PIPA (Preterm Infant's Parent's Association)

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PIPA (Preterm Infant's Parent's Association) P**A is a charity which provides support to parents and families who experience premature births.

It is registered with the Australian Charities and Not-for Profits Commission as a charity and Deductible Gift Recipient (DGR)

❤️ SOMETHING ONLY NICU PARENTS WOULD UNDERSTAND… ❤️ You learn to celebrate quietly.Because in the NICU, you quickly lear...
26/09/2026

❤️ SOMETHING ONLY NICU PARENTS WOULD UNDERSTAND… ❤️
You learn to celebrate quietly.
Because in the NICU, you quickly learn that one good moment doesn't always mean tomorrow will be good too.
You celebrate the extra 10 grams.
The few extra milliliters.
The better oxygen number.
The first time you hear, “They had a good night.”
The first successful attempt at something you never imagined would feel like a victory.
You learn to smile when things are going well… while a tiny part of you is still afraid to get too excited.
You learn how to fall apart and keep going at the exact same time.
And eventually, you realize that the person who walked into that NICU isn't the same person who walked out.
Because the NICU doesn't just change babies.
It changes parents, too.
What is something you learned in the NICU that you don't think anyone outside of it could truly understand? Tell us.

Thank you to @ Preemie and NICU Family Support and Guidance for this post

Thank you to  Kedron-Wavell  Community Grants  for their grant to help P**A host the "Prems in the Park" Family Picnic o...
25/09/2026

Thank you to Kedron-Wavell Community Grants for their grant to help P**A host the "Prems in the Park" Family Picnic on Sunday 1 November in New Farm. This grant money allows P**A to supply the food and drinks, face-painter and other activities at no charge. Hope you have all saved the date and we look forward to seeing you on 1 November.

Meet one of P**A's many prem friends. She was born at 26 weeks and is now a happy and bright 9 year old.
25/09/2026

Meet one of P**A's many prem friends. She was born at 26 weeks and is now a happy and bright 9 year old.

Nominate the nurse who looked after your prem or sick baby in the neonatal unit for  the Australian College of Neonatal ...
17/09/2026

Nominate the nurse who looked after your prem or sick baby in the neonatal unit for the Australian College of Neonatal Nurses (ACNN) annual Neonatal Nurse Family Appreciation Award. The Award provides an opportunity for a family to nominate a nurse who they feel deserves to be recognised for delivering outstanding care and support to a family and their infant while in the neonatal unit.
Nominations for the 2026 award opened on Monday 14 September 2026 and close 5 pm on Monday 12th October. The winner is announced on World Prematurity Day - 15 November.
Please use this link to nominate a nurse for the Family Appreciation Award: https://forms.cloud.microsoft/r/xRegpuQdCa
Inquires to [email protected].
All Neonatal Nurses who receive a nomination will be acknowledged and receive a certificate of appreciation.
The winner will receive an award of $500 in recognition of their achievement

You may find this website useful. Neopedia was created by the Global Foundation for the Care of Newborn Infants (GFCNI) ...
10/09/2026

You may find this website useful. Neopedia was created by the Global Foundation for the Care of Newborn Infants (GFCNI) in collaboration with parents organisation and reviewed by experts worldwide. It provides reliable, accessible information on neonatal care, prematurity and beyond.
https://www.neopedia.org

Save the date.P**A's annual "Prems in the Park" family picnic will be held in New Farm Park on Sunday 1 November 2026. P...
07/09/2026

Save the date.
P**A's annual "Prems in the Park" family picnic will be held in New Farm Park on Sunday 1 November 2026. Prems, their parents, grandparents and siblings are all invited to join us. Fun for the whole family and at no cost. Hope to see you there.

Happy Father's Day. Enjoy your Day. Create some happy memories with your family.
05/09/2026

Happy Father's Day. Enjoy your Day. Create some happy memories with your family.

As a mum to a prem baby you can miss out on many of the milestones and celebrations of pregnancy and birthing. These can...
29/08/2026

As a mum to a prem baby you can miss out on many of the milestones and celebrations of pregnancy and birthing. These can include:
- watching your baby bump grow
- childbirth and parenting classes
- baby shower
- nesting stage of pregnancy
- setting up the nursery and organising the essential newborn baby clothes
- packing your hospital bag
- the choice of where and how you have your baby
-" golden hour" after birth
- congratulations from friends and family; the balloons and flowers
The loss of part of your pregnancy and changes to your birthing plans can cause you to feel sad. This can then be followed by feelings of guilt as you feel you should be more concerned about your baby and not what you missed out on. These are all normal feelings and should not be dismissed as unnecessary and selfish. They are all part of the emotional journey of having a baby born too soon.
Did you feel this loss?
What did you miss out on?

23/08/2026

Just in case you didn't see this story on Channel Nine early in the week. Baby born at the RBWH believed to be Australia's most premature baby to survive. The story created a lot of interest and discussion. Queensland Health updated their Maternity and Neonatal Guideline "Perinatal care of the extremely preterm baby" in February 2026. If you want the most update information on 22 week plus babies have a read of the new Consumer Information Sheet "Babies born extremely early"https://www.health.qld.gov.au/__data/assets/pdf_file/0025/1007935/c-xtreme-preterm.pdf

Was your prem born between 22 to 25 weeks gestation? Can you help with this important survey?The Perinatal Epidemiology ...
23/08/2026

Was your prem born between 22 to 25 weeks gestation? Can you help with this important survey?
The Perinatal Epidemiology Group at The University of Melbourne, which includes obstetricians, midwives and pregnancy researchers is undertaking a research project to examine the outcomes (both risks and benefits) following caesarean compared with vaginal birth for mums and babies at very early gestational age – 22 to 25 weeks. This is a much under-researched area and despite becoming an increasingly common scenario in clinical practice, very little is understood about the impact of mode of birth at this gestation. The survey is designed to better understand what matters most to parents and families facing the possibility of having a baby born extremely early (before 25+6 weeks). It aims to gather your views, experiences, and priorities—especially around the information and support you need to help make difficult decisions about your care and how your baby will be delivered. By listening directly to families, the survey will help ensure that our broader research focuses on the questions and outcomes that are most important to you, ultimately helping improve how clinicians communicate and support parents and their babies’ during these challenging situations. Survey URL here: https://redcap.link/oxst6itx
Further information contact : [email protected], P +61432544100
Epidemiology Group | Department of Obstetrics and Gynaecology , Mercy Hospital for Women

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Brisbane, QLD
4029

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