Hope for Jobe: Sanfilippo Children's Foundation

13/10/2026

Balance..
And can you hear Jobe in the background over the music 🤣

09/10/2026

Our Tate.
Twin bro.
Born 1 minute earlier than Jobe ~ and he'll remind you 🤣
This is their relationship to a tee.
Through change, through grief, through transition..
Tate doesn't falter with Jobe.
And we are so blessed to experience an unconditional love and loyalty like a twin bond, plus some.
I've never regretted a moment of how our babies have turned out, with what is in our control, we made it, when it comes to them ❤️

01/10/2026

Nothing better than your hand in mine ❤️

30/09/2026

School holidays with nanna 🤣🤣

28/09/2026

A weekend well spent with 10 kids, 7 adults and mums first single parent adventure with water sports , equipment and no idea what I was doing.
We survived..
We thrived..
We filled our cups and the village is real!
Thank you to all my twin fams who just step in and never a judgment is made ❤️

22/09/2026

Tomorrow is childhood dementia day!
All donations will be doubled!

We can't wait

https://www.childhooddementia.org/we-cant-wait

17/09/2026

Incredible progress in the USA, let's hope Australia isn't too far behind 🙏🏼

The U.S. Food and Drug Administration today approved Fayuvi (rebisufligene etisparvovec-hopf), the first treatment for pediatric patients with mucopolysaccharidosis type IIIA (MPS IIIA), also known as Sanfilippo syndrome type A.

10/09/2026

19/08/2026

There are moments I wish I could bottle up and keep forever.

This is one of them. 🤍

Hearing Jobe say, “I love you, Mum” and “I love Tate” might seem like such a simple thing. But to me, these words are everything.

Because one day, I know I won’t hear them anymore.

And I never want to forget the sound of his voice saying them. I never want to forget the way he loves his brother, or the beautiful little moments that feel so ordinary now but will one day mean absolutely everything.

I know there are parents walking this same road who never got to hear those words from their child. That thought breaks my heart.

So I will hold these words close. I will carry them with me for the rest of my life.

“I love you, Mum.”
“I love Tate.”

Three little words that I will treasure for as long as I live.

My beautiful Jobe.
I am so incredibly grateful that I get to hear you say them. 🤍