07/09/2025
September 7th Our boy Zack 💙🎈
🎈 WORLD DUCHENNE AWARENESS DAY 🎈
FAMILY: THE HEART OF CARE is the theme of the 2025 World Duchenne Awareness Day. The theme is to highlight the role of family members for people living with Duchenne Muscular Dystrophy.
Living with Duchenne Muscular Dystrophy (DMD) is a journey marked by both physical challenges & emotional resilience. At the center of this journey is family. The love, support & daily involvement of family members play a vital role, not just in caregiving, but in shaping the quality of life & emotional well-being of those living with DMD.
For a person with Duchenne, parents are often their fiercest advocates & most devoted caregivers; siblings are companions & lifelong friends; grandparents, uncles & aunts are a steadying presence. Family can also be the community where people live in an inclusive way.
World Duchenne Awareness Day is held on the 7/9 in recognition of the 79 exons of the Dystrophin gene. A small genetic fault in 1 of these exons is all it takes to cause Duchenne Muscular Dystrophy.
The Duchenne journey isn't easy but with the amazing support from our families; whether that be blood family or chosen family this life is made a little bit easier.
DUCHENNE MAY CONTROL US BUT IT DOES NOT DEFINE US!!!
