Our Moon's Mission: Genetic Cures for Kids

03/10/2026

New horizons, painted in kindness 🌅

Our family and Our Moon's Mission: Genetic Cures for Kids loved being part of the Coolum Art Collective's Spring Art Exhibition, Horizons this year!

It was gorgeous to meet all the artists and see them sharing praise on opening night, and to have the weekend to marvel at the calibre of this year's display.

A special moment for Tallulah was seeing her own artwork on display alongside the other artists- she nearly jumped out of her chair!

Being part of the exhibition gives her a real sense of belonging, and that means the world to us. 💛 We couldn't do it without our favourite art teacher, Chony Bowden who supports Tallulah with her creations. We highly recommend Chony's Art Room classes to all families with little people- it's the best after-school outlet for expression.

On Sunday, we drew winning tickets and got to call each winner of the Charity Auction held in aid of Our Moon's Mission 👐🏼 congrats to all.

We're thrilled to share that, through this campaign, the Collective raised $1,305 to help us on our mission to cure SPG56. This was made possible by the love of the artists, supporters and exhibition visitors who took part.

Huge thanks to the whole crew for the support, and to everyone who stopped to chat, ask questions and take an interest in Tallulah's story and our mission.

We feel incredibly lucky to be connected with this art community of deep thinkers, generous hearts and creatives. Thank you for supporting us throughout our journey.

From little things, big things grow. 🌙 Let's see what's on the horizon! 😉

24/09/2026

🎨🌙 ART FOR A CURE! 🌙🎨

We’re pretty chuffed to be the lucky charity supported by the Coolum Art Collective Spring Art Exhibition & Charity Auction this weekend! 💛

It all kicks off TOMORROW at the Coolum Civic Centre thanks to the amazing Coolum Art Collective, with an incredible collection of work from talented local artists and artisans. There are so many beautiful pieces inspired by the place we’re lucky enough to call home. 🌊🌿

And even better… you can take one home! And sort your Christmas gifts early.

Come along, wander the exhibition, meet the artists, find the piece you fall a little bit in love with and place a bid in the charity auction, with proceeds supporting and the race to cure SPG56. 🌙🧬

📍 Coolum Civic Centre, 2–4 Park Street, Coolum Beach
🎨 Friday 25 & Saturday 26 Sept: 9am–5pm
🎨 Sunday 27 Sept: 9am–3pm
🎟️ Charity auction tickets: $10

A huge thank you to the people of Coolum Art Collective, their artists and everyone donating their creativity to our mission. We absolutely love this community who has repeatedly supported our little girl and this incredible moonshot for the cure. 💛

Come on all sunny coasters, please come check out the amazing art, support this vibrant community. 🌙🎨🧬

30/08/2026

🌙 WHAT A NIGHT FOR A MOONWALK 🌕

We are still waxing with joy and appreciation for this amazing Sunny Coast Brigade of .

Thank you to every business and person who walked, rolled, danced, donated and showed up for hope on Friday.

Shout out to the energy provedores and and whoa Coolum 🤯 We literally emptied every sugar bag from the truck this year!! What a sweet moonwalk that must've been for you kids! 😂 🍧

We can't get enough of the beautiful tributes from Hugo Hobbelen, and Marshall Hamburger 🙏🏼✨

Beautiful festival picnic vibes from , and epic sound and lighting from and Project Olympus 2032 every year.

And the moonwalk! The perfect spring evening to walk as one, marvel at the 's impressive sand tribute to Tallulah Moon's journey, and watch dolpins from Point Perry as the full moon rose and Luis González's drums beat with our hearts.

A big thank you Rosanna Natoli and for supporting us and joining the walk, and to Tallulah's Army: you VIPs turned up in force and harnessed the love with that moonwalk.

We send love to the McKenna family of who Our Moon's Mission + Genetic Cures for Kids supported through our Raffle this year. Thanks to our generous raffle sponsors, our vollies from and each of you who bought a ticket, we raised over $1500! This will help another rare family, starting their own rare disease mission toward a cure for . Huge thanks to renowned artist and friend Winsome Jobling and Chris Whitrod for gifting the significant art pieces to this cause.

And from over 600 tickets sales, the moon rock wall "climb for a cure", delicious drinks from and Coolum B**r Company, we raised over $10,000!

We are so humbled by this community effort, and forever grateful.

