Was ist die Webseite?

CCI Europe

CCI Europe represents Europe in the CCI global network of childhood cancer parents’ and survivors’ support groups. We are here to make it a reality.

Parents, patients, survivors and patient advocates are united to improve the medical and psychosocial care for children and adolescents with cancer all over Europe, to implement the European Standards of Care to eliminate still existing inequalities to improve the quality of survivorship. We as CCI Europe work together with the medical and psychosocial professionals, academia, researchers, scienti

sts, civil society and private organizations for the same aim, to help children and adolescents with cancer to be cured, with no – or as few as possible – long term health problems / late effects. Every child with cancer deserves a chance, no matter where in Europe they live.

16/07/2026

🎯Moving forward, together! From 3–5 July 2026, we held our second Committee meeting of the year, this time hosted by Acreditar in Lisbon. The Committee came together to review our progress, align on priorities, and continue shaping our work for the months ahead.

✨This meeting was also a special occasion as we welcomed three new Committee members:�
Alina Patrahau from Dăruiește Aripi 🇷🇴
Mary Claire Rennick from Childhood Cancer Ireland 🇮🇪
Rahel Morciano from ARFEC 🇨🇭

We are delighted to have you on board and look forward to working together to advance our shared mission for children and adolescents with cancer across Europe.

🙏 Thank you to Acreditar for their warm hospitality throughout our time in Lisbon.

👀Stay tuned for more updates as we continue working together for everyone affected by childhood cancer.

30/06/2026

🌱 Collaboration across Europe fuels innovation. The and projects, both co-funded by the European Union, are building a stronger communication and synergy. Together, the projects are committed to improving and for children, adolescents, and young people with cancer and their families, ultimately enhancing .

💬 Following discussions at the SIOPE Annual Meeting and CCI Europe Conference in Glasgow and last week's online meeting, our collaboration continues to grow. This collaboration allows us to build on each other's expertise, share , and maximise the of our respective initiatives as we lay the foundation for closer cooperation in the months ahead.

💛 By bringing together projects with complementary strengths, we can accelerate knowledge exchange, amplify our collective impact, and help build more , integrated supportive care for children, adolescents, and young people with cancer across Europe.

✨ This is just the beginning, and we are looking forward to sharing more joint activities and milestones in the coming months. Together, we can achieve more.

Learn more about the projects:

▶️ IMPACT-EU: https://siope.eu/impact-eu
▶️ ONCOME: https://on-come.eu/

hashtag hashtag

SIOP Europe, the European Society for Paediatric Oncology - SIOPE

26/06/2026

👀 "You look fine." Many survivors hear these words, even when they are facing challenges that others cannot see.

ℹ️ Fatigue. Anxiety. Memory and concentration difficulties. Hormonal changes. Many effects of and its treatment are invisible.

🎭 Looking well is not the same as being well. When invisible challenges go unrecognised, survivors may struggle to get the understanding, , and accommodations they need. Not every experience has a silver lining. Some things are just hard. And that's part of too.

✨ Every survivor's experience is real. Every survivor's experience matters.

▶️ Learn more about invisible at: https://ow.ly/IBZp50Zge1r

24/06/2026

💛 When people think about , they often think the challenges end when treatment does. But not everything goes away when cancer does.

ℹ️ Some live with visible such as hearing loss, mobility challenges, vision impairment, scarring, or other long-term health conditions. But late effects do not define a person's abilities, ambitions, or future.

🌱 There is no single way for a . For some, visible late effects mean needing accommodations or ongoing support. Everybody might be facing different challenges. All experiences are valid.

✨ Greater understanding helps ensure survivors receive the they need at school, at work, and in everyday life.

▶️ Learn more about visible late effects and at: https://ow.ly/kr9V50Zg7uW

22/06/2026

🎗️When treatment ends, many people assume life goes back to normal. But for many survivors, life after cancer comes with ongoing challenges.

