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The mission of the Foundation for Angelman Syndrome Therapeutics Australia is to improve the quality of life for individuals with Angelman syndrome through timely diagnosis, access to best practices in care & treatments, and advancing research for a cure.

05/06/2026

Last week, FAST Australia's CEO Meagan Cross attended the Rare Disease Leaders Forum: Opportunities in Artificial Intelligence at RMIT in Melbourne alongside our technology partner Ligantic Solutions and The Prader-Willi Research Foundation of Australia.

The forum brought together researchers, technology experts and patient advocates to explore how AI may help improve information access, healthcare navigation and research in the rare disease sector.

A highlight was seeing Stef from Ligantic Solutions present the asnavigators Digital Assistant, sharing how AI can help families access trusted information and navigate complex healthcare pathways.

Thank you to RMIT and everyone involved for an inspiring day focused on the future of AI and its potential to support rare disease communities.

02/06/2026

A huge thank you to the Oberon Inner Wheel Club and the entire Oberon community for once again coming together in support of FAST Australia and families living with Angelman syndrome.

Since Ted was diagnosed with Angelman syndrome in 2019, the Oberon Inner Wheel Club has been a passionate supporter of FAST Australia, helping raise awareness, raise funds and bring people together around a cause that means so much to their community.

To everyone who attended, donated, volunteered, sponsored prizes or helped make the evening possible, thank you. Your generosity truly makes a difference.

We are incredibly grateful for your ongoing support of FAST Australia and families living with Angelman syndrome.

💙

01/06/2026

Support Families. Advance Understanding. Accelerate Discovery.
Every step forward matters.
For people living with Angelman syndrome, progress doesn't happen through a single breakthrough. It happens through thousands of small steps that improve lives today while building towards tomorrow's possibilities.

At FAST Australia, we're focused on creating a future where every person living with Angelman syndrome has the opportunity to thrive.

Throughout June, we'll be sharing more about the work happening across Australia and how your support helps make it possible.
If you'd like to support our EOFY Appeal, you can donate here: https://tinyurl.com/angelmaneofy

26/05/2026

This weekend the FAST Australia Board and leadership team came together for our annual planning and strategy meeting 💙

These meetings are an important opportunity to step back from the day-to-day and focus on the bigger picture - where we are now, where we need to go, and how we best support the Australian Angelman syndrome community into the future.

Much of the work behind the scenes happens quietly, through planning, collaboration and conversations to ensure every dollar, partnership and decision is aligned with our mission - and to you.

We’re incredibly grateful to have a Board made up of passionate people deeply committed to improving outcomes for individuals living with Angelman syndrome and their families 💙

22/05/2026

Beyond the smile there is… sleep deprivation 😴

Sleep challenges are incredibly common in Angelman syndrome and can affect the whole family.

Broken nights, 2am dance parties, surprise wakeups and functioning on caffeine and pure determination become part of everyday life for many families.

What’s something about Angelman syndrome sleep that would completely shock the average person? 😅💙

21/05/2026

📢 Today we’re launching a new feature within asnavigators designed to help Australian families better understand healthcare pathways, hospital procedures and aspects of care. 💙

This is a closed AI system, it doesn't freely search the internet or pull information from uncontrolled online sources. Instead, it uses carefully selected and curated resources. This tool is still evolving. Rather than waiting years to create something “perfect”, we wanted to start building something practical that can grow alongside the community it is designed to support.

This tool supports understanding and navigation only. It is not medical advice and does not replace clinicians or emergency services.

Visit asNavigators.org.au to access the tool (top right) to test it out and or/ read more about how it works here https://asnavigators.org.au/chatbot/

18/05/2026

Newborn screening is becoming an increasingly important conversation in rare disease care 💙

As therapies and clinical trials continue to develop, discussions around earlier diagnosis are evolving too.

Earlier this year, FAST Australia and the Angelman Syndrome Association Australia contributed a joint submission relating to the future of newborn screening in Australia.

There is still much to consider, but it’s important that Angelman syndrome is part of these conversations.

13/05/2026

Happy (slightly belated) International Nurses Day 💙

We may have missed posting yesterday… mostly because ChatGPT strongly advised against posting twice in one day 😅

But we also figured our nurses deserved a day of their own - so now they get two.

And honestly, Florence Nightingale probably wouldn’t mind us extending her birthday celebrations just a little longer ✨

From clinics and hospitals to research, care coordination and the everyday moments that often go unseen, nurses play an enormous role in supporting families living with Angelman syndrome.

They advocate, problem solve, reassure, coordinate, educate and somehow manage to keep systems moving, often while juggling far more than most people realise.

We are incredibly grateful for the nurses who support our community every day, especially those helping families navigate complex care and preparing Australia for the future of Angelman syndrome therapies.

Thank you for everything you do 💙

11/05/2026

Beyond the smile there is so much more 💙

Angelman syndrome is often recognised for the smiles, but families also navigate sleep deprivation, seizures, constant supervision, endless appointments and the invisible complexity that comes with caring for someone with a rare condition.

The Beyond the Smile campaign exists to help people better understand these realities while also celebrating the incredible personalities, resilience and joy within our community.

We’ve created awareness assets and resources for families and supporters to use in workplaces, schools, local communities and networks. 👉https://cureangelman.org.au/beyond-the-smile-share

And if you know a business, organisation or community group interested in helping us take the campaign further, we’d love to hear from you 💙

09/05/2026

Today we celebrate the mums and mother figures in our community 💙
The ones coordinating appointments, advocating fiercely, learning complex medical language, navigating uncertainty, celebrating every milestone and continuing to show up, day after day.

Your strength is often quiet. Your resilience is extraordinary.

Through the hard days and the beautiful ones, our kids remind us who they are with the hugs that never quit.
We also recognise that Mother’s Day can hold many emotions, joy, grief, exhaustion, love, longing and everything in between.

To every mum and mother figure walking this journey: thank you. You matter more than words can say.

We’d love to see your favourite Angelman hugs in the comments 💙

Address

Quondong Cl
Cairns, QLD
4870

Telephone

+611300078108

Website

http://cureangelman.org.au/

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