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The mission of the Foundation for Angelman Syndrome Therapeutics Australia is to improve the quality of life for individuals with Angelman syndrome through timely diagnosis, access to best practices in care & treatments, and advancing research for a cure.

A changing of the guard at Syndrome Association Australia . πŸ’™We want to add our thanks to outgoing ASAA President Fiona...
21/10/2026

A changing of the guard at Syndrome Association Australia . πŸ’™

We want to add our thanks to outgoing ASAA President Fiona Lawton for the enormous contribution she has made to the Angelman community over many years.

Fiona’s commitment extends well beyond her six years as President. Before joining ASAA, she served on the FAST Australia Board, and through her work with Rare Voices Australia has been a fierce advocate for people living with rare disease more broadly. Fiona has never been afraid to speak up, ask the hard questions and make sure our community is heard. We’re incredibly grateful for everything she has given to the Angelman space.

We’re also very happy to welcome Chrissy Cimino as ASAA’s new President. Chrissy will already be well known to many families. She has worked tirelessly behind the scenes for years - from International Angelman Day tees and welcome packs to sharing resources from both Australian organisations, and often being one of the first friendly contact for new families. She’s also a mighty advocate, and we look forward to continuing to work alongside Chrissy and the ASAA team.

Thank you, Fiona, and congratulations, Chrissy. πŸ’™ We look forward to all the great things we’ll continue to do together.

Some very clever minds have been digging into Angelman data. πŸ’™Today, three teams of UTS Psychology students presented th...
19/10/2026

Some very clever minds have been digging into Angelman data. πŸ’™

Today, three teams of UTS Psychology students presented their work to FAST Australia through the UTS Shopfront program.

They’ve explored real-world data collected within and outside the Global Angelman Syndrome Registry, and NDIS reports; looked at best and worst-case scenarios; and examined whether existing quality-of-life measures really capture what matters in Angelman syndrome, identifying trends and gaps and proposing potential solutions.

A huge thank you to the students for the work and thinking they’ve put into these projects, and especially to the families who contributed their time, experiences and data.

We can’t wait to share what they’ve found, learn from it and build on their work. πŸ’™

β›³πŸ’™β€¨For Angelman Syndromeβ›³ 🎟️ FINAL CALL FOR TICKETS! 🎟️Don’t miss your chance to be part of this special day! Gather y...
17/10/2026

β›³πŸ’™β€¨For Angelman Syndrome

β›³ 🎟️ FINAL CALL FOR TICKETS! 🎟️
Don’t miss your chance to be part of this special day! Gather your friends, secure your spot, and help us make a meaningful difference for individuals and families living with Angelman Syndrome.

πŸ’™ Join us for an incredible day on the green while making a real difference! πŸ’™

πŸ“… Friday 20th November 2026β€¨πŸ“ The Heritage Golf & Country Club, VIC
This event brings together our community, golfers, and supporters to raise awareness and vital funds for Angelman Syndrome. Whether you’re playing, sponsoring, or supporting, every contribution counts.

Let’s swing with purpose and create change together! πŸ’™
πŸ‘‰ Book your tickets or find out more here:
https://swingforacure-fast.raiselysite.com/
πŸ“© For enquiries: [email protected]

melbournegolf fundraiser makeadifference fastaustralia golfvic

β›³πŸ’™οΏ½For Angelman Syndromeβ›³ 🎟️ FINAL CALL FOR TICKETS! 🎟️Don't miss your chance to be part of this special day! Gather y...
17/10/2026

β›³πŸ’™οΏ½For Angelman Syndrome

β›³ 🎟️ FINAL CALL FOR TICKETS! 🎟️
Don't miss your chance to be part of this special day! Gather your friends, secure your spot, and help us make a meaningful difference for individuals and families living with Angelman Syndrome.

πŸ’™ Join us for an incredible day on the green while making a real difference! πŸ’™

πŸ“… Friday 20th November 2026οΏ½πŸ“ The Heritage Golf & Country Club, VIC
This event brings together our community, golfers, and supporters to raise awareness and vital funds for Angelman Syndrome. Whether you're playing, sponsoring, or supporting, every contribution counts.

Let's swing with purpose and create change together! πŸ’™
πŸ‘‰ Book your tickets or find out more here:
οΏ½https://swingforacure-fast.raiselysite.com/

πŸ“© For enquiries: [email protected]

This National Carers Week, we’re thinking of the parents, grandparents, siblings and others caring for someone with Ange...
14/10/2026

This National Carers Week, we’re thinking of the parents, grandparents, siblings and others caring for someone with Angelman syndrome.
It’s a role filled with love, but also one that can ask an enormous amount of you, often for a lifetime.
To all the carers in our community, we see you and everything you do.

