Shannon Garrett Hiking Challenge - TDMB for Children's Brain Cancer

09/03/2026

Hey everyone just a quick location update.

The after service celebration will now be held at Narre warren football club

Address : Kalora Park Fox Rd, Narre Warren North VIC 3804

06/03/2026

We would like to let everyone know about the arrangements for Shannon’s funeral.

The funeral service for Shannon Garrett will be held on Friday the 13th of March at Bunurong Memorial Park. It will be in the Stratus Chapel at 2:30pm.

Shannon’s wishes was to celebrate his life with his family and friends, and remember him with happiness.
There will be a celebration to follow at Narre Warren Football Club. More information to follow soon.

The service will also be live streamed for those who cannot attend

Thank you
Garrett Family

03/03/2026

Hey everyone,

We just wanted to give everyone a final update.

Shannon passed away yesterday peacefully, surrounded by family and love.

Thank you again for all the messages that everyone sent through and everyone who came in to see him.
We will provide details about the service in the next few days.

Thank you
Garrett family

26/02/2026

Hey everyone

We just wanted to give an update for everyone about the state that Dad (shannon) is in. He is currently been moved into Palliative Care at the Alfred with the focus to be on making dad comfortable. Unfortunately it's hard for dad to open up his eyes and with the one he can open, his eye sight is very limited. We feel just with his current state, it would be best to contact us directly.

Malik ph: 0476 297 584
Arlyah ph: 0448259123
Jason ph: 0437 075 751

You can contact us for updates, but please understand we are also spending quality time with Dad.
If you wish to come and visit, please send one of us a message to make sure the room isnt overflowing with visitors

Please also feel free to send through messages you want us to read out to Dad or voice memos/videos to play out loud

At the moment Dad is at the Alfred visiting hours are 10am-8pm just keep in mind that he might not be fully awake or aware but he can still hear

Thanks Garrett family

29/01/2026

This sat in my drafts for months. Today it feels right. Grateful for the support, protective of my independence, and still moving forward.

RUN DIPG
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26/01/2026

I got a shock when I saw this photo… and yeah, there were some tears. It looks like a man defeated. And I won’t lie — it is getting tough.

Radiotherapy is finished. I’m headed back into hospital due to some concerns, and I’m learning (slowly) that hospital admissions are just part of the fight now. That’s a hard thing to accept, but it’s reality.

What this photo doesn’t show is that I’m still here. I’m still fighting. I’m still determined to do whatever I can — for myself, and for the kids and families facing DMG every single day.

This disease is brutal. It takes quickly. It doesn’t care who you are.

But I’m not done yet. One step, one setback, one admission at a time — we keep going.

RUN DIPG

18/01/2026

Those stats are from 2025.
Fast forward to 2026, and the reality is very different.

Right now, I have no use of my legs. I struggle to get out of bed most days due to extreme fatigue. Not because I stopped fighting, training, or caring — but because DMG keeps taking, relentlessly.

This disease doesn’t care how fit you were, how disciplined you are, or how hard you push. It doesn’t negotiate.

And that is exactly why awareness, research, and funding through is so critical. Families facing this deserve better than statistics and timelines.

I am not done yet.
If anything, this just creates another opportunity to raise awareness, push harder, and raise more funds for the kids and their families.

We keep going.

16/01/2026

Well… radiotherapy is definitely doing something 😅

I’ve lost a lot more hair and now have a very respectable bald patch making an appearance. It’s going quick now.

No refunds. No delays. No warning signs.
Just another reminder that nothing about this ride is subtle 😂

15/01/2026

Update. Important but flimsy one. Please try and see it through!

12/01/2026

Incredibly proud to say I know this guy. Scott Holmes what a legend. Hats off to you and the team! Not to late to donate either!

💜 RIDE FOR LUCY 2026 – DAY 10 | THE FINAL DAY 💜

Today marks the final day of Ride for Lucy 2026 — and what an incredible journey it has been.
A huge thank you to our Final Day Sponsor –
Your incredible support means so much to our whole family and the entire Ride for Lucy team. Please jump over and follow the amazing team at to show your appreciation.
📍 Strathalbyn → Glenelg
🚴 Rider: Scott
📏 Distance: 80km
If you haven’t had the chance to donate yet — it’s not too late!
You can still help us reach our $10,000 goal and support vital DIPG research:
👉 https://rundipg-org.grassrootz.com/ride-for-lucy-2026
💜 ESTIMATED ARRIVAL IN GLENELG: 1:00–2.00pm (will update via the story during the day)
🍻 Join us at The Grand for a drink from 12:50pm — we’d love to see you there to help us celebrate the finish!
Thank you to everyone who has followed, shared, donated and supported along the way.
Keep an eye on our socials as we share the final moments of this journey 💜

03/01/2026

Update – Ride for Lucy has commenced

Ride for Lucy has officially begun.

The plan was that this would be my next challenge — another way to raise awareness and funds. As my health deteriorated, that plan shifted from me riding, to riding on a tandem bike with my son… and ultimately to one of the hardest messages I’ve had to send — messaging Scott to say, I’m out.

I want to impress upon everyone, especially those who may not realise what goes on behind the scenes, that fundraisers like this don’t just “happen”. Having just completed a major fundraiser myself, I can tell you they come at great personal expense — physically, emotionally, financially. They require enormous energy, months of training, sacrifice, dedication, and plenty of blood, sweat, and tears.
And here’s the thing — Scott and the team are back doing it again.
For a second time.

Absolute legends. They have my utmost respect. I only wish I could be offering more than words and support from the sidelines.

So this is what I can do: shine a light on these legends and ask everyone reading this to dig deep — for the kids, for their families, and in recognition of the incredible effort Scott and the Ride for Lucy team are putting in.
Please support them if you can. It matters more than you know. ❤️

💜RIDE FOR LUCY 2026 – DAY 1💜

Today we begin the Ride for Lucy 2026 journey and we can’t wait!

A huge thank you to our Day 1 Sponsor –

Your amazing support means so much to our whole family and the Ride for Lucy team.

Please jump over and follow to show your appreciation.

💜Geelong → Apollo Bay
💜Riders: Scott & Mel
💜Distance: 116km

If you haven’t had the chance to donate yet, you can do so here and help us reach our $10,000 goal:
https://rundipg-org.grassrootz.com/ride-for-lucy-2026
Keep an eye on our socials as we share the journey!

31/12/2025

Happy New Year!! I feel terrible but are remaining strong with all your support!