QENDO Australia

07/06/2026

New ManageEndo video 🎥

Living with endometriosis or persistent pelvic pain can be complex, but having the right support and a clear management plan can make a real difference.

In this video, Professor Danielle Mazza (AM FAHMS) discusses the important role of GP-led care and introduces the Endometriosis Management Plan (EMP) — a tool developed as part of Australia's National Action Plan for Endometriosis to support better communication, personalised care, and shared decision-making.

The video explores the importance of early diagnosis, symptom management, advocacy, and working collaboratively with your healthcare team to improve long-term outcomes and quality of life.

Whether you're newly diagnosed or have been navigating symptoms for years, this resource provides valuable insights into managing endometriosis and accessing the support you deserve.

Watch now on qendo.org.au/manageendo or youtube.com/ 💜

06/06/2026

Pain with s*x is one of the most common — and least talked about — symptoms of endometriosis 💜

In this blog, QENDOCare Pelvic Health Physiotherapist Sophie Alderslade explores why painful s*x happens, the role of the pelvic floor and nervous system, and the practical strategies that can help make intimacy feel safer and more comfortable.

If you've ever felt alone, frustrated, or unsure where to turn for support, this is a reminder that painful s*x is real, common, and treatable.

Read Sophie's blog here: https://www.qendo.org.au/blog/managing-s*xual-pain-in-endometriosis-pelvic-physio-perspective-by-sophie-aldersade

05/06/2026

🌿 Join Sadie in Adelaide for a Peer Support Group Meet-Up 🌿

The QENDO team warmly invites you to join us for a relaxed and supportive catch-up in Sydney — a safe space to connect, share, and feel understood 🫂

📍 Where: Alimentary, Jetty Road, Brighton
☕ Come along for a coffee, tea, or bite to eat as we spend some time together in community

Living with endometriosis, adenomyosis, PCOS, infertility, or pelvic pain can feel incredibly isolating at times — but you don’t have to navigate it alone.

This meet-up is an opportunity to connect with others who truly understand, share experiences, listen, and simply be in a space where you can show up exactly as you are. There’s no pressure, no expectations, and no need to explain yourself.

Whether you’re newly diagnosed, still searching for answers, supporting a loved one, or simply looking for connection with people who “get it,” you are so welcome here 💛

Come along for support, connection, and community — whether it’s your first time attending or you’ve joined us before, we’d love to welcome you ✨

Arrive when you can and stay as long as feels right.

To register, visit qendo.org.au/events/meetadljul

04/06/2026

People living with endometriosis and pelvic pain are exhausted.

Exhausted from waiting years for a diagnosis. From fighting to be believed and from spending thousands of dollars out of their own pockets just to access basic care.

And now they are being told that one of the treatment options many rely on will simply disappear.

Let’s be clear. We know Zoladex is not the right treatment for everyone. But for some people it has been life-changing. It has helped them manage pain, stay in work, care for their families, delay surgery, plan fertility treatment, and regain some quality of life.

When treatment options for endometriosis are already limited, removing an established option without adequate alternatives is unacceptable.

What makes this even harder to understand is that this is understood to be a commercial decision, not a decision based on safety or effectiveness.

People living with endometriosis should not be forced into additional specialist appointments, medication changes, treatment uncertainty, and increased out-of-pocket costs because of a commercial decision.

And we have to ask the obvious question:

If this medication remains available for the management of prostate cancer, why are people with endometriosis and breast cancer being told to simply find another option?

Women’s+ health cannot continue to be treated as optional.

For years governments have spoken about improving care for endometriosis. Yet when an established treatment is removed from the market, patients are once again left carrying the burden.

That is not good enough.

QENDO is raising these concerns directly with decision-makers, government representatives, clinicians and sector partners. We are calling for urgent action to protect patients, ensure affordable transition pathways, and prevent people from being left behind.

This community deserves better than losing another treatment option and being told to cope with the consequences.
— Jess Taylor, CEO, QENDO

03/06/2026

To the person who has ever wondered if they're overreacting...

If you've been told:
"It's just a bad period."
"Everyone gets cramps."
"Maybe you're just stressed."

This is your reminder that your pain is real.

Living with persistent pelvic pain, endometriosis, adenomyosis, or symptoms that impact your daily life can be incredibly isolating — especially when your experiences are dismissed, minimised, or misunderstood.

But pain that stops you from living your life isn't something you should simply have to tolerate.

You deserve answers.
You deserve to be listened to.
You deserve validation, support, and healthcare that takes your symptoms seriously.

At QENDO, we know how powerful it can be to hear the words, "I believe you." That's why our community and multidisciplinary team are here — to listen, support, and walk alongside you as you navigate your journey.

You are not overreacting.
You are not a burden.
And you do not have to do this alone. 💙

02/06/2026

🌸 A wonderful day of learning, connection, and collaboration. 🌸

On Saturday, Dajana and Gill had the privilege of attending the Annual Women and Children's Health Update Brisbane 2026, joining healthcare professionals passionate about improving outcomes for women and children across Australia.

Events like these are so important — not only for sharing knowledge and the latest developments in healthcare, but for building meaningful relationships with people who are equally committed to creating positive change.

We were grateful for the opportunity to have some fantastic conversations, make new connections, strengthen existing partnerships, and continue raising awareness of the experiences of those living with endometriosis, adenomyosis, and persistent pelvic pain.

A huge thank you to the organisers, presenters, and everyone who took the time to connect with us throughout the day. We always leave these events feeling inspired, hopeful, and reminded of the power of community and collaboration.

Together, we're creating a future where those affected by pelvic pain are better understood, better supported, and never have to navigate their journey alone. 💜

01/06/2026

✨ We’ve had a glow-up! ✨

The QENDO Nurse Support Program webpage has been refreshed, and we’ve reimagined the way the program runs to make it even easier for our community to access support when they need it most. 💙

And the best part? Bookings are officially OPEN from today! 🎉

Whether you're navigating a new diagnosis, preparing for treatment, processing a difficult appointment, or simply looking for someone who understands, our QENDO Nurse is here to support you.

Led by a nurse with lived experience of endometriosis and years of healthcare experience, these free support sessions provide a safe, compassionate space to talk, ask questions, and feel heard.

💙 Free to access
💙Tailored to your individual journey
💙 Designed for our community, with our community in mind

We’re incredibly proud to continue growing this first-of-its-kind support service and can't wait to connect with more people across Australia.

📲 Book your session today and explore the refreshed program page:
qendo.org.au/nurse

31/05/2026

31/05/2026

What Diana shares in this story will feel familiar to so many in our community 💜🥺

A deeply personal reflection on living with endometriosis, navigating chronic pain, and continuing to advocate for answers — even when it’s exhausting.

Thank you, Diana, for sharing your story so openly and honestly.

Read Diana’s story here: https://www.qendo.org.au/blog/a-personal-story-diana

30/05/2026

A few weeks on, and we’re still holding onto the feeling of Gather Brisbane 💜

The conversations, the vulnerability, the laughter, the quiet moments of understanding between people who just got it. There’s something incredibly powerful about being in a room filled with people who know what it means to live with pain, advocate for themselves, and keep showing up anyway.

Looking back at these beautiful photos has reminded us just how special the day really was. Not because everything was polished or perfect — but because it was real. Honest connection, shared stories, and a community that continues to show up for one another in the most meaningful ways.

To everyone who joined us, shared space with us, and made Gather Brisbane what it was — thank you. We’re still reeling from it all, in the very best way ✨