Cooper Rice-Brading Foundation

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Preserving Cooper’s legacy, and realising his vision of generating critical funding for sarcoma research; promoting awareness & early diagnosis; whilst supporting those living with sarcoma & their families

23/08/2026

Cooper Laine Rice-Brading
22nd January 1999 - 24 August 2017

Coops. A love no time or distance can touch. Forever and always...

Yesterday marked a very special occasion, as Simone Daher’s extraordinary 20 years of service to seriously ill children ...
23/08/2026

Yesterday marked a very special occasion, as Simone Daher’s extraordinary 20 years of service to seriously ill children and their families through Ronald McDonald House Australia was celebrated by colleagues, family and friends.

Simone has spent the past nine years as CEO of Ronald McDonald House Sydney . Her outstanding career has been defined by compassionate leadership and an unwavering commitment to families facing the unimaginable.

Among the many children and families supported by Ronald McDonald House Australia each year are a significant number affected by sarcoma. We know firsthand how invaluable this practical care, compassion and sense of community can be during an unimaginably difficult time.

The work undertaken by Simone and her colleagues extends far beyond providing accommodation. They give families a safe and welcoming home close to their child’s hospital care, prepare meals, support siblings and provide practical and emotional comfort during days filled with fear and uncertainty. Most importantly, they help keep families together when being together matters most.

The celebration, thoughtfully arranged by another legend of this landscape with the CEO of Ronald McDonald House Greater Western Sydney , Clare Barber, was a fitting recognition of Simone’s profound contribution.

Congratulations, Simone. Twenty years devoted to caring for some of our most vulnerable children and their families is an extraordinary legacy, and one of which you should be immensely proud. ❤️

Yesterday marked a very special occasion, as Simone Daher extraordinary 20 years of service to seriously ill children an...
23/08/2026

Yesterday marked a very special occasion, as Simone Daher extraordinary 20 years of service to seriously ill children and their families through Ronald McDonald House Australia was celebrated by colleagues, family and friends.

Simone has spent the past nine years as CEO of Ronald McDonald House Sydney . Her outstanding career has been defined by compassionate leadership and an unwavering commitment to families facing the unimaginable.

Among the many children and families supported by Ronald McDonald House Australia each year are a significant number affected by sarcoma. We know firsthand how invaluable this practical care, compassion and sense of community can be during an unimaginably difficult time.

The work undertaken by Simone and her colleagues extends far beyond providing accommodation. They give families a safe and welcoming home close to their child’s hospital care, prepare meals, support siblings and provide practical and emotional comfort during days filled with fear and uncertainty. Most importantly, they help keep families together when being together matters most.

The celebration, thoughtfully arranged by another legend of this landscape with the CEO of Ronald McDonald House Greater Western Sydney , Clare Barber, was a fitting recognition of Simone’s profound contribution.

Congratulations, Simone. Twenty years devoted to caring for some of our most vulnerable children and their families is an extraordinary legacy, and one of which you should be immensely proud. ❤️

Today marks five years since Fergus McCulla tragically passed away. We remember Fergus and honour his enduring legacy th...
20/08/2026

Today marks five years since Fergus McCulla tragically passed away.

We remember Fergus and honour his enduring legacy through the psychological support programme through CRBF established in his name.

The programme provides specialised psychological and emotional support for people affected by sarcoma and their families, supporting them through the emotional challenges of diagnosis, treatment and loss.

Five years on, Fergus is deeply missed. Through this important programme, his legacy continues to provide meaningful support to those who need it most.

We send our love to Jane, Norman and Anna, and to Fergus’s vast network of friends, as they mark another deeply difficult milestone today.

If you or someone you know could benefit from support while living with a sarcoma diagnosis, visit the link in our bio.

What happens after genomic testing?For people living with sarcoma, comprehensive genomic profiling may reveal important ...
18/08/2026

What happens after genomic testing?

For people living with sarcoma, comprehensive genomic profiling may reveal important information about the molecular features driving their cancer. Understanding what those findings mean, and whether they could lead to a treatment or a clinical trial requires specialist interpretation.

A Molecular Oncology Board, or a Molecular Multidisciplinary Team (MDT), brings together experts in oncology, molecular pathology, genetics, bioinformatics and precision cancer medicine.

