CJD Support Group Network

07/09/2026

https://www.croatiaweek.com/australian-croatian-runner-827km-croatia-coast/

By Vesna Trokter Australian-Croatian ultramarathon runner Aydan Marko Papac from Melbourne has completed the most demanding sporting feat of his career, one that few would dare to attempt, 827 kilometres along the Croatian coast, from the lighthouse in Savudrija to Punta Oštro on Prevlaka. It was a

23/04/2026

A second human clinical trial for prion disease is now underway—an important and hopeful step forward for our community.
Today the Broad Institute, Cambridge MA, officially announced that NN112 or PRiSM, their clinical trial of a divalent siRNA for prion disease, is enrolling. Please find a community statement attached.
Additional resources:
[https://clinicaltrials.gov/study/NCT07444580/]
[https://www.cureffi.org/.../divalent-sirna-clinical.../]
[https://www.prionalliance.org/.../first-in-human-trial-of...]

For this trial sites recruiting will only be in USA.

For families and individuals impacted, this represents more than progress in science; it brings renewed hope for treatments, answers, and ultimately a cure. We are grateful to the researchers, participants, and advocates helping move this critical work forward.

22/04/2026

Bridge to Brisbane run/walk.

CJD Support Group Network has been registered as a Charity for this event, and if you would like to join our Group: Team Prion we could all meet up and run or walk together.

Date: Sunday 13th September 2026.
Registrations are now Open! Early bird rates are til 30th June.

When Registering
Group: Team Prion
PIN: Prion
Select Charity page: CJD Support Group Network

So gather your friends and family, order a CJD t-shirt from our website and let's raise awareness and have some fun!

Let us know if your in and we can make a messenger group to keep in touch.

Join thousands of runners, walkers, and wheelers as we take over the Gateway Bridge on Sunday 13 September 2026 for an unforgettable morning.

09/04/2026

If you live in or near Brisbane and want to participate and join this event to raise awareness and funds for CJD/prion disease you can register your team using the link below.
The CJD Support Group Network has been added to 2026 Transurban Bridge to Brisbane!
Sunday 13th September 2026

You can register as an individual or create a team in memory of your loved one. You can also create fundraising pages for this event to raise money for CJD/prion disease research in Australia.

Get ready to RUN FOR FUN when Queensland’s biggest, brightest, and best-loved fun run returns for it’s 30th Birthday in 2026! The Transurban Bridge to Brisbane will welcome an estimated 40,000 people of all ages and abilities to run, jog, walk and wheel along Brisbane streets and bridges in a 10...