ME CFS & Long Covid Group Coffs Harbour

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Coffs Harbour, NSW
ME CFS & Long Covid Group Coffs Harbour

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An informal peer support group for people faced with the daily challenges of living with ME/CFS, Long-Covid and similar illnesses.

A safe space to connect and provide support to eachother as we navigate the impact of these shared experiences.

25/10/2026

Today is PoTS Awareness Day – a day dedicated to raising awareness about postural orthostatic tachycardia syndrome (PoTS), an under-recognised and debilitating condition affecting many people with ME/CFS. PoTS is a form of dysautonomia (a condition affecting the autonomic nervous system) that falls under the orthostatic intolerance umbrella.

Read more: https://tinyurl.com/pots-awareness-day-2026

22/10/2026

"It's life-decimating."

Former sprinter Beth Dobbin shares how myalgic encephalomyelitis (ME) has changed her life - having represented GB at the Tokyo Olympics five years ago.

Link: https://bbc.in/4ikuE5z

14/10/2026

14/10/2026

Chronic fatigue syndrome has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understanding of the disease – and he has a remarkable message for those suffering from it.

28/09/2026

Changes in guidance and science seem to have little impact on millions of devastated lives. ME/CFS is a social crisis playing out behind closed doors, says George Monbiot

18/07/2026

Wonderful news!

🎉 Breaking news for the ME/CFS community! 🎉

For the first time since 2003, ME/CFS will be officially included as a separate condition in the Australian Burden of Disease Study (ABDS) in December 2026 - an historic milestone that recognises the impact of this condition on over 250,000 Australians. 🇦🇺💙

This didn't happen by accident. ME/CFS was dropped from this data back in 2011. Getting it back took several years of Emerge Australia working directly with the AIHW, backed by evidence on just how much this condition affects the people living with it.

Being counted matters. It means the data can no longer be ignored, and it's the foundation for the policy attention, funding and research investment this community has been waiting decades for.

Together, we're shaping a future where ME/CFS is seen, heard, and prioritised.

Join us in celebrating this groundbreaking achievement as we continue to raise awareness with the campaign! ✊✨

Read our full press release: https://zurl.co/LaHJa

💙🙌

26/04/2026

Completely unacceptable and discriminatory. Change is urgently needed. Air travel is already challenging enough for people with disabilities and can be a very dehumanising process. Not every person with a disability has the time, capacity, or resources to ensure that every individual assisting them holds the required permit. Adelaide Airport Channel 10

15/04/2026

🩺 Clinical Guidelines Update

The NHMRC ME/CFS Clinical Guideline Development Committee recently held its fourth meeting. During this session, committee members heard from the ME/CFS Diagnosis Working Group (a subgroup of the committee) and agreed on methods for developing and organising the new guideline.

📄 Read the NHMRC meeting summary:
https://zurl.co/I21q7

15/04/2026

Mothering in absentia
Written by a mother with Myalgic Encephalomyelitis (ME/cfs)
as a response to Cynthia Banham's piece about mothering with a disability. Link to article in comments.

The Age Good Weekend Magazine The Sydney Morning Herald

Mark Butler MP Jim Chalmers MP Dr Mike Freelander MP Rebecca White

"Disability places you outside the mothering mainstream and because of this, it makes your family, in some ways, outsiders too. It can be exhausting, trying to convince yourself that you have just as much right as anyone to be a mother."

Myalgic Encephalomyelitis Group Australia Ltd Tom Kindlon's ME CFS & related page: News, Research and more Emerge Australia Inc

Address

Coffs Harbour, NSW
2450

Website

https://ausmeregistry.org/

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