MND Victoria

MND Victoria Providing the best possible care and support for Victorians living with MND. MND is an abbreviation for motor neurone disease.

MND Victoria provides and promotes the best possible care and support for people living with MND. MND is also known as ALS (Amyotrophic Lateral Sclerosis), Lou Gehrig's disease or Maladie de Charcot. In Australia, MND kills two people every day.

'People living with MND' includes people who have been diagnosed, those yet to be diagnosed, carers, former carers, families, friends, workmates and any

other person whose life is, has been, or will be affected by a diagnosis of MND. Find out more information about MND at: https://www.mnd.org.au/

Relive the magic of The Great MND Relay 2026 🌟All our event photos are now available to view. Head to The Great MND Rela...
05/06/2026

Relive the magic of The Great MND Relay 2026 🌟

All our event photos are now available to view. Head to The Great MND Relay website to see them: www.mndrelay.org.au

Thank you once again to everyone who came along on the day, those who donated from afar, and the incredible MND community for coming together for a fun and impactful day at Lakeside Stadium, Albert Park 💙

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MND Victoria welcome the Australian Government’s commitment to prioritise people living with MND in both the NDIS and Ag...
04/06/2026

MND Victoria welcome the Australian Government’s commitment to prioritise people living with MND in both the NDIS and Aged Care systems.

MND Victoria, MND Australia, and the State Associations have been actively engaging with policy-makers to protect the NDIS priority pathway and improve the Aged Care System for people living with MND.

The Australian Government announced that people living with MND aged 65 and over will automatically be classified as "urgent" priority after being assessed for the Support at Home program.

The Government has also committed to protecting the NDIS MND Priority Pathway, which gives people living with MND faster access to assessments, funding and reassessments when needs change.

To the many people we support who have shared their stories with us, the media, and their local politicians: thank you. Each of these actions have contributed to this change.

We will continue advocating for all people living with MND to receive the best care possible 💙

Read more about the announcement on our website: www.mnd.org.au/priority-support-for-mnd-in-the-ndis-and-aged-care-system

Want to make a meaningful impact and help support people living with MND? Apply now to work with us! 💼💙 MND Keeping Conn...
04/06/2026

Want to make a meaningful impact and help support people living with MND? Apply now to work with us! 💼

💙 MND Keeping Connected Advisor
We are seeking an experienced, compassionate health professional to join our team of 26 MND Advisors and Support Coordinators. In this rewarding role, you will support people living with MND aged 65 and over through our Keeping Connected model — a specialised telehealth service designed for people living with MND who have a slower disease progression or a stable support network and home environment.
📅 Applications close: 15th June 2026

💙 MND Access and Education Coordinator
We’re seeking an experienced health professional to join our Access & Education Team as an MND Access & Education Coordinator (0.7 FTE) based in Canterbury, Melbourne. In this rewarding role, you will support individuals and their families as they connect with MND Victoria, providing timely information, education and guidance at a critical stage in their journey.
📅 Applications close: 17th June 2026

Apply now: mnd.org.au/work-with-us

Riley was 34 years old when he was diagnosed with motor neurone disease. He and his wife, Stacey, were excitedly making ...
03/06/2026

Riley was 34 years old when he was diagnosed with motor neurone disease.

He and his wife, Stacey, were excitedly making a 5 and 10 year plan. They imagined a full life with their two little kids, a 4 year old son and a 2 year old daughter. A life with a future.

Then, he was diagnosed with MND.

Please donate today so people like Riley can make the most of their time with their families 💙 www.mnd.org.au/care-matters

Come along to the Rock Off MND Social for a social night filled with wonderful food, entertainment and prizes, to help r...
02/06/2026

Come along to the Rock Off MND Social for a social night filled with wonderful food, entertainment and prizes, to help raise funds for vital MND research 💙

Purchase your ticket by Friday 5 June to automatically go in the draw to win the Industry26 voucher to the value of $150!