The team reviews a patient’s genomic results alongside their diagnosis, treatment history and individual circumstances. They may identify:

• Molecular changes driving the cancer
• Potential targeted therapies or immunotherapies
• Relevant clinical trials in Australia or internationally
• Findings requiring further investigation or genetic counselling

The Precision Care Clinic, which is covered under a Federal Government Grant, opened last month, may be a consideration.

The first step is to speak with your doctor about whether the clinic is appropriate for you. Your doctor will need to provide a referral, and you will be asked to give informed consent.

Once the referral is received, specialists will assess your case. Depending on your needs, it may be reviewed by the Molecular MDT based at Prince of Wales Hospital in Sydney. You may attend on line as well as in person, and your doctor may also attend.

Following the review, your doctor will receive a report with recommendations tailored to your cancer and designed to support your ongoing care.

You can also choose to participate in voluntary research aimed at improving access to personalised cancer care across Australia.

Not every genomic finding will lead to a treatment. However, for people living with rare and complex cancers such as sarcoma, specialist review may uncover clinically relevant possibilities that would otherwise be difficult to identify.

To explore genomic testing or referral to the Precision Care Clinic, speak with your treating oncologist.

Go to the link in our bio for more information

Cancer nurses do far more than deliver treatment.They are the calm voice when everything feels overwhelming. The vital c...
13/08/2026

Cancer nurses do far more than deliver treatment.

They are the calm voice when everything feels overwhelming. The vital connection between patients, families, specialists & hospitals. The trusted source of guidance when symptoms change or questions arise & the reassurance that no one has to face cancer alone.
They bring expertise, compassion and humanity to some of life’s most difficult moments.

Today, on Cancer Nurses Day, we recognise the extraordinary nurses whose skill, dedication & compassion make an immeasurable difference to people living with cancer & their families.
For those living with sarcoma, a highly complex cancer, specialist nurses are often the thread that holds the entire care process together. They coordinate care across multiple clinicians &hospitals, help manage symptoms and treatment side effects, answer questions between appointments, & provide continuity through an often confronting & uncertain time.
We acknowledge the transformational work of the McGrath Cancer Care Nurse Program. Across Australia, 423 Cancer Care Nurses now provide free clinical, psychosocial and emotional support to people experiencing cancer & their families, regardless of cancer type.

CRBF is proud to share this commitment through our funding of a Clinical Nurse Consultant for sarcoma at RPA Hospital through the Edward Clark Swing for Sarcoma Fellowship. This important role helps ensure that people living with sarcoma & their families receive specialist coordinated care & compassionate support when they need it most.

Today, we also pay special tribute to CRBF Board member Keith Cox OAM, whose remarkable career as an oncology nurse practitioner spans more than 50 years. Keith’s expertise, compassion and unwavering commitment have touched countless lives & helped shape cancer nursing in Australia. We are deeply privileged to have his wisdom and experience guiding our work.

To every nurse caring for people living with sarcoma and other cancers across Australia: thank you for your expertise, your compassion and the profound difference you make every day.

We extend our heartfelt thanks to our magnificent model, “Pixel”, and to Hyatt Hotel Canberra - A Park Hyatt Hotel , esp...
29/07/2026

We extend our heartfelt thanks to our magnificent model, “Pixel”, and to Hyatt Hotel Canberra - A Park Hyatt Hotel , especially General Manager Shane Jolly, Amber Heeney, and the entire team, for their wonderful support of Sarcoma Awareness Month.

After years of dedicated service as an Australian Federal Police working dog, Pixel is now enjoying a well-earned retirement, bringing instant joy to guests with her gentle nature and engaging manner.

We were honoured to have Pixel feature in our Sarcoma Awareness Month campaign. With her gentle nature and unmistakable charm, she is pictured showcasing prominent Aboriginal artist Kylie Tarleton’s exquisite cockatoo bandana beautifully.

The design holds a very special meaning. “The black cockatoo softly mirrors the deep, tender heart of motherhood, carrying both the fierce devotion and quiet patience needed to support a child through a sarcoma journey. It speaks to the gentle truth that a mother’s strength is sustained by peace, inviting you to softly step back and tend to your own healing. This beautiful bird reminds us that nurturing yourself is not a departure from love, but the very grace that allows you to keep giving.”

