Sophia's story

Sophia's story Sophia Grace was born with the rare genetic condition Aperts Syndrome. Raising awareness of Sophia & others that are effected by rare genetic conditions

Sophia’s first school camp 🥰
13/11/2025

Sophia’s first school camp 🥰

So I know it’s been soooo long since we have updated Sophia Story but Sophia has been living her best life, we got throu...
26/02/2025

So I know it’s been soooo long since we have updated Sophia Story but Sophia has been living her best life, we got through surgery and her face changed so much! We got the frame off just before Christmas and then Sophia got her trachie out in January just in time to celebrate her 11th birthday finally trachie free 🥰.
We then went on a 2 week holiday to Queensland to visit our family and then came back and started our school year with Sophia starting grade 5. Holey moley where are the years going?? Fast forward to Monday when we got an email to say the kids were all accepted into a new school closer to home. We picked up the new uniforms today and just had to try them all on straight away! So much excitement!
And on Monday will be there first day 😍

Wish us luck that they have the best day ever! 🤞🏻

Address

Hobart, TAS

Website

Alerts

Be the first to know and let us send you an email when Sophia's story posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share