Huxley's Heroes

04/11/2026

💙 HOW BLOODY SPECIAL IS THIS LITTLE LEGEND! 💙

At just 8 years old, Lincoln has decided he wants to make a difference for our Huxley! 🥹

On his 9th birthday, he's saying goodbye to those gorgeous curls and shaving his head to help raise funds for Huxley's much-needed intensive therapies. Which we can all see are having MASSIVE development gains each time we go.

We are honestly blown away by the kindness and generosity of this beautiful boy. To think that someone so young has such a big heart and wants to do something like this for Hux means more to us than words can explain. 💙

Lincoln, you are an absolute superstar, and we are so incredibly proud of you! 🦸‍♂️

Let's get behind this little champion and make his BIG CHOP one to remember!

Every donation, big or small, makes a difference.

28th November – Lincoln's BIG CHOP! ✂️💙
You definitely are a Huxley’s Hero 💙

01/11/2026

Well… our 5km for FAST certainly didn't go quite as planned! 😂💙

After six hours in the car with the kids on Sunday, we finally arrived in Adelaide to absolutely POURING rain! 🌧️

Hux had missed his day sleep, was completely out of routine and was NOT having a bar of any of it! Pretty much screamed and cried the entire time we were trying to organise our shopping in the teeming rain. 🫠

After multiple failed attempts at getting him to bed, we decided to give up, lace up our shoes and head down to the Henley Beach Esplanade to get our 5kms in for FAST Australia! 💙

And wouldn't you know it… all kids were happy as Larry! 😂

There must be something about the beach, the fresh air and watching those big storms roll in because Hux went from being completely beside himself to smiling and laughing the whole way!

Every kilometre walked or run this weekend was for our beautiful boy and everyone living with Angelman Syndrome. So proud to be part of something that brings people together for a cause so close to our hearts. 🥹

And if you didn't get a chance to walk or run yesterday, there's still time to jump on and donate.

💙 Even a small donation makes a difference and helps support the fight for a cure for Angelman Syndrome. Every little bit counts, and we are so grateful for everyone's support! 🫶

https://move-for-a-cure-5k-your-way.raiselysite.com/⁠

As for why we're in Adelaide, today Hux starts another week of intensive therapy with NAPA!

Coming away for these intensives is bloody hard on everyone, especially after the rough couple of months we've had. The travelling, disrupted routines, lack of sleep and the physical and emotional exhaustion all add up.

But we're here and ready to give it everything we've got.

This is a big week for our little man and we're hoping like anything to see some more of that happy, cheeky Hux we've been missing lately. 💙

Here's to a big week, little mate

01/11/2026

THIS PHOTO IS EVERYTHING! 🥹💙

GUESS WHO'S BACK!!! 💪🔥

After breaking his hip, Mitch is BACK! And today he smashed out his first 15km since this time last year!

Different year, same determination, same incredible heart. Still showing up for Huxley and still moving for a cure! 💙

Once Huxley's Hero, always Huxley's Hero! 🦸‍♂️💙

22/10/2026

💙💜 MOVE FOR A CURE 2026 – 5KM YOUR WAY! 💜💙

COME ON EVERYONE, LET'S GET BEHIND THIS!

On Sunday 1 November, we're asking you to give just 5 kilometres of your time to help raise funds and awareness for Angelman syndrome and support the search for a cure.

🚶 Walk it
🏃 Run it
🚴 Ride it
🛴 Scoot it
🏊 Swim it
🏠 Even jump on the treadmill while watching TV!

5KM YOUR WAY – wherever, whenever and however you like!

💙 Remember what Mitch did for us?

Last year, Mitch ran over 1,100 kilometres from Broken Hill to Newcastle, completing 27 marathons in 29 days, all for our kids living with Angelman syndrome.

So many people wanted to support Mitch, join him for a few kilometres and be part of something incredible.

Well, now it's your turn!

Mitch gave us over 1,100 kilometres. All we're asking from you is FIVE! 💪💜

Our family will be travelling to Adelaide that Sunday for Huxley's next NAPA intensive therapy booster, so we'll be completing our 5 km together along Henley Beach in the late afternoon/evening.

For those in Broken Hill, I'll share a meeting location for anyone wanting to complete their 5 km together. But you absolutely don't have to join a group!

💜 HOW TO GET INVOLVED

✅ Register through the link provided and join our team, Huxley's Heroes.
✅ Get your family, friends and workmates involved.
✅ Ask for sponsorship and get some fundraising happening!
✅ Can't physically complete 5 km? Please share this post and encourage someone else to take part!

Every registration and every dollar raised helps support research towards a cure and children living with Angelman syndrome.

We've seen what our community can achieve when everyone gets behind a cause. Let's do it again!

5 kilometres. Your way. For a cure. 💙💜

🔗 To REGISTER follow the link in our biography

https://move-for-a-cure-5k-your-way.raiselysite.com/huxleys-heros

22/10/2026

💙💜 MOVE FOR A CURE 2026 – 5KM YOUR WAY! 💜💙

COME ON EVERYONE, LET'S GET BEHIND THIS!

On Sunday 1 November, we're asking you to give just 5 kilometres of your time to help raise funds and awareness for Angelman syndrome and support the search for a cure.

🚶 Walk it
🏃 Run it
🚴 Ride it
🛴 Scoot it
🏊 Swim it
🏠 Even jump on the treadmill while watching TV!

5KM YOUR WAY – wherever, whenever and however you like!

💙 Remember what Mitch did for us?

Last year, Mitch ran over 1,100 kilometres from Broken Hill to Newcastle, completing 27 marathons in 29 days, all for our kids living with Angelman syndrome.

So many people wanted to support Mitch, join him for a few kilometres and be part of something incredible.

Well, now it's your turn!

Mitch gave us over 1,100 kilometres. All we're asking from you is FIVE! 💪💜

Our family will be travelling to Adelaide that Sunday for Huxley's next NAPA intensive therapy booster, so we'll be completing our 5 km together along Henley Beach in the late afternoon/evening.

For those in Broken Hill, I'll share a meeting location for anyone wanting to complete their 5 km together. But you absolutely don't have to join a group!

💜 HOW TO GET INVOLVED

✅ Register through the link provided and join our team, Huxley's Heroes.

✅ Get your family, friends and workmates involved.

✅ Ask for sponsorship and get some fundraising happening!

✅ Can't physically complete 5 km? Please share this post and encourage someone else to take part!

Every registration and every dollar raised helps support research towards a cure and children living with Angelman syndrome.

We've seen what our community can achieve when everyone gets behind a cause. Let's do it again!

5 kilometres. Your way. For a cure. 💙💜

🔗 REGISTER HERE

moveforacure : Make a donation today to support moveforacure

20/10/2026

Slowly, slowly, our brave boy is finding his way back. 💜

Just over 6 weeks since being flown out with Influenza A, and today we finally saw a little glimpse of our boy coming back. 🥹💜 omgf its been hard 🫠😭

Small steps, but absolutely massive wins!

A huge thank you to Chelsea at .Thank you for teaching us patience and show dedication and for continuing to show up for Huxley, even on his hardest days. We're so grateful to have you in his corner. 💜

One little step at a time. 🫶