What a great afternoon at Science in the Pub Brisbane 🧬We talked science. We talked research, clinical trials and what’...
11/10/2026

What a great afternoon at Science in the Pub Brisbane 🧬We talked science. We talked research, clinical trials and what’s happening in the Angelman world, but some of the best parts of the day were simply families connecting with families.
Sharing experiences. Comparing notes. Asking the questions you don’t always get the chance to ask. No dumb questions. Throwing around ideas. Hearing different perspectives. And learning from people who really understand this world & what we need to do to make a difference.
A huge thanks to everyone who came along, shared so openly and helped make the afternoon what it was.
Turns out you can fit quite a lot of science, laughter and Angelman conversation into one pub. 🍻🧬
Thank you to our sponsors, Oak Hill Bio and Ionis Pharmaceuticals, for helping make this possible, and to all the families who turned up and made the afternoon what it was.
See you soon Melbourne, Perth and Sydney!
And a huge shout-out to FAST Australia Chairperson Shane Jez for hosting this on his "21st" birthday! πŸŽ‚ Happy birthday, Shane! πŸ’™

Want one of these for your Angel? πŸ‘€πŸ’™We’ve made something special just for Australians living with Angelman syndrome.Thes...
08/10/2026

Want one of these for your Angel? πŸ‘€πŸ’™
We’ve made something special just for Australians living with Angelman syndrome.
These shirts aren’t for sale. They’re a little thank you to Australian Angelman families who help us keep our community information up to date.
If you’re the parent or carer of an Australian child or adult with Angelman syndrome:
β€’ Already on our FAST Australia family list? Check your inbox. We’ve sent you an email with a link to check and update your details.
β€’ New to FAST Australia? Sign up on our website (www.cureangelman.org.au) and add your family details.
Keeping this information current helps us understand our Australian Angelman community, where families are located and how we can better plan our programs, advocacy and communication.
And because the person at the centre of all of this deserves the good stuff, the shirt is for the person with Angelman syndrome. πŸ’™
Australian families only. One shirt per person with Angelman syndrome.

πŸ’™ MELBOURNE TEAM β€” ARE YOU READY? πŸ’™LET’S DO THIS TOGETHER!πŸƒβ€β™€οΈ MOVE FOR A CURE β€” 5K YOUR WAY πŸƒβ€β™‚οΈπŸ“… Sunday, 1 November 20...
02/10/2026

πŸ’™ MELBOURNE TEAM β€” ARE YOU READY? πŸ’™
LET’S DO THIS TOGETHER!
πŸƒβ€β™€οΈ MOVE FOR A CURE β€” 5K YOUR WAY πŸƒβ€β™‚οΈ

πŸ“… Sunday, 1 November 2026
⏰ 12:00 PM
πŸ“ Greenvale Gardens Playground
65 Greenvale Gardens Boulevard, Greenvale VIC 3059

Let’s move together and complete 5K in one day! πŸ’™

πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ Bring the family
🧺 Bring a picnic
😊 And most importantly, bring your smiles!

πŸ”΅ Don’t forget to wear BLUE!

πŸ‘‰ REGISTER NOW

https://tinyurl.com/move5kyourway

Register for Move 5K Your Way
Together, let’s move, connect and make a difference! πŸ’™

Move for a Cure is back! πŸ’™And this year, we're doing it a little differently.One day. One 5k, your way. On Sunday 1 Nove...
02/10/2026

Move for a Cure is back! πŸ’™
And this year, we're doing it a little differently.
One day. One 5k, your way.
On Sunday 1 November, we're asking the Angelman community across Australia to get moving and complete 5k in one day.
Walk it. Run it. Swim it. Ride it. Roll it. Push it. Do it solo, join a team, or rally your own crew.
You can do your 5k anywhere. Around the block, along the beach, through the bush, on a treadmill. Want to step it up? Make it 10km, 15km or more.
Different places. Same day. Same goal.
Registrations are now open πŸ‘‰ https://tinyurl.com/move5kyourway

29/09/2026

We shared this a couple of years ago, but the message is just as relevant today. One of the hardest things for a small charity is funding important programs sustainably, year after year.
Imagine if enough people in our community gave a small amount each month. $5, $10, $20 or $50 might not feel like enough to fund a program on its own, but when lots of people do it together, it adds up.
With enough regular supporters, monthly giving could help sustain programs like asNavigators, our specialist Angelman nurse network, without having to start from scratch fundraising for that program every year.
It also spreads the load. We don't need a handful of people giving enormous amounts. Lots of people giving what they comfortably can creates something far more sustainable.
If you've ever thought about supporting FAST Australia, becoming a monthly giver is one of the most valuable ways you can help us plan for the future. πŸ’™
Become a monthly giver, and if you believe in what we're building, share this with someone who might join you. https://cureangelmannow.raiselysite.com/

Address

Quondong Cl
Cairns, QLD
4870

Telephone

+611300078108

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