne Foundation 💙

People with lived experience should have a voice in shaping the systems that support them.

The National Disability Insurance Agency is seeking people with disability aged 18+ to help test a new approach to NDIS planning. Participants with different disability types, support needs and experiences are being invited to take part and provide feedback on the planning process.

For the Duchenne community, opportunities to contribute lived experience are an important part of ensuring disability supports reflect the needs of the people who rely on them.

Participants will be paid to take part.

Learn more and register at engage.ndis.gov.au/testplanning

28/08/2026

Empower Golf Australia inclusive sessions give people living with disability the opportunity to experience adaptive golf in an inclusive and supportive environment, guided by trained PGA professionals.

It’s also a fantastic way to connect with the growing Empower Golf community, meet new people and enjoy a shared passion for the game.

September sessions in Tasmania:

➡️ 10 September – Riverside Golf Club
➡️ 24 September – Devonport Country Club
➡️ 28 September – Golf Park Hobart

Find out more & to register - https://empowergolf.com.au/play/golf-clinics/