Daniel Ferguson LGMD Foundation Ltd

Daniel Ferguson LGMD Foundation Ltd Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Daniel Ferguson LGMD Foundation Ltd, Charitable organisation, 19 Pleasant Avenue, East Lindfield.

The Daniel Ferguson LGMD Foundation is a charitable organisation established to improve the quality of life of people living with Limb Girdle Muscular Dystrophy.(LGMD)

An Exciting step forward for LGMD Community πŸ’š
28/05/2026

An Exciting step forward for LGMD Community πŸ’š

The date is locked in for LGMD2I/R9.

The FDA has accepted our NDA for BBP-418 for LGMD2I/R9 and set a PDUFA target action date of November 27, 2026, the date by which the FDA will complete its review.

LGMD2I/R9 is a progressive, life-shortening disease with no approved treatments. If BBP-418 is approved, it would be the first for LGMD2I/R9, and potentially for any form of .

For a community that has lived with no approved treatment options, timing is everything. We're racing toward potential approval and preparing for launch so that those with LGMD2I/R9 can be reached as quickly and safely as possible.

Thanks to the Awareness Foundation and all it's Sponsors. πŸ’ͺπŸ’šπŸ’ͺπŸ’š
02/10/2025

Thanks to the Awareness Foundation and all it's Sponsors. πŸ’ͺπŸ’šπŸ’ͺπŸ’š

A HUGE "Thank You" to our wonderful sponsors of LGMD Awareness Day! We are grateful for another successful LGMD Awareness Day! Dooley & Associates Sarepta Therapeutics Asklepios BioPharmaceutical, Inc. - AskBio

Thanks to  Carol and the LGMD Awareness Foundation for all they do to create Awareness for muscular dystrophy. πŸ’ͺπŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ’š
30/09/2025

Thanks to Carol and the LGMD Awareness Foundation for all they do to create Awareness for muscular dystrophy. πŸ’ͺπŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ’š

September 30th is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts!
To learn more about LGMD, please visit our website: http://LGMD-Info.org

29/09/2025

The Daniel Ferguson LGMD Foundation Celebrating our 5th year, Thank you for your continuing support. We could never have made the progress we have made without your generosity thank you. πŸ™ Daniel Ferguson LGMD Foundation Ltd πŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ™πŸ»πŸ™πŸ»πŸ™πŸ»πŸ™πŸ»πŸ™πŸ»

Today is LGMD Awareness day,  September 30th. Today DFF think of all  people globally that live with LGMD, let's all wor...
29/09/2025

Today is LGMD Awareness day, September 30th. Today DFF think of all people globally that live with LGMD, let's all work together to create a better future for those living with or affected by LGMD. πŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ’šπŸ«‚ πŸ‡¦πŸ‡ΊπŸ‡ΊπŸ‡²

Tomorrow is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts!
To learn more about LGMD, please visit our website: http://LGMD-Info.org

29/09/2025

Daniel Ferguson LGMD Foundation strongly support The Awareness Foundation's International LGMD day September 30th 30 + Sub types of LGMD. We are stronger together πŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ’šπŸ’ͺπŸ’š

Address

19 Pleasant Avenue
East Lindfield, NSW

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