We are profoundly grateful to Kylie and the team at Park Hyatt Canberra for their unwavering commitment to the support of cancer research in Australia, most recently the ball. We are equally thankful to their colleagues at Park Hyatt Sydney and Grand Hyatt Melbourne , whose generosity and support of the work we do for those living with sarcoma, continues to make a meaningful difference.

Thank you for sharing our commitment to changing the future for people affected by sarcoma. Your support is helping raise awareness, inspire action and advance the research that will lead to better treatments, better outcomes and, ultimately, a cure.

We couldn’t be more grateful.

Last night, Australia was introduced through 60 Minutes Australia , to an extraordinary young woman known to CRBF for ma...
27/07/2026

Last night, Australia was introduced through 60 Minutes Australia , to an extraordinary young woman known to CRBF for many years - Kaela Graham-Bowman pictured at the CRBF Mother’s Day event in May.

When Kaela’s world fell apart post terminal diagnosis, CRBF was honoured to help her identify a promising treatment she could explore with her treating oncologist.

CRBF was a small cog in the wheel of a large collaborative effort that enabled Kaela to travel to Memorial Sloan Kettering Cancer Centre NYC, for groundbreaking treatment. Her story is emblematic of what’s possible when clinicians, researchers, hospitals, governments, family & friends unite with a shared purpose.

But this wasn’t just a story about sarcoma. It was a story about love.

A young mother looked into the eyes of her children, held the hand of the man she loves, and refused to stop fighting for one more sunrise, one more hug, one more day together.

When told there were no more options, Kaela kept asking questions & pursued another path despite the uncertainty & resistance she encountered. That determination will resonate with every person living with sarcoma.

The search for one more treatment, one more trial, one more conversation, one more tomorrow, when tragically, for many, those opportunities simply don’t exist. That’s the devastating reality of sarcoma & supports the critical need for research funding, more clinical trials & better treatment options.

Kaela’s story reminds us that true person-centred care means honouring what matters most to each patient. Whether someone facing a terminal diagnosis chooses to pursue every appropriate treatment or decides to stop treatment, they deserve compassion, dignity and unwavering support.

Kaelas treatment was far from simple or without risk, & her courage is also a reminder to all of us to advocate for ourselves & advocate fiercely for those we love.

Don’t be afraid to ask the hard questions. Don’t be afraid to ask whether there is an alternative, another clinical trial or another possibility.

Tragically with sarcoma, often there isn’t. But sometimes there is, & asking the question of your team could make all the difference.

How far would you go to watch your children grow up?Kaela Graham Bowman is living with terminal synovial sarcoma. Faced ...
26/07/2026

How far would you go to watch your children grow up?

Kaela Graham Bowman is living with terminal synovial sarcoma. 

Faced with the unimaginable prospect of leaving behind the children she adores and the partner she loves, she refused to accept that there was nothing more that could be done.

Despite resistance, she kept asking questions, seeking answers and pursuing every possible opportunity for one reason only, to have more time with the people who mean everything to her.  

This is a story about hope, resilience, sheer courage  and the instinct to fight for every precious moment with the people you love.

Sadly, Kaela’s story is not unique. It reflects the determination, hope and unwavering love that drive so many people living with a terminal sarcoma diagnosis to keep searching for one more possibility, one more treatment and one more tomorrow. 

Those living with sarcoma know all too well the gift of time, and how precious every moment is.

Tragically, for many, those options simply don’t exist. That is why expanded research, more clinical trials and new treatments are so desperately needed.

We would like to acknowledge the outstanding work of Peter Overton, producer Anne Worthington, and the entire production team whose compassion, professionalism and commitment to telling this story with honesty and humanity have been truly remarkable.

By bringing Kaela’s story into homes across Australia, they have given a voice to everyone living with sarcoma and the families who walk beside them.

Their work magnifies the devastating reality of this disease, the critical need for more effective treatments in Australia, greater funding for research, and the extraordinary courage of those determined to make every moment count.

Thank you, Peter and Anne, for helping ensure these stories are seen, heard and impossible to ignore.

Kaela’s extraordinary story airs tonight on 60 Minutes on Channel 9 at 8.30pm

Address

14 Macleay Street
Elizabeth Bay, NSW
2011

Opening Hours

Monday 9am - 8pm
Tuesday 9am - 8pm
Wednesday 9am - 8pm
Thursday 9am - 8pm
Friday 9am - 8pm
Saturday 8am - 5pm
Sunday 8am - 5pm

Telephone

0412239020

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