Watch this space for more gorgeous photos like these from Eliza Filipczuk and other legends too ;)

This walk, this night, the kids joy and community spirit: this will power us through the clinical trial and these next months ahead. Thank you team ✌🏼🙏🏼

27/08/2026

“Having these events where people have wrapped their love around us, walked with us at these moon walks in solidarity, that really gives us energy for months going forward.”

❤️

See you tomorrow,

🎟️👇🏼
https://events.humanitix.com/2026-moonwalk-for-our-moon-s-mission-with-marshall-hamburger-singing-for-the-cure/tickets

🚀🌝 Our Moon’s Mission taking off 🌝🚀

The Sunshine Coast family of a young girl with a rare genetic disease is preparing to travel overseas later this year for a ground-breaking clinical trial.

Tallulah-Moon Whitrod is the only Australian child known to have hereditary spastic paraplegia type 56 (SPG56), which causes degeneration of the nerve cells of the brain, affecting her speech and mobility.

The seven-year-old’s parents Golden and Chris Whitrod are working tirelessly to raise money for a cure through their charity ‘Our Moon’s Mission’.

Ms Whitrod says a gene therapy has been developed with the help of University of Queensland researchers.

“We’re gearing up for being potentially being away for Christmas and away from the grandparents which is something that is hard for us and the kids, but everybody knows that it's something we've also been working towards for so long so we're all really excited."

They’re holding their third annual ‘Moon Walk’ fundraiser at Coolum on Friday afternoon.

“The rare disease journey is a very lonely one … we've gone through this sort of rollercoaster,” Ms Whitrod said.

“Having these events where people have wrapped their love around us, walked with us at these moon walks in solidarity — that really gives us energy for months going forward.”

You can read more about Tallulah-Moon’s story here;

https://www.abc.net.au/news/2025-05-29/families-touched-by-spastic-paraplegia-type-56-look-for-cure/105288082

📸 The Whitrod family pictured at last year’s ‘Moon Walk’ event in Coolum

📰 Get more news from ABC Sunshine Coast: https://www.abc.net.au/news/sunshine/

📧 Sign up for our newsletter: abc.net.au/connect

27/08/2026

We are all so excited to see you tomorrow at Tickle Park, Marshall Hamburger 💃🏼🧑🏼‍🦽🕺🏼🧑🏼‍🦼🙌🏼

Lock in your Coolum Moonwalk tickets today via the booking link on Our Moon's Mission + Genetic Cures for Kids bio

Kids tix only $5, Adults $20, or a "moontribe saver" for 5 people- only $40. All funds go to charity ❤️🙏🏼

Climbing wall, free face-painting, braids, fairyfloss, good food trucks and an amazing fundraiser cocktail bar thanks to Australia’s #1 Alcoholic Ginger B**r 🔥 🍸 and Coolum B**r Company 🍻

THIS COMING FRIDAY from 3.30pm! A family friendly festival at Tickle Park you don't want to miss.

26/08/2026

🎁 MOONWALK RAFFLE, A RARE CHANCE 🎁

This year Our Moon's Mission + Genetic Cures for Kids is proudly supporting emilys_garden_foundation through our Moonwalk raffle. This is another local family fundraising for a gene therapy cure for Mito, to help their daughter Emily.

Let's get behind another local family fighting for a cure for

TWO PRIZE PACKS, EACH WORTH OVER $2,000

THE MOONLIGHT PACK
Original Winsome Jobling artwork, framed by Cool Art Coolum, plus a $100 Gold Class Event cinema voucher, a $50 Canteen voucher, two beach bags care of pharmacy, an ice cream voucher from everyone's favourite Yumgelato and a Loops Mask set.

THE DREAMING PACK
Original framed Indigenous artwork, Bushfire Dreaming, from Wadeye NT, plus a $50 Mecca voucher, two beach bags from a Ripcurl beach towel, a always-classy Castaways haircut voucher, an ice cream voucher from Yumgelato , and an EPIC accommodation package ($800).

$5 for 1 ticket, $10 for 3 tickets, $20 for 8 tickets.

You can only buy your tickets at the moonwalk, so please register today and get there at 3.30 to snag some raffle tickets!

All proceeds supporting the registered charity Emily's Garden Foundation.

📅 Friday 28 August, Tickle Park, Coolum Beach
🎫 Moonwalk tickets in Our Moon's Mission + Genetic Cures for Kids bio