ℹ️ Health problems, learning difficulties, emotional challenges, and other can appear months or years after treatment. In fact, 3 in 4 childhood cancer survivors are affected by late effects during their lifetime.

💛 No two experience in the same way. Some face significant challenges. Others experience fewer long-term effects. Every experience is valid. Understanding life after is the first step towards better support, better care, and better for survivors.

▶️ Learn more about and at: https://ow.ly/9VwI50Zexxp

16/06/2026

💛 What happens after treatment ends? For many , completing treatment is the beginning of a new phase of life, one that can bring new opportunities, challenges, and questions.

✨ Join the upcoming webinar on 27 June 2026 at 16:00 CEST, hosted by the Childhood Cancer International SurNet Survivors’ Network and the International Society of Paediatric Oncology - SIOP Survivorship Network. Survivors will share their perspectives and lived experiences alongside healthcare professionals and in a discussion about the realities of life after childhood cancer and the needed to navigate .

The webinar will explore key aspects of , including:�✅ Education and returning to school
✅ Work, careers, and independence
✅ Mental health, wellbeing, and identity
✅ Everyday life after cancer
✅ How communities and professionals can better support survivors long-term

▶️ Register at: https://ccieurope.eu/event/survivors-week-webinar-2026/

12/06/2026

🌍 🎗️ The global community is coming together once again, and you can be part of it!

ℹ️ This year, the 32nd Childhood Cancer International Annual Conference, organised in conjunction with the International Society of Paediatric Oncology - SIOP, will take place in 🇺🇸 San Antonio, TX, from September 15 -18, 2026.

💫 This is a unique opportunity to connect with , , parents, professionals, and organizations from around the world, all united in working toward better outcomes for children and adolescents with cancer.

⏰ Early bird registration is available until June 23, so there’s still time to secure your spot.

🎟️ Are you a CCI member who would like to attend? A limited number of stipends are available. Apply by June 15.

▶️ Learn more and register at: https://www.childhoodcancerinternational.org/cci-annual-conference-2026

22/05/2026

💛 How can young people living with and beyond cancer be supported in adopting and maintaining a healthy lifestyle? How can the unique challenges they face be addressed and overcome?

🌍 If you are a person with lived experience, a healthcare professional, a family member, or simply interested in learning more about healthy lifestyles for people affected by cancer, join us on 27 May 2026 at 17:00 CEST for the next YARN webinar.

🎈 Ian Murphy, Project Coordinator and , will take part in the discussion, sharing the important perspective of and .

During the webinar, we will discuss:�
✨Testimonies from young people with lived experience
✨Best practices for healthcare professionals
✨ Practical strategies to support sustainable lifestyle changes

🔎 The YARN Webinar Series creates a space for open conversations around survivorship, mental well-being, healthy living, and life beyond cancer, helping young people affected by cancer feel supported, informed, and connected.

▶️ Register at: https://ow.ly/umGM50Z38Th

PanCare Youth Cancer Network

06/05/2026

🌟 Day 3 brought the Conference in Glasgow to a close, finishing strong and looking ahead to what’s next!

🗓️ The programme featured a joint session on that meet scientific goals and needs, together with , as well as abstract presentations on the role of patient-reported outcome measures ( ) in clinical trials.

🧩 Sessions also explored the different faces of and highlighted research that listens to survivors and parents, helping to drive progress in childhood cancer.

🔮 The conference closed with a look ahead at what’s next for CCI Europe.

✨ Thank you to everyone who made these days in Glasgow so impactful! See you in Vienna for the CCIEurope2027!

Adresse

Wien

Webseite

https://ccieurope.eu/

Benachrichtigungen

Lassen Sie sich von uns eine E-Mail senden und seien Sie der erste der Neuigkeiten und Aktionen von CCI Europe erfährt. Ihre E-Mail-Adresse wird nicht für andere Zwecke verwendet und Sie können sich jederzeit abmelden.