79 Exons

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79 Exons 🧬 Understanding Duchenne Muscular Dystrophy.
📚 Supporting schools with educational resources.

This past Saturday, the 13th of December we were able to host some families who have been effected by Duchenne muscular ...
16/12/2025

This past Saturday, the 13th of December we were able to host some families who have been effected by Duchenne muscular dystrophy at our first ever Christmas party. It was a beautiful time of connection and celebration, where we were able to see the resilience of these families and the children who have this condition.

I'd like to thank everyone involved in making the day as special as possible, particularly - Georgia Renfrey for all of your help with organisation and present making; Dionisia Blucher for supporting the entire endeavour and organising the amazing presents; the staff at Duchenne Muscular Dystrophy Therapeutic & Behavioural Consulting for your supporting the event; Rhiannon MacLeod for behind the scenes organisation and helping with Glitter Pines registration stuff; Soula Lotsos and Arthur Lotsos for cooking up a storm and providing enough food to feed three times as many people; to everyone who has donated over the past few years - sincerely, thank you! This is what you've helped build. And to the families who trusted us to provide a positive experience for you - I hope you had a blast!

12/10/2023

If you would like the opportunity to enjoy a week of fun and adventure as a star on Australia’s only socially conscious TV travel series ‘Adventure All Stars’, then you should continue reading 👇.

79 Exons has partnered with Charity TV Global and Adventure All Stars to find potential TV Cast for their next season. This ground-breaking filming and fundraising project – screened on television in 25 countries – will transform your life, and the funds raised via this experience will help change the lives of the people our charity supports 💪.

For further information, please contact us via DM, or to register your interest with Charity TV Global directly, you can go to their website and complete their form at: www.charitytvglobal.com/for-tv-cast/

23/09/2023

Exciting News! Australia’s only socially conscious TV travel series ‘Adventure All Stars’ has partnered with 79 Exons … and as a result our charity will benefit from the net proceeds! We have also been asked to find potential TV Cast from our charity database – and we’d love YOU to apply.

Would YOU like to enjoy a week of fun and adventure in a breathtaking (secret) location, with all the action captured by an award-winning film crew? This is the TV travel show with a difference! Real People. Real Emotion. Real Adventure. Adventure All Stars is broadcast in 25 countries to a viewership approaching 100 million people.

Apply now via this link to star on TV and help raise funds for 79 Exons: www.AdventureAllStars.tv

A huge shout out to Adelaide Town Hall, Parliament of South Australia and Adelaide Oval for helping to paint Adelaide, S...
07/09/2023

A huge shout out to Adelaide Town Hall, Parliament of South Australia and Adelaide Oval for helping to paint Adelaide, South Australia red tonight to commemorate World Duchenne Awareness Day.
A day where the global Duchenne community raises awareness of Duchenne muscular dystrophy. 🎈

Dominic adding to the tally at  on Rundle Street. He said that it was the best burger he’s ever had. (Cheeseburger on pa...
11/07/2023

Dominic adding to the tally at on Rundle Street. He said that it was the best burger he’s ever had. (Cheeseburger on panini bread.) 👍🍔

Huge shout out 📢 to  for allowing us to have a jar in July’s   at their Rundle Street restaurant. As school holidays app...
02/07/2023

Huge shout out 📢 to for allowing us to have a jar in July’s at their Rundle Street restaurant.

As school holidays approach, if you find yourself floating around Rundle St, and aren’t sure what to get the kids to eat, we’ve got the perfect solution for you 👇👇

1. Head over to Grill’d Rundle St 🧭
2. Grab yourself a nourishing feed from their mouth-watering menu. Every burger you buy gives you one chance to vote, so stock up! 🍔🍔🍔
3. Drop your Local Matters tokens in the 79 Exons jar to help us fight Duchenne Muscular Dystrophy. 🪙🫙
4. Enjoy your meal knowing you’ve supported a local matter too 😌😁

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Adelaide, SA

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