Huntington's Disease Network of Australia - HDNA

01/08/2026

Huntington's Victoria Community Conference 2026. 💙
Thanks for having us!
It was wonderful to see many familiar faces and to meet some new people too.

If you have any questions for Dr Kelly Atkins, please send them through to [email protected]

31/05/2026

Awareness doesn’t end today. Keep sharing, supporting, and advocating. Let’s build a world where Huntington's disease is understood, supported, and one day, treatable.

30/05/2026

Thank you to everyone who has helped raise awareness for Huntington's disease, shared information, supported families, and championed progress. Every effort helps build understanding, hope, and a stronger community.💙💜



Photo credit: https://unsplash.com/

29/05/2026

Great to be at Huntington's Victoria’s 𝓜𝓪𝔂 𝓜𝓲𝓷𝓰𝓵𝓮 tonight.
It’s always inspiring to hear stories, share experiences, and see the work being done to support individuals and families affected by Huntington’s disease.

Thank you for having us!

28/05/2026

Visit Skyhawk Therapeutics' FALCON-HD page. FALCON-HD is a trial for Huntington’s disease. Advancing research and driving progress for patients and families affected by Huntington's.

FALCON-HD is Skyhawk Therapeutics' Study to Assess the Potential of the SKY-0515 Small Molecule Splicing Modifier to Lower Mutant Huntingtin Protein (HTT) and Slow Disease Progression in Huntington's Disease Patients

27/05/2026

Navigating the challenges of Huntington's disease can be overwhelming. Small steps make big differences. Planning ahead, building support networks, and accessing resources can empower families facing Huntington's.



Photo credit: https://unsplash.com/

26/05/2026

🧠💙Enroll-HD is helping researchers better understand Huntington’s disease by collecting information over time from thousands of participants around the world. Every visit, every story, and every contribution helps move research forward toward better treatments.

Welcome, and thank you for your interest in Enroll-HD! The success of the study depends on volunteers like you around the world who become a part of HD research.

25/05/2026

📈Research is moving forward. Clinical trials and new insights bring hope every day.



Photo credit: https://unsplash.com/

24/05/2026

Clinical trials for Huntington's disease are necessary to bring us closer to breakthroughs. Thank you to every person who voluntarily participates in trials.



Photo credit: https://unsplash.com/

23/05/2026

📢 Sharing this insightful conversation featuring Tammy Gardner, of Huntington's Victoria, in discussion with Professor Julie Stout. 👇

May Awareness is about sharing stories, spreading knowledge, and standing together in advocacy.

In this important conversation, Huntington’s Victoria CEO Tammy Gardner speaks with Professor Julie Stout about the MAP-HD project and what it means for the Huntington’s disease community.

Professor Stout shares key insights from international research into the cognitive, motor, psychiatric, and brain changes in Huntington’s disease and how this is reshaping how we understand diagnosis.

Tammy highlights the ongoing importance of quality of life for families today, alongside continued progress toward disease-modifying therapies. Together, they reflect on why participation in MAP-HD matters, and how shared learning and lived experience continue to drive research forward.

This May, we share stories to connect, learn, and advocate for one another.

Watch the full conversation in our newsletter or click on the link - https://mailchi.mp/huntingtonsvic.org.au/jstout-ep09-beyond-the-lab-10156090