⏰ 6:30PM - 11:00PM
📅 Saturday 20th June 2026
📍 Industry26, Geelong West, 26 Pakington St, Geelong West, VIC

What's included: Canapes throughout the event, complimentary drink on arrival, live music, auctions, mystery envelopes and prizes to be won on the night!

PLUS enter the raffle for the chance to win a $10,000 Helloworld travel voucher! 🎁

Buy your ticket and enter the raffle now: www.mnd.org.au/events/412/rock-off-mnd-2026

Access to the most accurate and relevant information is pivotal in providing the best possible care and support to famil...
31/05/2026

Access to the most accurate and relevant information is pivotal in providing the best possible care and support to families impacted by MND 💙

Each month we host a variety of online and in person sessions for people with MND, their friends and families, carers and health professionals. Here are the upcoming events for June 📝

If you have any further questions or would like to register, please contact our friendly team at [email protected] or call (03) 9830 2122. Head to our website to find out more 💻

Riley has motor neurone disease. He won't get to see his two young children grow up.When you're diagnosed with MND, you'...
30/05/2026

Riley has motor neurone disease. He won't get to see his two young children grow up.

When you're diagnosed with MND, you're told you have 27 months to live. There's no cure yet, but there is care.

Help families like Riley's by supporting MND Victoria – the only charity providing support to people living with MND in Victoria now.

💙 Donate today: www.mnd.org.au/care-matters

Last week, during National Volunteer Week, we held our 2026 Volunteer Seminar, bringing together an amazing group of vol...
28/05/2026

Last week, during National Volunteer Week, we held our 2026 Volunteer Seminar, bringing together an amazing group of volunteers who generously give their time to support people living with MND, their families, and wider the community.

The day was a wonderful opportunity to connect, learn, share experiences, and celebrate the incredible impact our volunteers make every single day.

Throughout the day, volunteers participated in a range of engaging and insightful sessions, including Victoria Tull presenting on “The Narrative Behind the Numbers,” Beth leading a session on volunteer burnout and wellbeing, and Bel sharing communication strategies and tips. Volunteers also received an organisation update from Jo Whitehouse and had the opportunity to meet and hear from our new CEO, Mary-Jane Stolp.

Volunteers also had the opportunity to venture around the office and connect with different teams to learn more about all aspects of the organisation and the important roles each area plays in bringing the organisation together. Service Awards were also awarded to the volunteers who have hit milestones volunteering with MND Victoria!

Thank you again to our incredible volunteers 💙

27/05/2026

MND Victoria is proud to launch our Genetic Counselling Service, made possible by the generosity of attendees and supporters of the annual MND Charity Superball.

Even without a family history, about 20% of people with MND have an underlying genetic variant. Identifying a variant may enable these people to access clinical trials or targeted treatments.

Genetic Counselling helps grow understanding of personal and family risk, and supports exploring testing options and next steps. However, public genetic services in Victoria are under resources and with long wait times — time many people don't have.

Funding from the MND Charity Superball has enabled a 12-month pilot Genetic Counselling Service, delivered through a collaboration between MND Victoria and Monash Genetics. It will be delivered free of charge, statewide, and via telehealth or in-person appointments.

Help sustain this service by attending or supporting the 2026 MND Charity Superball ensuring ongoing access to genetic counselling through this important initiative.

💙 Show your support: www.mnd.org.au/events/405/mnd-superball-xix

🔗 For more information: https://www.mnd.org.au/mnd-genetic-counselling-service

MND Victoria is committed to ongoing reconciliation, and supporting Aboriginal and Torres Strait Islander people living ...
26/05/2026

MND Victoria is committed to ongoing reconciliation, and supporting Aboriginal and Torres Strait Islander people living with MND 💙

This National Reconciliation Week, we’ll come together and reflect on the theme ‘All In’ — a call for all of us to commit wholeheartedly to reconciliation, not only during this week, but every day. Reconciliation is not a once-off act; it's a commitment we make to action every day.

Address

265 Canterbury Road
Canterbury, VIC
3126

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

0398302122

Website

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