Our Moon's Mission: Genetic Cures for Kids

27/08/2026

“Having these events where people have wrapped their love around us, walked with us at these moon walks in solidarity, that really gives us energy for months going forward.”

❤️

See you tomorrow,

🎟️👇🏼
https://events.humanitix.com/2026-moonwalk-for-our-moon-s-mission-with-marshall-hamburger-singing-for-the-cure/tickets

🚀🌝 Our Moon’s Mission taking off 🌝🚀

The Sunshine Coast family of a young girl with a rare genetic disease is preparing to travel overseas later this year for a ground-breaking clinical trial.

Tallulah-Moon Whitrod is the only Australian child known to have hereditary spastic paraplegia type 56 (SPG56), which causes degeneration of the nerve cells of the brain, affecting her speech and mobility.

The seven-year-old’s parents Golden and Chris Whitrod are working tirelessly to raise money for a cure through their charity ‘Our Moon’s Mission’.

Ms Whitrod says a gene therapy has been developed with the help of University of Queensland researchers.

“We’re gearing up for being potentially being away for Christmas and away from the grandparents which is something that is hard for us and the kids, but everybody knows that it's something we've also been working towards for so long so we're all really excited."

They’re holding their third annual ‘Moon Walk’ fundraiser at Coolum on Friday afternoon.

“The rare disease journey is a very lonely one … we've gone through this sort of rollercoaster,” Ms Whitrod said.

“Having these events where people have wrapped their love around us, walked with us at these moon walks in solidarity — that really gives us energy for months going forward.”

You can read more about Tallulah-Moon’s story here;

https://www.abc.net.au/news/2025-05-29/families-touched-by-spastic-paraplegia-type-56-look-for-cure/105288082

📸 The Whitrod family pictured at last year’s ‘Moon Walk’ event in Coolum

📰 Get more news from ABC Sunshine Coast: https://www.abc.net.au/news/sunshine/

📧 Sign up for our newsletter: abc.net.au/connect

27/08/2026

We are all so excited to see you tomorrow at Tickle Park, Marshall Hamburger 💃🏼🧑🏼‍🦽🕺🏼🧑🏼‍🦼🙌🏼

Lock in your Coolum Moonwalk tickets today via the booking link on Our Moon's Mission + Genetic Cures for Kids bio

Kids tix only $5, Adults $20, or a "moontribe saver" for 5 people- only $40. All funds go to charity ❤️🙏🏼

Climbing wall, free face-painting, braids, fairyfloss, good food trucks and an amazing fundraiser cocktail bar thanks to Australia’s #1 Alcoholic Ginger Beer 🔥 🍸 and Coolum Beer Company 🍻

THIS COMING FRIDAY from 3.30pm! A family friendly festival at Tickle Park you don't want to miss.

26/08/2026

🎁 MOONWALK RAFFLE, A RARE CHANCE 🎁

This year Our Moon's Mission + Genetic Cures for Kids is proudly supporting emilys_garden_foundation through our Moonwalk raffle. This is another local family fundraising for a gene therapy cure for Mito, to help their daughter Emily.

Let's get behind another local family fighting for a cure for

TWO PRIZE PACKS, EACH WORTH OVER $2,000

THE MOONLIGHT PACK
Original Winsome Jobling artwork, framed by Cool Art Coolum, plus a $100 Gold Class Event cinema voucher, a $50 Canteen voucher, two beach bags care of pharmacy, an ice cream voucher from everyone's favourite Yumgelato and a Loops Mask set.

THE DREAMING PACK
Original framed Indigenous artwork, Bushfire Dreaming, from Wadeye NT, plus a $50 Mecca voucher, two beach bags from a Ripcurl beach towel, a always-classy Castaways haircut voucher, an ice cream voucher from Yumgelato , and an EPIC accommodation package ($800).

$5 for 1 ticket, $10 for 3 tickets, $20 for 8 tickets.

You can only buy your tickets at the moonwalk, so please register today and get there at 3.30 to snag some raffle tickets!

All proceeds supporting the registered charity Emily's Garden Foundation.

📅 Friday 28 August, Tickle Park, Coolum Beach
🎫 Moonwalk tickets in Our Moon's Mission + Genetic Cures for Kids bio

25/08/2026

🍹 A toast to two very generous friends 🍹

Huge thanks to and for ensuring the Moonwalk mission stays well hydrated! These legends are gifting every single drop of their famous Sunny Coast sips to the Moonwalk, so every sip you enjoy is for the cure 🙌🏼

You can look forward to a range of cocktails, beers, and ginger beers for both kids and adults, all in support of

The sunshine has been absolutely glorious this week, and if that's anything to go by, this Friday's moonrise is going to be something special indeed.

Come to Tickle Park at 3.30pm, grab a bevvie, dance to Hugo, and and be part of an afternoon of joy and hope.

📅 Friday 28 August at 3.30pm, Tickle Park, Coolum Beach
🎫 Tickets in bio

20/08/2026

🎪 Sponsor Shoutout: Mask Events Australia 🎪

Huge thanks to Event Management Australia - a long-time supporters of Our Moon's Mission through galas in the past, and for coming on board as a major equipment sponsor for Moonwalk 2026. From marquees, chairs and tables to decorative touches and even Mega Jenga, we're so excited to have their support helping Moonwalk look beautiful this year. ✨🙌🏼

Their generosity doesn't stop with us! These legends are busy doing the good stuff! Through their commitment, Mask Events supports local organisations and initiatives doing meaningful work in our communities and environment. Their team gets hands-on contributing their time to initiatives such as community planting days, while also helping clients explore ways to build positive social and environmental impact into their events. 🌱💪🏼✊🏼

Mask Events also collaborates with Reef Check Australia to support beach cleanups, and is a proud member of the Sunshine Coast Music Industry Collective (SCMIC) along with Team Musicare. We're excited this year's Moonwalk brings these like minded organisations together as we support beautiful musicians on Kabi Kabi Country in our mission to cure SPG56. ✨🌕

Thank you Team Mask! We can't wait to dance in the moonlight with you 🕺🏼🧑🏼‍🦽💃🏼🙏🏼

📅 Friday 28 August, Tickle Park, Coolum Beach
🎟️ Tickets here: https://events.humanitix.com/2026-moonwalk-for-our-moon-s-mission-with-marshall-hamburger-singing-for-the-cure/tickets

17/08/2026

🍹 Sponsor Shoutout: Peregian Beach Hotel 🍹

Great seabreeze vibes, live music and delightful ambience... sounds a bit like a Moonwalk, but it's actually our beloved, ever supportive sponsors, the Peregian Beach Hotel 🎉🕺🏼🍻🍸

A huge thank you to Peregian Beach Hotel for getting behind every Moonwalk, gala and fundraiser to date, and for helping make Moonwalk 2026 better than ever.

Local Sunnny Coast businesses like PBH are what make an event like this possible, and their support has been a constant river of motivation and hope for us as we continue to ride this rollercoaster of gene therapy research and treatments for rare disease.

They're with us, helping bring the good vibes, like 🎶 Hugo Hobbelen, .World.music and a headline set from Marshall Hamburger next Friday.

Thank you for backing our community and our cause, Peregian Beach Hotel.

📅 Friday 28 August, Tickle Park, Coolum Beach
🎟️ Tickets in Our Moon's Mission + Genetic Cures for Kids bio