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CCI Europe

CCI Europe represents Europe in the CCI global network of childhood cancer parents’ and survivors’ support groups. We are here to make it a reality.

Parents, patients, survivors and patient advocates are united to improve the medical and psychosocial care for children and adolescents with cancer all over Europe, to implement the European Standards of Care to eliminate still existing inequalities to improve the quality of survivorship. We as CCI Europe work together with the medical and psychosocial professionals, academia, researchers, scienti

sts, civil society and private organizations for the same aim, to help children and adolescents with cancer to be cured, with no – or as few as possible – long term health problems / late effects. Every child with cancer deserves a chance, no matter where in Europe they live.

22/05/2026

💛 How can young people living with and beyond cancer be supported in adopting and maintaining a healthy lifestyle? How can the unique challenges they face be addressed and overcome?

🌍 If you are a person with lived experience, a healthcare professional, a family member, or simply interested in learning more about healthy lifestyles for people affected by cancer, join us on 27 May 2026 at 17:00 CEST for the next YARN webinar.

🎈 Ian Murphy, Project Coordinator and , will take part in the discussion, sharing the important perspective of and .

During the webinar, we will discuss:�
✨Testimonies from young people with lived experience
✨Best practices for healthcare professionals
✨ Practical strategies to support sustainable lifestyle changes

🔎 The YARN Webinar Series creates a space for open conversations around survivorship, mental well-being, healthy living, and life beyond cancer, helping young people affected by cancer feel supported, informed, and connected.

▶️ Register at: https://ow.ly/umGM50Z38Th

PanCare Youth Cancer Network

06/05/2026

🌟 Day 3 brought the Conference in Glasgow to a close, finishing strong and looking ahead to what’s next!

🗓️ The programme featured a joint session on that meet scientific goals and needs, together with , as well as abstract presentations on the role of patient-reported outcome measures ( ) in clinical trials.

🧩 Sessions also explored the different faces of and highlighted research that listens to survivors and parents, helping to drive progress in childhood cancer.

🔮 The conference closed with a look ahead at what’s next for CCI Europe.

✨ Thank you to everyone who made these days in Glasgow so impactful! See you in Vienna for the CCIEurope2027!

05/05/2026

🌟 Day 2 of the Conference in Glasgow brought even more inspiration and collaboration!

🗓️ The programme featured insightful abstract presentations on making at the national level, alongside a joint session on held together with SIOP Europe, the European Society for Paediatric Oncology - SIOPE.

🧩 Interactive workshops focused on , , and , while Spotlight Sessions highlighted key initiatives such as and .

🍽️ The day concluded with a wonderful networking dinner, kindly sponsored by Solving Kids' Cancer.

✨ Looking forward to another great day ahead!

04/05/2026

🎉 A “braw” (that’s Scottish for great!) start to the Conference in Glasgow! Once again, the conference is held in partnership with SIOP Europe, the European Society for Paediatric Oncology - SIOPE!

🗓️ The day began with the Survivors’ Session, followed by Childhood Cancer International updates and a special CCI Europe throwback highlighting the past months through a timeline, as well as a look ahead to the year to come. The day also featured Spotlight Sessions highlighting important projects and initiatives such as , , and .

🎈An engaging icebreaker session and the vibrant flag parade made it a truly memorable start!

✨ Can’t wait for what tomorrow brings!

30/04/2026

The first step toward creating IMPACT(-EU) has been taken 💛✨ 💛✨

Last week in Vienna 🇦🇹, hosted by the partner Medizinische Universität Wien, we held the very first Consensus Group Meeting as part of the project, co-funded by the .

A core pillar of this project is Setting Shared Standards for in in Europe.

