Without a Ribbon Inc

Without a Ribbon Inc “Without a Ribbon” fighting for support of those diagnosed with Rare Cancer in Australia.
(1)

Established in the 2014 Financial Year, “Without a Ribbon” is a small rare cancer fund raising foundation established to assist those who are so small in numbers that they are not allocated a Ribbon through existing Cancer related Councils throughout the world.

“Without a Ribbon” management and Board will be established with the assistance of volunteers who do not suffer from ACC and who have vi

ewed feedback provided by rare cancer sufferers. Those who have been diagnosed with ACC, also referred to as ADCC, remain, for the greater time, unsupported by the majority of Cancer Charities. From the feedback by those diagnosed with rare cancer, the main support required appears to be:
- Support available when first diagnosed. Support links to online communities with your rare cancer, information regarding worldwide treatment options;
- Face to Face support with others who are going through the same journey within Australia to source information about treatment options and specialists available locally;

If you need to reach us, please reach out through a private message here on Facebook, through email to [email protected] or through mail to PO Box 121 ALLORA QLD 4362

We are here to ensure, that no one fights alone.

If you're still on the fence, this is your nudge.Gypsy Cats + Northern Rivers Conservatorium Jazz Orchestra + a room ful...
31/05/2026

If you're still on the fence, this is your nudge.
Gypsy Cats + Northern Rivers Conservatorium Jazz Orchestra + a room full of people who showed up because it matters.

2pm. Mullumbimby Ex-Services Club. $30 at the door.

Come on down.
🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/

cats



bay.nsw
ABC North Coast

🎷 Mullum Jazz Beats for Cancer 🎶 Join us for an unforgettable afternoon of live jazz and community spirit at the Mullumbimby Ex-Services Club on Sunday, 31 May 2026 at 2:00pm. Featuring performances by Gypsy Cats and the talented musicians from the Northern Rivers Conservatorium, this sp...

Today’s the day.Mullumbimby, we’re so ready for this.This afternoon, this community gets to show up for people who’ve of...
30/05/2026

Today’s the day.

Mullumbimby, we’re so ready for this.

This afternoon, this community gets to show up for people who’ve often had to face the hardest moments alone.

Doors open at 2pm. Grab your ticket at the door or online (link below). Come early. Bring a friend. Make a memory.

See you there.
🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm
$25 from https://www.123tix.com.au/events/52329/jazz-beats-for-cancer)

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/

cats

🎷 Mullum Jazz Beats for Cancer 🎶 Join us for an unforgettable afternoon of live jazz and community spirit at the Mullumbimby Ex-Services Club on Sunday, 31 May 2026 at 2:00pm. Featuring performances by Gypsy Cats and the talented musicians from the Northern Rivers Conservatorium, this sp...

Still figuring out what to do this weekend?Come and spend your Sunday afternoon somewhere that actually means something....
29/05/2026

Still figuring out what to do this weekend?

Come and spend your Sunday afternoon somewhere that actually means something.
Live jazz. Good people. A relaxed Mullumbimby vibe.

But behind it all… is something deeper.

It’s for people diagnosed with rare cancers who often go through it without ever meeting someone who truly understands what they’re facing.

No shared stories. No community. Just questions.

Come and support them:

🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm
$25 from https://www.123tix.com.au/events/52329/jazz-beats-for-cancer)

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/

cats


🚨 Rare Cancer Awareness: CIC-DUX4 Sarcoma 🚨CIC-DUX4 Sarcoma is an uncommon and highly aggressive form of soft tissue can...
29/05/2026

🚨 Rare Cancer Awareness: CIC-DUX4 Sarcoma 🚨

CIC-DUX4 Sarcoma is an uncommon and highly aggressive form of soft tissue cancer that primarily impacts children and young adults. It typically arises in the arms, legs, trunk, or deep muscle tissues and can spread rapidly, particularly to the lungs.

In contrast to Ewing Sarcoma, this type of cancer features a distinct genetic fusion between the CIC and DUX4 genes, which leads to uncontrolled tumour growth.

⚠️ Common symptoms may include:

▪️ A rapidly enlarging lump or swelling
▪️ Pain or tenderness
▪️ Weakness or difficulty in movement
▪️ Fatigue and weight loss
▪️ Coughing or breathing difficulties if the cancer metastasizes to the lungs

🧬 Diagnosis usually involves:

✔️ MRI and CT imaging
✔️ Biopsy analysis
✔️ Genetic testing for the CIC-DUX4 fusion
✔️ Immunohistochemistry markers like CD99, WT1, DUX4, and ETV4

Due to the rarity and aggressiveness of this sarcoma, prompt diagnosis and treatment are crucial.

💛 Without a Ribbon continues to support patients and families affected by rare cancers through awareness initiatives, donations, volunteering, sponsorships, and community engagement.

Every share contributes to raising awareness for rare cancers that need more focus.

This weekend, Mullumbimby comes together for something that really matters.Come spend your Sunday afternoon somewhere th...
28/05/2026

This weekend, Mullumbimby comes together for something that really matters.

Come spend your Sunday afternoon somewhere that actually means something.

Live jazz. Good people. A relaxed Mullumbimby vibe.
But behind it all… is something deeper.

Just 3 days to go.

Have you booked your tickets yet?
🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm
$25 from https://www.123tix.com.au/events/52329/jazz-beats-for-cancer)

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/


The Australian

ABC North Coast

Just 5 days to go.Have you booked your tickets yet?🎷 Mullum Jazz Beats for Cancer📍 Mullumbimby Ex-Services Club🗓 31 May ...
26/05/2026

Just 5 days to go.

Have you booked your tickets yet?

🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm
$25 from https://www.123tix.com.au/events/52329/jazz-beats-for-cancer)

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/

cats

McGrath Foundation

🎷 Mullum Jazz Beats for Cancer 🎶 Join us for an unforgettable afternoon of live jazz and community spirit at the Mullumbimby Ex-Services Club on Sunday, 31 May 2026 at 2:00pm. Featuring performances by Gypsy Cats and the talented musicians from the Northern Rivers Conservatorium, this sp...

25/05/2026

There are moments that remind us why we do what we do.

Last semester, one of the incredible students completing their internship with us through Griffith University spent time researching rare cancers and building resources designed to help people newly diagnosed navigate those overwhelming first days and weeks.

Like every student who joins us, they were told something we truly believe:

“One day, the work you do here is going to make a difference in someone’s life.”

None of us realised just how close to home that difference would be.

Recently, this student’s family received devastating news. A loved one had been diagnosed with a rare cancer.

In the middle of the fear, uncertainty and endless questions that come with hearing the words “you have cancer”, they remembered the work they had done during their internship.

By chance, this was one of the rare cancers they had researched.

They went back to their notes. They found the information. They shared easy to understand explanations, Australian support resources and practical guidance to help their family member understand what was happening and what came next.

And it helped ease their fears.

This is why the Griffith University internship program with Without a Ribbon matters.

Our students are not making coffee, emptying bins or even patting puppies. They are helping research rare cancers, building resources and creating information that may one day become a lifeline for someone facing one of the hardest moments of their life.

Rare cancers are often isolating. Information can be difficult to find. Families can feel alone.

But sometimes, knowledge changes everything.

To our anonymous student and their family, Thank you, for allowing us to share this story. Your experience reminds us all that every piece of research, every resource and every hour volunteered can make a real difference.

Because behind every diagnosis is a person, a family and a story.

🚨 Rare Cancer Awareness: DICER1 Syndrome-Associated SarcomaMany individuals are unfamiliar with DICER1 Syndrome-Associat...
23/05/2026

🚨 Rare Cancer Awareness: DICER1 Syndrome-Associated Sarcoma

Many individuals are unfamiliar with DICER1 Syndrome-Associated Sarcoma — a rare form of cancer caused by mutations in the DICER1 gene, primarily affecting children, teenagers, and young adults.

This uncommon condition can lead to tumors in various areas of the body, such as the lungs, brain, kidneys, abdomen, and reproductive organs. Since symptoms often vary based on the tumor's location, diagnosis may sometimes be postponed.

⚠️ Potential symptoms can include:

▪️ Abdominal pain or swelling
▪️ Breathing difficulties
▪️ Headaches or seizures
▪️ Pelvic pain or unusual bleeding
▪️ Fatigue and unexplained weight loss

🧬 The importance of awareness:

Early detection, genetic testing, and consistent monitoring can enhance treatment results and uncover inherited risks for family members.

💛 Organizations like Without a Ribbon are dedicated to supporting patients and families impacted by rare cancers through awareness initiatives, support programs, volunteering, sponsorships, and donations.

Every share contributes to raising awareness for rare cancers that need more focus.

Just over a week to go.Now’s the time to lock it in.🎷 Mullum Jazz Beats for Cancer📍 Mullumbimby Ex-Services Club🗓 31 May...
23/05/2026

Just over a week to go.

Now’s the time to lock it in.

🎷 Mullum Jazz Beats for Cancer
📍 Mullumbimby Ex-Services Club
🗓 31 May | 2pm

$25 from https://www.123tix.com.au/events/52329/jazz-beats-for-cancer)

Can’t make it but want to support Without a Ribbon?
Please donate using this secure link https://withoutaribbon.org/donate/

-serivicesclubCats
rivers Conservatorium Jazz Orchestra

🎷 Mullum Jazz Beats for Cancer 🎶 Join us for an unforgettable afternoon of live jazz and community spirit at the Mullumbimby Ex-Services Club on Sunday, 31 May 2026 at 2:00pm. Featuring performances by Gypsy Cats and the talented musicians from the Northern Rivers Conservatorium, this sp...

🚨 Rare Liver Cancer Awareness 🚨Many people are unaware of Hepatic Epithelioid Angiosarcoma (HEA) — a rare and aggressive...
21/05/2026

🚨 Rare Liver Cancer Awareness 🚨

Many people are unaware of Hepatic Epithelioid Angiosarcoma (HEA) — a rare and aggressive form of cancer that originates from the blood vessel cells in the liver.

Due to symptoms such as fatigue, abdominal pain, nausea, or weight loss being often ignored, HEA is usually diagnosed at a later stage. Increased awareness can lead to earlier detection.

🔍 Why is HEA considered dangerous?
▪️ Very rare and rapidly growing
▪️ Typically diagnosed late
▪️ Can quickly spread to other organs
▪️ Symptoms may initially appear “common”

🩺 Common warning signs include:
• Pain in the upper right abdomen
• Fatigue and weakness
• Unexplained weight loss
• Decreased appetite
• Jaundice
• Swelling in the abdomen

To confirm a diagnosis, doctors utilize imaging scans, biopsies, and specific tumor markers such as CD31, CD34, ERG, and FLI1.

💛 The Importance of Support
Organizations like Without a Ribbon are dedicated to assisting patients and families impacted by rare cancers through awareness initiatives, community support, conferences, volunteering, and donations.

Every share can help raise awareness.
Every donation can provide support to someone battling a rare cancer.

Address

PO Box 121
Allora, QLD
4362

Alerts

Be the first to know and let us send you an email when Without a Ribbon Inc posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Without a Ribbon Inc:

Share