Perry Cross Spinal Research Foundation

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Perry Cross Spinal Research Foundation The Perry Cross Spinal Research Foundation funds key medical research that aims to find a cure for spinal injuries.

Perry established the Perry Cross Spinal Research Foundation in 2010 to fill a gap left by the passing of Christopher Reeve, to raise funds to find a cure for paralysis.
“When Christopher Reeve passed away we lost a friend and also our spokesperson, our figurehead. That was my inspiration to start the Perry Cross Spinal Research Foundation.” - Perry Cross
The Perry Cross Spinal Research Foundation was formed out of a need to have someone who was willing to speak out and remind the public about the usually-hidden cause of people suffering paraplegia and quadriplegia.

True impact happens at the intersection of purpose and genuine human connection - a truth that shines throughout this co...
14/10/2026

True impact happens at the intersection of purpose and genuine human connection - a truth that shines throughout this compelling profile of Philanthropy Manager, Jen Hutchings, as she helps bring hope closer for families affected by paralysis.

As part of their 'Women with Impact' series, long-time Foundation supporter Fleur Collective is shining a light on incredible women driving real change. For over two decades, Jen has dedicated her career to the not-for-profit sector. Today at the Perry Cross Spinal Research Foundation, she builds meaningful relationships with generous supporters to help turn groundbreaking research into a reality for those living with paralysis.

Jen's story is a beautiful reminder that when you align your career with your values, work becomes a lifelong contribution to a better future.

Read Jen’s story: https://fleurcollective.com.au/blogs/blog/jen-hutchings-perry-cross-foundation

The Griffith University Spinal Injury Project in partnership with PCSRF held a series of lab tours as part of the 2026 G...
13/10/2026

The Griffith University Spinal Injury Project in partnership with PCSRF held a series of lab tours as part of the 2026 Gold Coast Open House program.

Gold Coast Open House gives the community a rare, behind-the-scenes look into the city’s most remarkable architecture, design, and spaces - opening doors to places not normally accessible to the public.

This year's program included opening the doors for 3 dedicated lab tour sessions at the Clem Jones Centre for Neurobiology and Stem Cell Research at Griffith University Gold Coast Campus.

Across the sessions, 25 community members, including one dedicated guest who traveled all the way from Sydney, got an exclusive look at the groundbreaking spinal cord injury (SCI) research happening right here at Griffith University on the Gold Coast. We truly appreciate the vital platform this event provided to raise awareness for SCI and the life-changing science being driven by the Spinal Injury Project (SIP) team.

A special thank you to the brilliant researchers for making complex science so engaging and accessible, and to Cure Crusader Ambassador, Lindsay Nott, for helping host the guests.

Thank you Gold Coast Open House for bringing our community closer to local, world-changing research and design! 🏛️🔬

"We thank you and the research team who thoughtfully explained and translated complex world-leading medical science into a delightful and engaging experience for the community attendees. They all did an amazing job. This is a story that many more should know about - locally, regionally, and nationally. Groundbreaking impactful achievement right here on the Gold Coast." ~ Jack Bryce, Gold Coast Open House event volunteer


MyC5life

10/10/2026

Celebrating Carers Week ~ 11–17 October

This Carers Week, the theme is Making Carers Visible.

For people living with paralysis, carers and support workers can be essential to everyday life - supporting personal care, mobility, independence and participation in the community.

Their impact goes far beyond practical support. They help make choice, dignity and connection possible. 🤝

Let’s recognise, value and celebrate the incredible contribution carers make every day.

🎥 Take a listen to Cure Crusader Ambassador Lindsay Nott as he shares what having a carer means to him.

MyC5life

Researchers at UNSW are conducting a research project that aims to gather early feedback from people who live with a spi...
08/10/2026

Researchers at UNSW are conducting a research project that aims to gather early feedback from people who live with a spinal cord injury or have experience with spinal cord injuries (clinicians, carers, family and friends) on the design of a proposed multimodal rehabilitation system for spinal cord injury.