Bringing together a diverse group of experts in a Consensus Group 🤝including healthcare professionals 👩🏻‍⚕️, patient advocates 💬, and representatives of parent and patient organisations 👨‍👩‍👧‍👦 last week we began shaping a shared vision:

🎗️What the European Standards for psychosocial care in should include
🎗️ What they should look like
🎗️ What goals they should serve for children and families affected by

The discussions were rich and inspiring with some great key outcomes:
📣Defining the core elements of the Standards
📣 Exploring their structure
📣 Outlining the initial chapters
📣 Laying a strong foundation to guide the next phases of work

This is just the beginning 🚀 Three additional consensus meetings will follow later this year 💻, continuing the work and strengthening our shared efforts 🌍

Would you like to be part of this journey and help shape the future of for children and their families? 💛

Stay connected and join our project newsletter 📩 www.siope.eu/impact-eu to keep up with the latest developments!

SIOP Europe, the European Society for Paediatric Oncology - SIOPE

27/04/2026

🎉ENLACE Europe has been officially launched on April 21st with an online kick-off meeting.

💪 This new initiative will support member organisations in Europe, strengthening their work for children and families affected by . Supported by Childhood Cancer International and the La Fondation La Roche-Posay, the programme builds on successful experiences in other regions.

▶️ Read the news release at: https://ow.ly/Rrw150YQx66

15/04/2026

📄 How are you feeling today? It is a simple question that can make a real difference in the care of children with cancer.

🦋 contributed to a paper published in EJC Paediatric Oncology examining the gaps and opportunities in capturing Patient-Reported Outcomes ( ) in care, and what needs to change to ensure every child's voice is heard.

🔗 Read the full paper at: https://ow.ly/9BN850YFAzU

10/04/2026

🎗️ Siblings play a unique and lasting role in a child's life, one that becomes even more significant when cancer enters the picture.

🧠 When a child is diagnosed with cancer, their are deeply affected too. Feelings of isolation, confusion, and anxiety are common, as family routines and dynamics shift around them. Too often, though, their needs go unnoticed, and they remain underrepresented in family support programmes across .

✨ This , we are reminded that truly supporting a child with cancer means supporting everyone around them. Siblings are not bystanders, they are individuals with their own needs, challenges, and right to support. Ensuring they feel seen, informed, and included is not a secondary concern. It is an essential part of family-centred care.

09/04/2026

💛 Today is the very first World Psycho-Oncology Day 💛

🎗️ Because cancer is not just a physical journey, it affects , , families, and everyday life. No one should have to go through that alone.

↑ The IMPACT-EU project, coordinated by Europe, the European Society for Paediatric Oncology - SIOPE , co-funded by the EU and under the scientific lead of Prinses Máxima Centrum voor kinderoncologie brings together experts and institutions to improve standards, access, and integration of psychosocial care in . By aligning , , and , the project aims to ensure that every young patient receives truly .

✨ Real care means caring for the whole person.

📬 If you’d like to stay updated, hear about new resources, or get invited to activities, you can sign up for the IMPACT-EU newsletter at: https://ow.ly/r6aK50YFQxk

💬 Let’s raise awareness together and make psychosocial care a standard, not an exception

Consortium coordinated by :
KU Leuven , Children's Health Ireland , Medizinische Universität Wien , Sylva ry , , Princesse Margot , Univerzita Komenského v Bratislave , Institutul Oncologic din Moldova , Universitätsklinikum Bonn , Soleterre , Hospital Sant Joan de Déu Barcelona , Таблеточки , Φλόγα Σύλλογος Γονιών Παιδιών με Νεοπλασματική Ασθένεια , PanCare

07/04/2026

⏰ Only one day left to register at the regular rate! Sign up now for the 🎗️ CCI Europe Conference 🎗️ in Glasgow 🇬🇧, in partnership with SIOP Europe, the European Society for Paediatric Oncology - SIOPE.

✨ From May 4-6, don’t miss this incredible opportunity to join , survivors, parents, and healthcare professionals from across as they come together to share insights and best practices at one of the most anticipated events for the community.

▶️ Secure your spot at: https://ccieurope.eu/events/cci-europe-conference-2026/

Adresse

Wien

Webseite

https://ccieurope.eu/

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