Cornelia de Lange Syndrome Awareness

Cornelia de Lange Syndrome Awareness Cornelia de Lange Syndrome or CdLS is a rare genetic disorder. This page is to help raise Awareness. Each like is helping the next person learn about this.

My daughter was diagnosed with Cornelia de Lange Syndrome on 6th January 2016. Iv created this page because i had not a single clue what this syndrome was or had never even heard of it. They don't do any testing for this when your pregnant atm unless you have had a previous child. They test for downs syndrome so you are aware of that but no awareness what so ever of CdLS. However there is no limit

s to who this could effect and you have a 1 in 10,000 to 30,000 chance in it happening to your embryo.

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