Participation would involve watching an explanatory video and answering a few
questions about the proposed concept. The purpose of the study is to understand the needs, preferences, and concerns of people affected by spinal cord injury in order to inform usercentred system design.

The research project is looking for people who want to take part in this research and who are:
📍Are 18 years of age or older
📍Are able to read and understand English sufficiently to complete an online survey
📍Are able to provide informed consent electronically
📍Self‑identify as one of the following groups:
o A person with spinal cord injury (SCI)
o A clinician with professional experience working with people with SCI
o A carer of a person with SCI
o A family member of a person with SCI
📍Have access to an internet‑enabled device to complete the online survey

Participants are not required to have prior experience with virtual reality, robotic rehabilitation systems, or spinal stimulation technologies.

Participation in this research is completely voluntary. There is no obligation to take part, and your decision to participate or not participate will have no impact on any services, care, or professional relationships.

Taking part involves watching a short video and completing a single online survey. The survey will take approximately 15–20 minutes to complete. A full description of the research activities, potential risks, and any possible discomforts can be found by selecting the link below.

Once you click the link, you will be asked to read the Participant Information Statement and provide your consent before proceeding to the survey.

👉Survey: https://unsw.au1.qualtrics.com/jfe/form/SV_bQRtPZzMWQYkihg
👉Participant Information Statement: https://unsw-my.sharepoint.com/:b:/r/personal/z5358465_ad_unsw_edu_au/Documents/PISCF%20Online%20Surveys%20and%20Measures.pdf?d=w866b614f3c4a4e1facf814aa9cac4559&csf=1&web=1&e=WNIOnb

UNSW

07/10/2026

Tables are selling fast for the ‘Everything Is Possible’ Gala Dinner, presented by Prestige Automotive Group - Gold Coast! 🥂✨

Get ready for an unforgettable night of elegance, inspiration, impact and a whole lot of fun at The Star Gold Coast on Saturday, 13th March 2027, all to raise vital funds for life-changing spinal injury research.

⏳ Early Bird tickets are available now! Lock in your discounted rate before 1st November 2026.

Don’t miss out on being part of something truly powerful.

👉 Secure your table or tickets now: https://gala-dinner-2027.raiselysite.com/

Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at e...
06/10/2026

Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with neurological conditions including Spinal Cord Injury / Multiple Sclerosis / Motor Neuron Disease / post Stroke and living with oedema, lymphoedema or swelling.

You have been invited to participate because our research team believe that you may fulfil our criteria as an individual living with Spinal Cord Injury / Multiple Sclerosis / Motor Neuron Disease / post Stroke.

The information collected from your lived experience will provide valuable insights and be the first step toward establishing future prevalence data, education, and earlier monitoring for oedema, and toward developing suitable intervention strategies.

If you are eligible and agree to participate, you will be asked to complete a one-off online survey that will take approximately 10-15 minutes to complete. The survey contains short questions gathering basic information about you, how the spinal cord injury / multiple sclerosis /motor neuron disease / post stroke affects you, about your experience with oedema, lymphoedema or swelling (if any) and what management strategies you may have used.

If you wish to participate in the study, please click the link below to view the patient-informed consent form and begin the survey.

If you have any questions or would like more information, please contact: Emily Muldoon, [email protected]

👉https://mquni.au1.qualtrics.com/jfe/form/SV_4JEgvdh2NX746WO

🔬 Ever wondered what goes on inside a world-class research lab? Now’s your chance to find out! 🧠✨As part of Gold Coast O...
30/09/2026

🔬 Ever wondered what goes on inside a world-class research lab? Now’s your chance to find out! 🧠✨

As part of Gold Coast Open House, you’re invited to explore the city’s most remarkable architecture, urban design, and places of cultural and scientific significance. The Clem Jones Centre for Neurobiology and Stem Cell Research is one of the chosen buildings featured this year! 🏛️🔬

📅 On October 7th, there will be tours taking place at 10am, 11am and 12pm.

Why not drop by, explore the lab, and meet the passionate Spinal Injury Project team behind the groundbreaking work at Clem Jones Centre for Neurobiology and Stem Cell Research at Griffith University!

👉 Take a tour and see science in action. Bookings available here: 🔗 https://rb.gy/jx0lhw

Gold Coast Open House

🌟 Calling all businesses & local legends! 🌟Preparations are underway for our upcoming Brisbane Legends Lunch, and we’re ...
30/09/2026

🌟 Calling all businesses & local legends! 🌟

Preparations are underway for our upcoming Brisbane Legends Lunch, and we’re on the hunt for exciting prizes, unique experiences, and gift vouchers for our live and silent auctions! 🏆✨

By contributing, your business gains exposure to our amazing network of supporters and will be featured in the official event program and digital auction platform.

Want to see what the event is all about? Check out last year’s highlights here: 🔗 https://www.pcsrf.org.au/2025-brisbane-legends-lunch/

Can you or a business you know help us make this year’s auction bigger than ever?

📩 Please reach out to us directly at: [email protected]

Every donation helps towards a cure for paralysis.

Thank you for your support! 🙌

🆘 SOS: Save Our Skin! 🆘This year's theme for Wound Awareness Week is Save Our Skin. Did you know roughly 450,000 Austral...
29/09/2026

🆘 SOS: Save Our Skin! 🆘

This year's theme for Wound Awareness Week is Save Our Skin. Did you know roughly 450,000 Australians live with chronic, hard-to-heal wounds?

From 28th Sept - 4 Oct, Wound Awareness Week aims to shine a light on an issue that affects hundreds of thousands of individuals and families.

A wound shouldn't be ignored. If a wound isn't healing after 4 weeks, it's time to seek specialist advice.

Early intervention saves lives and prevents long-term complications.

🩹❤️👇 Tag someone who needs to see this or share to spread the word!

24/09/2026

29 years ago this week I boarded a plane for the United States after being told it wasn’t safe.

The doctors at the time were genuinely concerned. There weren’t many people living with a C2 ventilator dependent injury out in the community, let alone flying that far. The risks were real. A few people in similar situations had travelled, but it was still seen as a leap.

Getting there meant the practical side, power, medical clearances, the ventilator, and the decision to go when the advice was to stay home. None of it happens without the small team who came with me. Their skill, patience and belief turned a difficult idea into a working trip. I’ve included a photo of that team from the time.

We attended the 52nd United Nations General Assembly. I was there as a guest delegate of Alexander Downer, Australia’s Foreign Minister then. He addressed me at the UN. I’ve still got the old dog tag security pass from that visit. The photos from the UN building still surprise me.

Not long after that we met Christopher Reeve at the World Trade Center. I only met Dana Reeve briefly, but in that short time her nature was obvious. She was caring and considerate. She was genuinely interested in how I had made the journey, said Christopher would be so impressed, and was inspired by the persistence it had taken. That’s what led her to organise the meeting.

Today, 25 September, also marks what would have been Christopher’s birthday. He is missed as a figurehead and advocate for spinal cord injury research and treatment. His voice, his push for science to move faster, and the platform he built still matter. He is not forgotten.

That 1997 trip was never just the meetings or the photos. It was the relationships that started there. Those connections became part of the foundation for the research work that followed, the work we are still doing.

Dreams are easy. Making them real takes effort, timing, and a willingness to move when people tell you not to. Sometimes you have to take the leap. Sometimes you have to stay focused when the doubt turns up.

That week in 1997 didn’t change the injury. It changed the trajectory. The photos from the UN, the World Trade Center, the team who made the trip possible, and the date that comes around every September are a reminder that the first step was simply getting on the plane.

Everything is possible. But only if you put the work in after you decide it is.

Christopher & Dana Reeve Foundation

Address

PO Box 8244, GCMC
Gold Coast, QLD
9726

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